{"id":6965,"date":"2019-09-29T18:22:41","date_gmt":"2019-09-30T00:22:41","guid":{"rendered":"https:\/\/participatorymedicine.org\/?page_id=6965"},"modified":"2023-10-18T16:16:38","modified_gmt":"2023-10-18T20:16:38","slug":"award","status":"publish","type":"page","link":"https:\/\/participatorymedicine.org\/doctom\/award\/","title":{"rendered":"The “Doc Tom” Awards"},"content":{"rendered":"
The Doc Tom awards honor the memory of \u201cDoc Tom\u201d Ferguson<\/a><\/strong>(1943 \u2013 2006) (Wikipedia<\/a>). Tom envisioned health care as an equal partnership between e-patients and health professionals and systems that support them. It is his spirit and his work that led to the creation of this Society in 2009.<\/p>\n Doc Tom\u00a0was a Family Medicine physician, a visionary and pioneer who sought to empower patients to use online resources, embraced patient contribution, and aimed for professionals to be equal partners with patients. Doc Tom was Medical Editor for the 1994 Millennium Whole Earth Catalog\u00a0<\/i>and the incredibly far-sighted 1996 book Health Online: How To Find Health Information, Support Groups, And Self Help Communities In Cyberspace.<\/i><\/p>\n His spirit and work led to the creation of the Society<\/strong>, through his peers & followers, whom he called his \u201ce-Patient Scholars Working Group.\u201d<\/p>\n Award 1: e-Patient Principles<\/strong><\/p>\n For a person who exemplifies what Tom stood for during his lifetime \u2013 specifically, who:<\/p>\n Award 2: Contribution to SPM<\/strong><\/p>\n For a person who has significantly furthered the visibility and impact of our Society \u2013 someone who:<\/p>\n <\/p>\n See the blog post<\/a>.<\/p>\n Mighty Casey exemplifies Tom\u2019s vision of patients sharing knowledge and transforming healthcare. She brought the full force of her personality and mind to assertively spreading the word through social media, patient communities, conferences, podcasts, non-profits, and academia.<\/p>\n SPM recognizes and thanks Casey for being a \u201cforce of nature\u201d in pursuit of a better world of healthcare for everyone.<\/p>\n See the blog post<\/a>.<\/p>\n The winner of this year\u2019s Doc Tom Award for e-patient principles is Susannah Fox.<\/p>\n Susannah describes herself as a member of the \u201chealth geek tribe.\u201d She works to advise organizations on how to navigate the intersection of health and technology, and a main focus of her work as an advisor and researcher is the power of connection among fellow patients and caregivers.<\/p>\n Susannah\u2019s nomination noted that \u201cher extraordinary work is able to deepen our understanding of what happens in the e-patient world. Her blog posts are perfect examples \u2013 there is a richness of research on her behalf, and her work is also able to draw out smart and valuable responses.\u201d<\/p>\n She is a powerful advocate for peer to peer health support, open, interoperable data, and the patient and care partner\u2019s voice. Through her blog and social media influence, she raises critical points and conversations about truly improving patient care and their ability to care for themselves. She is a true champion for participatory medicine of the future.<\/p>\n This winner of this year\u2019s Doc Tom award for contribution to SPM is Ileana Balcu.<\/p>\n Ileana is the founder of Woodbridge to Health, a community website to help the community of Woodbridge, NJ find local resources to get and stay healthy. She writes on her LinkedIn page that she helps people connect with each other, sometimes by using software, and that she\u2019s a proponent of participatory medicine and e-patients.<\/p>\n Her nominator stated: \u201cIleana has been part of SPM since 2011 and is a Lifetime member.\u00a0 She has served SPM as an organization in various capacities.\u00a0 She worked on attempts to find online communication tools for SPM and was a valuable beta-tester for Connect.\u00a0 More important than her contributions to SPM, though, is the fact that she is active and productive working to further patient autonomy, education and engagement on the front line and in the real world.\u00a0 She is currently doing this by creating and managing a Facebook page for her home community.\u00a0 She taught a course that included patient engagement at The College of New Jersey in 2016.\u00a0 I think SPM needs to honor Doc Tom by making sure that the award goes to someone like Ileana who makes real things happen for real people on a daily basis.\u201d<\/p>\n See the blog post.<\/a><\/p>\n An exemplar of participatory medicine principles, Liz, known on social media as @TheLizArmy<\/a>, turned her brain cancer diagnosis in 2008 at age 29 into \u201can open source chronicle of the patient experience.\u201d Her blog TheLizArmy<\/a> is her personal journal and health care soap box, receiving over 30,000 visits each year. Liz cares about patient-driven research, open source health data, palliative care, and neuroscience. In 2017 the lucky OpenNotes<\/a> team named Liz Senior Strategist for Outreach & Communications, She is a patient advisor for The BMJ and PCORI, and is a member of the National Academy of Medicine\u2019s Technologies to Enhance Person, Family, and Community Activation.\u00a0 Liz sent us a brief video<\/a>\u00a0to share her views and thanks.<\/p>\n <\/a>Dr. Danny Sands (below) and his patient Dave (left) were founding co-chairs of SPM. For seven years Dave was its most outspoken evangelist through the e-patients.net blog, and Danny its most visible physician voice. Both have served as tireless advocates, individually and together, for participatory medicine and the Society, and Dr. Sands continues as chairman. Dave, a survivor of a nearly fatal kidney cancer, is an international speaker including the highly popular TEDx Talk \u201cLet Patients Help<\/a>” and lead author of\u00a0Laugh, Sing and Eat Like a Pig<\/em>, and\u00a0Facing Death with Hope<\/em>. His blog\u00a0ePatient Dave: Toward a new science of patient engagement i<\/a>s an ecosystem on its own, including much more about the broad range of his global activities<\/p>\n <\/a>Danny Sands, MD, MPH<\/strong><\/a> an internist, completed a fellowship in clinical computing at Beth Israel Hospital and a Master of Public Health at Harvard. He developed, implemented, and evaluated a variety of systems designed to improve clinical care and bridge the gap between patient and physician, including electronic medical records, clinical decision support systems, and a patient portal. He came to know Doc Tom after he co-authored the first peer-reviewed article about doctor-patient email – in 1999.<\/p>\n
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\n2023 Winner<\/h2>\n
“Mighty Casey” Quinlan<\/h3>\n
\n2019 winners<\/h2>\n
e-Patient Principles: Susannah Fox<\/h3>\n
Contribution to SPM: Ileana Balcu<\/h3>\n
\n2018 winners<\/h2>\n
e-Patient Principles: Liz Salmi<\/strong><\/h3>\n
Contribution to SPM: e-Patient Dave <\/strong>and Dr. Danny Sands<\/strong><\/h3>\n