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The Field-Building Role of a Journal About Participatory Medicine and Health, and the Evidence Needed


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Abstract Summary: A journal with “participatory medicine” in its name will challenge health care organizations, practitioners, care givers, and patients to examine their comportment and relationships. It will also challenge the scientists of medicine,...

Patient-Driven Research: Rich Opportunities and Real Risks


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Abstract Summary: Since the Internet’s earliest days, patients have used online resources to share experiences, learn about diseases and treatments, and become advocates. A newer phenomenon has seen a growing number of online communities evolve into centers of...

Building a Research Agenda for Participatory Medicine

Abstract Summary: The emerging phenomenon of participatory medicine seems to lead to improved health outcomes, but this is not yet supported by a robust evidence base. Fundamental questions about the participation of individuals—sick and well—remain unanswered. Only...

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