{"id":9806,"date":"2011-07-15T09:52:21","date_gmt":"2011-07-15T13:52:21","guid":{"rendered":"http:\/\/pmedicine.org\/epatients\/?p=9806"},"modified":"2011-07-15T09:52:21","modified_gmt":"2011-07-15T13:52:21","slug":"how-facebook-saved-my-sons-life-slate-com","status":"publish","type":"post","link":"https:\/\/participatorymedicine.org\/epatients\/2011\/07\/how-facebook-saved-my-sons-life-slate-com.html","title":{"rendered":"How Facebook Saved My Son&#8217;s Life (Slate.com)"},"content":{"rendered":"<p>&#8220;Health is social,&#8221; says SPM member Phil Baumann, RN (<a href=\"http:\/\/twitter.com\/philbaumann\" target=\"_blank\">@PhilBaumann<\/a>) at <a href=\"http:\/\/healthissocial.com\/\" target=\"_blank\">HealthIsSocial.com<\/a>.<\/p>\n<p>Slate has <a href=\"http:\/\/www.slate.com\/id\/2297933\/pagenum\/all\" target=\"_blank\">a dramatic story<\/a> of how a mother&#8217;s Facebook network helped spot &#8211; rapidly &#8211; Kawasaki Disease, a rare auto-immune disease that the family&#8217;s doctors had initially missed.<\/p>\n<p>Her social network contains some medically knowledgeable people. (Do you have any docs, nurses, etc in your Facebook circle?) Note that friends&#8217; availability is sometimes far greater than a doctor&#8217;s office.<\/p>\n<p>Read how the diagnosis unfolded. And read what her family physician said, when she called from the E.R.:<\/p>\n<blockquote><p>&#8220;You know what?&#8221; he said, &#8220;I was actually just thinking it could be Kawasaki disease. Makes total sense. Bravo, Facebook.&#8221;<\/p><\/blockquote>\n<p>Then this, as the crisis wound down: <em>(bullets added)<\/em><\/p>\n<p>&#8220;Facebook transformed from my son&#8217;s inadvertent lifesaver to the most valuable tool in my arsenal:<\/p>\n<ul>\n<li>to keep family and friends abreast of his ever-mutating condition without having to steal time and emotional energy away from him;<\/li>\n<li>to pepper [her FB friends] Beth, the pediatrician, and Emily, the pediatric cardiologist, with an endless series of random questions with which I was too embarrassed to bother my own doctors;<\/li>\n<li>to feel connected\u2014profoundly connected\u2014to the human race while living, breathing, eating and sleeping in the isolating, fluorescent-lit bubble of a children&#8217;s hospital ward, where any potential humans I might have &#8220;friended&#8221; on our floor were too distraught over the fates of their own children to make any room in their hearts for strangers.&#8221;<\/li>\n<\/ul>\n<p>Health is social. And social networks let us bring real value to care episodes, let us be engaged in our families&#8217; care, beyond what our clinicians provide.<\/p>\n<p><em>Thanks to my college classmate Bill Reenstra for forwarding this item from our fellow alumnus David Grosof, who was at a talk I gave at our alumni club Tuesday in San Francisco.<\/em><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8220;Health is social,&#8221; says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com. Slate has a dramatic story of how a mother&#8217;s Facebook network helped spot &#8211; rapidly &#8211; Kawasaki Disease, [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[21,171,12],"tags":[],"coauthors":[],"class_list":["post-9806","post","type-post","status-publish","format-standard","hentry","category-e-ptsresources","category-e-patient-stories","category-found-on-the-net"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>How Facebook Saved My Son&#039;s Life (Slate.com) - SPM Blog<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/participatorymedicine.org\/epatients\/2011\/07\/how-facebook-saved-my-sons-life-slate-com.html\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"How Facebook Saved My Son&#039;s Life (Slate.com) - SPM Blog\" \/>\n<meta property=\"og:description\" content=\"&#8220;Health is social,&#8221; says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com. 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