{"id":4040,"date":"2017-03-10T06:44:18","date_gmt":"2017-03-10T12:44:18","guid":{"rendered":"http:\/\/pmedicine.org\/?page_id=4040"},"modified":"2023-12-15T09:10:49","modified_gmt":"2023-12-15T14:10:49","slug":"homepage-2017","status":"publish","type":"page","link":"https:\/\/participatorymedicine.org\/","title":{"rendered":"01 Homepage 2023"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.14.7&#8243; custom_margin=&#8221;-10px||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_before=&#8221;.et_pb_slider_container_inner { margin:-20px 0 0 0; } &#8221; da_disable_devices=&#8221;off|off|off&#8221; transparent_background=&#8221;off&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;off&#8221; custom_width_px=&#8221;1080px&#8221; custom_width_percent=&#8221;80%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_slider show_pagination=&#8221;off&#8221; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.14.7&#8243; vertical_offset=&#8221;0px&#8221; horizontal_offset=&#8221;0px&#8221; custom_margin=&#8221;-10px||||false|false&#8221; custom_padding=&#8221;0px||20px||false|false&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;left&#8221; auto=&#8221;on&#8221; auto_speed=&#8221;11000&#8243; hover_transition_duration=&#8221;600ms&#8221; hover_transition_delay=&#8221;150ms&#8221; hover_transition_speed_curve=&#8221;ease-in&#8221; custom_css_slide_description=&#8221;padding-top: 15% !important; ||padding-bottom: 15% !important;&#8221; db_height=&#8221;490px&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_slide heading=&#8221;What is Participatory Medicine?&#8221; button_text=&#8221;Learn More&#8221; button_link=&#8221;https:\/\/participatorymedicine.org\/what-is-participatory-medicine\/&#8221; use_text_overlay=&#8221;on&#8221; text_overlay_color=&#8221;rgba(0,0,0,0.5)&#8221; text_border_radius=&#8221;6px&#8221; _builder_version=&#8221;4.14.7&#8243; header_font=&#8221;|700|||||||&#8221; background_image=&#8221;https:\/\/participatorymedicine.org\/wp-content\/uploads\/2023\/12\/Leonardo_Diffusion_XL_a_white_older_woman_is_in_a_sparse_clean_1.jpg&#8221; background_enable_image=&#8221;on&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;rgba(104,104,104,0.53)&#8221; link_option_url=&#8221;https:\/\/participatorymedicine.org\/what-is-participatory-medicine\/&#8221; global_colors_info=&#8221;{}&#8221; sticky_transition=&#8221;on&#8221;]<\/p>\n<p>Participatory Medicine is a movement in which patients and health professionals actively collaborate and encourage one another as full partners in healthcare.<\/p>\n<p>[\/et_pb_slide][et_pb_slide heading=&#8221;The Society:<br \/>WHO WE ARE +<br \/>WHAT WE DO&#8221; button_text=&#8221;Learn More&#8221; button_link=&#8221;https:\/\/participatorymedicine.org\/about\/&#8221; use_text_overlay=&#8221;on&#8221; text_overlay_color=&#8221;rgba(0,0,0,0.5)&#8221; text_border_radius=&#8221;6px&#8221; _builder_version=&#8221;4.14.7&#8243; header_font=&#8221;|700|||||||&#8221; background_image=&#8221;https:\/\/participatorymedicine.org\/wp-content\/uploads\/2017\/03\/homepage_spm_004.jpg&#8221; background_enable_image=&#8221;on&#8221; 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background_blend=&#8221;lighten&#8221; custom_margin=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div id=\"journalface\"><!-- [et_pb_line_break_holder] --><\/p>\n<h3><!-- [et_pb_line_break_holder] -->  <div class=\"wp-rss-template-container\" data-wpra-template=\"spm-journal\" data-template-ctx=\"eyJzb3VyY2UiOiI1NTQ5IiwibGltaXQiOiIxIiwiZXhjZXJwdHMiOiIxIiwicGFnaW5hdGlvbiI6IjAiLCJ0ZW1wbGF0ZSI6InNwbS1qb3VybmFsIiwibGlua3NfYWZ0ZXIiOiIiLCJsaW5rX2FmdGVyIjoiMSIsImxpbmtzX2JlZm9yZSI6IiIsImxpbmtfYmVmb3JlIjoiIn0=\">\n    <div class=\"wp-rss-aggregator wpra-list-template  \" data-page=\"1\">\n    \n    \n<ul class=\"wpra-item-list rss-aggregator \"\n    start=\"1\">\n                        <li class=\"wpra-item feed-item \">\n            \n            \n\n    <a  href=\"https:\/\/jopm.jmir.org\/2024\/1\/e50092\/\" target=\"_blank\"  class=\"\">The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents<\/a>\n\n\n\n\n\n\n<div class=\"wprss-feed-meta\">\n    \n    \n            <span class=\"feed-author\">\n            By Janine Benjamins\n        <\/span>\n    <\/div>\n\n\n\n\n\n            \n        <\/li>\n        <\/ul>\n\n        \n<\/div>\n\n<\/div>\n<!-- [et_pb_line_break_holder] --><\/h3>\n<p><!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] --><\/div>\n<\/div>\n<p> [\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.14.7&#8243; background_color=&#8221;#FFFFFF&#8221; custom_padding=&#8221;|5px||5px|false|false&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_code admin_label=&#8221;Blog_Blurb_New&#8221; _builder_version=&#8221;4.14.7&#8243; hover_enabled=&#8221;0&#8243; saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<style type=\"text\/css\"><!-- [et_pb_line_break_holder] -->.feed-date { font-size:80%!important; }<!-- [et_pb_line_break_holder] -->.netsposts-posttitle  { font-family: 'Open Sans', Helvetica, Arial, Lucida, sans-serif!important; font-weight:normal!important; font-size:150%!important; color:#0088c0!important;}<!-- [et_pb_line_break_holder] -->  .netsposts-posttitle-link { font-size:150%!important; color:#0088c0!important; }<!-- [et_pb_line_break_holder] -->   .netsposts-posttitle-link a,  .netsposts-posttitle-link a:link { font-size:150%!important; color:#0289C1!important; } <!-- [et_pb_line_break_holder] -->.netsposts-source { font-size:80%!important;  font-family: 'open Sans', Helvetica, Arial, Lucida, sans-serif!important; font-weight:normal!important; margin:10px;padding:10px; }<!-- [et_pb_line_break_holder] -->.netsposts-excerpt { color:#333!important; text-align:left!important; font-size:14px!important; font-family: \"Open Sans\", Arial, sans-serif!important; font-weight:normal!important; letter-spacing: normal!important; margin:8px 0 0 0!important;word-wrap:normal!important;margin:10px 0; }<!-- [et_pb_line_break_holder] -->  .link-img-wrapper { margin:10px 0; }<!-- [et_pb_line_break_holder] --> img.alignleft { margin:15px 0!important;clear:both!important;display:block!important;float:none!important; }<!-- [et_pb_line_break_holder] --><\/style>\n<p><!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] --><\/p>\n<div class=\"et_pb_blurb_content\"><!-- [et_pb_line_break_holder] --> <\/p>\n<div class=\"et_pb_blurb_container\"><!-- [et_pb_line_break_holder] --> <\/p>\n<h4 style=\"font-size:90%;\">FROM THE BLOG<\/a><\/h4>\n<p><!-- [et_pb_line_break_holder] --> <\/div>\n<p><!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] --><div class=\"netsposts-menu\"><\/div><div class=\"netsposts-screen\"><div class=\"netsposts-block-wrapper current\"><div class=\"netsposts-items\"><div class=\"netsposts-content blog-3 post-22901 category-diversity category-doctor-issues category-health-equity category-inclusion category-medical-records category-participatory-medicine category-ptdoc-co-care category-pm-tech category-shared-decision-making category-trendsprinciples\" style=\"\"><a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\" class=\"netsposts-posttitle-link\" title=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\" >Technology, Health Equity, and Participatory Medicine in the Care Management of Sickle Cell Patients<\/a><div class=\"netsposts-source\" style=\"margin-bottom: 5px;width: 100%;\"><span>Published<\/span><span> 4\/26\/2024<\/span> <span>in<\/span>  <span><a href=\"https:\/\/participatorymedicine.org\/epatients\"  class=\"netsposts-source-link\">SPM Blog<\/a><\/span><br\/><\/div><a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\"  class=\"link-img-wrapper\"><img loading=\"lazy\" decoding=\"async\" width=\"368\" height=\"338\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2021\/12\/Brenda_cropped_resized.jpg\" class=\"alignleft wp-post-image\" alt=\"\" \/><\/a><div class=\"netsposts-excerpt\" style=\"color: #000000;\">During my doctoral study in nursing practice a couple of years ago, I learned about a champion of nursing informatics, Dr. Nancy Staggers. Dr. Staggers assisted in developing the American Nursing Association\u2019s Scopes and Standards... <a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\">   <\/a><a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\"  class=\"netsposts-read-more-link\">read more&nbsp;&#10095;<\/a><\/div><\/div><div class=\"end-netsposts-content\"><\/div><\/div><\/div><\/div> <!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] --><\/div>\n<p> <!-- .et_pb_blurb_content --><!-- [et_pb_line_break_holder] -->[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;News Release Blurb&#8221; _builder_version=&#8221;4.14.7&#8243; z_index_tablet=&#8221;500&#8243; text_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; text_text_shadow_vertical_length_tablet=&#8221;0px&#8221; text_text_shadow_blur_strength_tablet=&#8221;1px&#8221; link_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; link_text_shadow_vertical_length_tablet=&#8221;0px&#8221; link_text_shadow_blur_strength_tablet=&#8221;1px&#8221; ul_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; ul_text_shadow_vertical_length_tablet=&#8221;0px&#8221; ul_text_shadow_blur_strength_tablet=&#8221;1px&#8221; ol_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; ol_text_shadow_vertical_length_tablet=&#8221;0px&#8221; ol_text_shadow_blur_strength_tablet=&#8221;1px&#8221; quote_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; quote_text_shadow_vertical_length_tablet=&#8221;0px&#8221; quote_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_2_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_2_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_2_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_3_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_3_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_3_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_4_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_4_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_4_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_5_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_5_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_5_text_shadow_blur_strength_tablet=&#8221;1px&#8221; header_6_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; header_6_text_shadow_vertical_length_tablet=&#8221;0px&#8221; header_6_text_shadow_blur_strength_tablet=&#8221;1px&#8221; box_shadow_horizontal_tablet=&#8221;0px&#8221; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_spread_tablet=&#8221;0px&#8221; global_module=&#8221;6589&#8243; saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"et_pb_blurb_content\">\n<div class=\"et_pb_blurb_container\">\n<h4 style=\"font-size:90%!important;\">OUR MANIFESTO<\/h4>\n<\/div>\n<h3 class=\"entry-title\" style=\"margin:18px 0!important;\"><a style=\"color:#0088c0!important;\" href=\"https:\/\/participatorymedicine.org\/manifesto\/\">Participatory Medicine Manifesto<\/a><\/h3>\n<p>The manifesto was created by the members of the Society to help people understand what participatory medicine is all about.\n<\/p>\n<p>\n<a href=\"https:\/\/participatorymedicine.org\/manifesto\/\"><span style=\"font-size:120%!important;\">Read &amp; Sign It Now<\/span><\/a>!<\/p>\n<\/p>\n<p><a href=\"https:\/\/participatorymedicine.org\/manifesto\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2020\/01\/manifesto-1-300x111.jpg\" width=\"300\" height=\"111\" alt=\"\" class=\"wp-image-7094 aligncenter size-medium\" \/><\/a><\/p>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; 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button_letter_spacing__hover=&#8221;0&#8243; button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_one_letter_spacing__hover=&#8221;null&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover=&#8221;null&#8221; button_bg_color__hover_enabled=&#8221;off&#8221; button_bg_color__hover=&#8221;null&#8221; button_one_bg_color__hover_enabled=&#8221;off&#8221; button_one_bg_color__hover=&#8221;null&#8221; button_two_bg_color__hover_enabled=&#8221;off&#8221; button_two_bg_color__hover=&#8221;null&#8221;]<span style=\"color: #ffffff;\"><a style=\"color: #ffffff;\" href=\"https:\/\/members.participatorymedicine.org\/forums\"><strong>Login to SPM Forums<\/strong><\/a><\/span>, our online community.<\/p>\n<p>Need to renew or update your account? Looking for the member directory?<br \/>\n<a href=\"https:\/\/members.participatorymedicine.org\/\"><span style=\"color: #ffffff;\"><strong>\u00bb Membership Login &amp;  Tools<\/strong><\/span>.<\/a>[\/et_pb_cta][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.2.2&#8243; custom_margin=&#8221;10px||||false|false&#8221; custom_padding=&#8221;10px||0px||false|false&#8221; da_disable_devices=&#8221;off|off|off&#8221; border_color_top=&#8221;#ffffff&#8221; transparent_background=&#8221;off&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row column_structure=&#8221;1_3,1_3,1_3&#8243; disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.2.2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;15px||||false|false&#8221; custom_padding=&#8221;15px||0px||false|false&#8221; border_color_all=&#8221;#AAAAAA&#8221; border_color_top=&#8221;#ffffff&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;on&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb title=&#8221;Downloads&#8221; url=&#8221;\/e-Patient_White_Paper_with_Afterword.pdf&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#x68;||divi||400&#8243; icon_color=&#8221;#0289C1&#8243; image_icon_background_color=&#8221;#ffffff&#8221; image_icon_width=&#8221;48px&#8221; admin_label=&#8221;Downloads&#8221; _builder_version=&#8221;4.13.0&#8243; header_level=&#8221;h3&#8243; header_text_color=&#8221;#0289C1&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; image_icon_custom_padding=&#8221;25px|25px|25px|25px|false|false&#8221; text_orientation=&#8221;center&#8221; border_radii_image=&#8221;on|100%|100%|100%|100%&#8221; border_width_all_image=&#8221;3px&#8221; border_color_all_image=&#8221;#e0e0e0&#8243; border_style=&#8221;solid&#8221; use_circle=&#8221;on&#8221; use_circle_border=&#8221;on&#8221; circle_border_color=&#8221;#e0e0e0&#8243; circle_color=&#8221;#ffffff&#8221; global_colors_info=&#8221;{}&#8221; image_icon_background_color__sticky_enabled=&#8221;#7EBEC5&#8243; image_icon_background_color__sticky=&#8221;#7EBEC5&#8243;]Download the whitepaper that&#8217;s the foundation for the Society: <a href=\"\/e-Patient_White_Paper_with_Afterword.pdf\"><strong>e-Patients: How they can help us heal health care<\/strong><\/a> (<a href=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2013\/03\/Libro-blanco-de-los-e-Pacientes.pdf\">Spanish version<\/a>).<\/p>\n<p>Download <a href=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2017\/06\/Participatory-Medicine-Final-5-22.pdf\"><strong>our most recent brochure<\/strong><\/a> or the <a href=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/06\/2019-SPM-Strategy-Final-for-Distribution.pdf\" target=\"newwin\" rel=\"noopener noreferrer\"><strong>2019 Strategic Plan<\/strong><\/a>.[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb title=&#8221;News&#8221; url=&#8221;\/category\/news\/&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe101;||divi||400&#8243; icon_color=&#8221;#c73f38&#8243; image_icon_background_color=&#8221;#ffffff&#8221; image_icon_width=&#8221;48px&#8221; admin_label=&#8221;News&#8221; _builder_version=&#8221;4.13.0&#8243; header_level=&#8221;h3&#8243; header_text_color=&#8221;#0289C1&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; image_icon_custom_padding=&#8221;25px|25px|25px|25px|false|false&#8221; text_orientation=&#8221;center&#8221; border_radii_image=&#8221;on|100%|100%|100%|100%&#8221; border_width_all_image=&#8221;3px&#8221; border_color_all_image=&#8221;#e0e0e0&#8243; border_style=&#8221;solid&#8221; use_circle=&#8221;on&#8221; use_circle_border=&#8221;on&#8221; circle_border_color=&#8221;#e0e0e0&#8243; circle_color=&#8221;#ffffff&#8221; global_colors_info=&#8221;{}&#8221; image_icon_background_color__sticky_enabled=&#8221;#7EBEC5&#8243; image_icon_background_color__sticky=&#8221;#7EBEC5&#8243;]What&#8217;s new at the Society?<br \/>\nCheck out our <a href=\"https:\/\/participatorymedicine.org\/newsletter-archive\/\">member newsletter past issues<\/a> or the <a href=\"\/category\/news\/\">meeting minutes<\/a> from our leadership.[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_blurb title=&#8221;Events &#038; Meetings&#8221; url=&#8221;https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/06\/2019-SPM-Strategy-Final-for-Distribution.pdf&#8221; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe025;||divi||400&#8243; icon_color=&#8221;#574200&#8243; 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body_link_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_ul_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_ul_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_ul_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_ol_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_ol_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_ol_text_shadow_blur_strength_tablet=&#8221;1px&#8221; body_quote_text_shadow_horizontal_length_tablet=&#8221;0px&#8221; body_quote_text_shadow_vertical_length_tablet=&#8221;0px&#8221; body_quote_text_shadow_blur_strength_tablet=&#8221;1px&#8221; border_radii_image=&#8221;on|100%|100%|100%|100%&#8221; border_width_all_image=&#8221;3px&#8221; border_color_all_image=&#8221;#e0e0e0&#8243; box_shadow_horizontal_tablet=&#8221;0px&#8221; box_shadow_vertical_tablet=&#8221;0px&#8221; box_shadow_blur_tablet=&#8221;40px&#8221; box_shadow_spread_tablet=&#8221;0px&#8221; box_shadow_horizontal_image_tablet=&#8221;0px&#8221; box_shadow_vertical_image_tablet=&#8221;0px&#8221; box_shadow_blur_image_tablet=&#8221;40px&#8221; box_shadow_spread_image_tablet=&#8221;0px&#8221; text_shadow_horizontal_length_tablet=&#8221;0px&#8221; text_shadow_vertical_length_tablet=&#8221;0px&#8221; text_shadow_blur_strength_tablet=&#8221;1px&#8221; use_circle=&#8221;on&#8221; use_circle_border=&#8221;on&#8221; circle_border_color=&#8221;#e0e0e0&#8243; circle_color=&#8221;#ffffff&#8221; global_colors_info=&#8221;{}&#8221; image_icon_background_color__sticky_enabled=&#8221;#7EBEC5&#8243; image_icon_background_color__sticky=&#8221;#7EBEC5&#8243;]Visit our <a href=\"\/calendar\/\" target=\"newwin\" rel=\"noopener noreferrer\"><strong>Events &#038; Meeting Calendar<\/strong><\/a> to see upcoming meetings and events hosted by the Society.[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.14.7&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_code admin_label=&#8221;Newsletter_Code&#8221; _builder_version=&#8221;4.14.7&#8243; custom_margin=&#8221;1px||||false|false&#8221; custom_padding=&#8221;0px||||false|false&#8221; z_index_tablet=&#8221;500&#8243; border_radii=&#8221;on|6px|6px|6px|6px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"et_pb_promo et_pb_module et_pb_bg_layout_dark et_pb_text_align_center et_pb_cta_1\" style=\"background-color: #2ea3f2;height:195px;margin:10px 0 auto!important;\"><!-- [et_pb_line_break_holder] --> <\/p>\n<div class=\"et_pb_promo_description\">\n<h2>Stay in Touch<\/h2>\n<p><!-- Begin MailChimp Signup Form --><!-- [et_pb_line_break_holder] --><link href=\"\/\/cdn-images.mailchimp.com\/embedcode\/slim-10_7.css\" rel=\"stylesheet\" type=\"text\/css\">\n<style type=\"text\/css\"> #mc_embed_signup{background:#2ea3f2; clear:left; font:14px Helvetica,Arial,sans-serif; display:inline!important; width:100%; }<\/style>\n<p><!-- [et_pb_line_break_holder] --><\/p>\n<div id=\"mc_embed_signup\" class=\"form-inline\">\n<form action=\"\/\/participatorymedicine.us2.list-manage.com\/subscribe\/post?u=e16b5ca6477f49fff71a74ab0&#038;id=084c13b93e\" method=\"post\" id=\"mc-embedded-subscribe-form\" name=\"mc-embedded-subscribe-form\" class=\"validate\" target=\"_blank\" novalidate><input type=\"hidden\" value=\"1\" name=\"group[11333][1]\" id=\"mce-group[11333]-11333-0\"> <input type=\"email\" value=\"\" name=\"EMAIL\" class=\"email\" id=\"mce-EMAIL\" placeholder=\"Your email address\" required style=\"float:left!important;display:inline!important;\">  <input type=\"submit\" value=\" \u00a0\u00a0\u00a0 Subscribe Today \u00a0\u00a0\u00a0 \" name=\"subscribe\" id=\"mc-embedded-subscribe\" class=\"button22\" style=\"display:inline!important;float:left!important;height:34px!important;margin:0 0 4px 0;padding:0;\"><!-- [et_pb_line_break_holder] -->  <br clear=\"both\" style=\"clear:both;\"\/><a href=\"https:\/\/participatorymedicine.org\/newsletter-archive\/\" style=\"color:#FFF!important;font-size:80%;float:left;\">Newsletter Archives \u00bb<\/a><!-- [et_pb_line_break_holder] --><\/form>\n<p><!-- [et_pb_line_break_holder] --><\/div>\n<\/div>\n<\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.22&#8243; custom_padding=&#8221;0px||0px|&#8221; da_disable_devices=&#8221;off|off|off&#8221; transparent_background=&#8221;off&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;3.25&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Organization Partners and supporters&#8221; _builder_version=&#8221;4.2.2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3 style=\"text-align: center;\">Our <a href=\"\/organizational-supporters-partners\/\">Organizational Partners &amp; Supporters<\/a><\/h3>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_4,1_4,1_4,1_4&#8243; _builder_version=&#8221;4.14.7&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_padding=&#8221;||0px|&#8221; link_option_url=&#8221;https:\/\/participatorymedicine.org\/organizational-supporters-partners\/&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_code admin_label=&#8221;Real Chem Logo&#8221; _builder_version=&#8221;4.14.7&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div style=\"margin:35px 0 0 0;\">\u00a0<\/div>\n<p>[\/et_pb_code][et_pb_code disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;PLM_Code&#8221; _builder_version=&#8221;4.14.7&#8243; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2018\/10\/plm-300x79.jpg\" alt=\"PatientsLikeMe\" width=\"300\" height=\"79\" class=\"aligncenter size-medium wp-image-6284\" style=\"padding:2px 0 0 0;\" srcset=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2018\/10\/plm-300x79.jpg 300w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2018\/10\/plm-768x202.jpg 768w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2018\/10\/plm-150x39.jpg 150w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2018\/10\/plm.jpg 792w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a>[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_code disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;NRC Health&#8221; _builder_version=&#8221;4.14.7&#8243; custom_padding=&#8221;14px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2023\/01\/nrc-health3.png\" alt=\"NRC Health\" width=\"222\" height=\"112\" class=\"size-medium wp-image-3509\" \/>[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_code admin_label=&#8221;BH_Code&#8221; _builder_version=&#8221;4.14.7&#8243; custom_padding=&#8221;10px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<img decoding=\"async\" src=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2023\/08\/Evidation-logo-e1693048390696.png\" width=\"300\" alt=\"evidation\" class=\"aligncenter size-medium wp-image-9796\" vspace=\"20\" style=\"padding:10px 0;\" \/>[\/et_pb_code][et_pb_code disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;Kairos&#8221; _builder_version=&#8221;4.14.7&#8243; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-6919\" class=\"wp-image-6919 size-medium\" src=\"https:\/\/i1.wp.com\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm.jpg?resize=300%2C71&#038;ssl=1\" alt=\"Kairos\" width=\"300\" height=\"71\" data-recalc-dims=\"1\" srcset=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm.jpg 1239w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-300x71.jpg 300w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-768x183.jpg 768w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-1024x244.jpg 1024w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-1080x257.jpg 1080w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-980x233.jpg 980w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-480x114.jpg 480w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2019\/09\/KAIROS-more-than-40mm-150x36.jpg 150w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a>[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_code admin_label=&#8221;Health Union&#8221; _builder_version=&#8221;4.14.7&#8243; global_colors_info=&#8221;{}&#8221;]<img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2023\/02\/health-union-logo-07-300x90-1.png\" alt=\"Health Union\" width=\"300\" height=\"90\" class=\"aligncenter sizefull wp-image-9796\" srcset=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2023\/02\/health-union-logo-07-300x90-1.png 300w, https:\/\/participatorymedicine.org\/wp-content\/uploads\/2023\/02\/health-union-logo-07-300x90-1-150x45.png 150w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>[\/et_pb_code][et_pb_code disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;DentaQuest&#8221; _builder_version=&#8221;4.14.7&#8243; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-6844\" src=\"https:\/\/participatorymedicine.org\/wp-content\/uploads\/2018\/01\/dentaquest_logo.png\" alt=\"DentaQuest\" style=\"padding:15px 0 0 4px;\" width=\"215\" height=\"42\" data-recalc-dims=\"1\" \/><\/a> [\/et_pb_code][\/et_pb_column][\/et_pb_row][et_pb_row disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.14.7&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;10px||10px||false|false&#8221; custom_padding=&#8221;5px||5px||false|false&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;on&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;More Sponsors&#8221; _builder_version=&#8221;4.2.2&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;10px||10px||false|false&#8221; border_style=&#8221;solid&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/www.backpackhealth.com\/\" target=\"newwin\" rel=\"noopener noreferrer\">Backpack Health<\/a> \u00a0\u00a0 \u00a0 <a href=\"https:\/\/www.w2ogroup.com\/\" target=\"newwin\" rel=\"noopener noreferrer\">W2O<\/a> \u00a0\u00a0 <a href=\"https:\/\/www.inspire.com\/\" target=\"newwin\" rel=\"noopener noreferrer\">Inspire<\/a> \u00a0\u00a0 <a href=\"http:\/\/healthsparq.com\/\" target=\"newwin\" rel=\"noopener noreferrer\">Healthsparq<\/a> \u00a0\u00a0 <a href=\"https:\/\/conversahealth.com\/\" target=\"newwin\" rel=\"noopener noreferrer\">Conversa<\/a> \u00a0\u00a0 <a href=\"https:\/\/www.health2con.com\/\" target=\"newwin\" rel=\"noopener noreferrer\">Health 2.0<\/a><\/p>\n<p style=\"text-align: center;\"><a href=\"\/organizational-supporters-partners\/\">More organizational partners &amp; supporters \u00bb <\/a><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.2.2&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/participatorymedicine.org\/organizational-supporters-partners\/\">More supporting organizations and partners<\/a>&#8230;<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Participatory Medicine is a movement in which patients and health professionals actively collaborate and encourage one another as full partners in healthcare. <div class=\"wp-rss-template-container\" data-wpra-template=\"spm-journal\" data-template-ctx=\"eyJzb3VyY2UiOiI1NTQ5IiwibGltaXQiOiIxIiwiZXhjZXJwdHMiOiIxIiwicGFnaW5hdGlvbiI6IjAiLCJ0ZW1wbGF0ZSI6InNwbS1qb3VybmFsIiwibGlua3NfYWZ0ZXIiOiIiLCJsaW5rX2FmdGVyIjoiMSIsImxpbmtzX2JlZm9yZSI6IiIsImxpbmtfYmVmb3JlIjoiIn0=\">\n    <div class=\"wp-rss-aggregator wpra-list-template  \" data-page=\"1\">\n    \n    \n<ul class=\"wpra-item-list rss-aggregator \"\n    start=\"1\">\n                        <li class=\"wpra-item feed-item \">\n            \n            \n\n    <a  href=\"https:\/\/jopm.jmir.org\/2024\/1\/e50092\/\" target=\"_blank\"  class=\"\">The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents<\/a>\n\n\n\n\n\n\n<div class=\"wprss-feed-meta\">\n    \n    \n            <span class=\"feed-author\">\n            By Janine Benjamins\n        <\/span>\n    <\/div>\n\n\n\n\n\n            \n        <\/li>\n        <\/ul>\n\n        \n<\/div>\n\n<\/div>\n FROM THE BLOG <div class=\"netsposts-menu\"><\/div><div class=\"netsposts-screen\"><div class=\"netsposts-block-wrapper current\"><div class=\"netsposts-items\"><div class=\"netsposts-content blog-3 post-22901 category-diversity category-doctor-issues category-health-equity category-inclusion category-medical-records category-participatory-medicine category-ptdoc-co-care category-pm-tech category-shared-decision-making category-trendsprinciples\" style=\"\"><a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\" class=\"netsposts-posttitle-link\" title=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\" >Technology, Health Equity, and Participatory Medicine in the Care Management of Sickle Cell Patients<\/a><div class=\"netsposts-source\" style=\"margin-bottom: 5px;width: 100%;\"><span>Published<\/span><span> 4\/26\/2024<\/span> <span>in<\/span>  <span><a href=\"https:\/\/participatorymedicine.org\/epatients\"  class=\"netsposts-source-link\">SPM Blog<\/a><\/span><br\/><\/div><a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\"  class=\"link-img-wrapper\"><img width=\"368\" height=\"338\" src=\"https:\/\/participatorymedicine.org\/epatients\/wp-content\/uploads\/sites\/3\/2021\/12\/Brenda_cropped_resized.jpg\" class=\"alignleft wp-post-image\" alt=\"\" decoding=\"async\" loading=\"lazy\" \/><\/a><div class=\"netsposts-excerpt\" style=\"color: #000000;\">During my doctoral study in nursing practice a couple of years ago, I learned about a champion of nursing informatics, Dr. Nancy Staggers. Dr. Staggers assisted in developing the American Nursing Association\u2019s Scopes and Standards... <a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\">   <\/a><a href=\"https:\/\/participatorymedicine.org\/epatients\/2024\/04\/technology-health-equity-and-participatory-medicine-in-the-care-management-of-sickle-cell-patients.html\/\"  class=\"netsposts-read-more-link\">read more&nbsp;&#10095;<\/a><\/div><\/div><div class=\"end-netsposts-content\"><\/div><\/div><\/div><\/div> OUR MANIFESTO Participatory Medicine Manifesto [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","jetpack_post_was_ever_published":false,"footnotes":""},"coauthors":[2265],"yoast_head":"<!-- This site is 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