In Attendance: Sarah K, Dave D., John G., Jon L., Sue W., Deb L.

Dec 1st, Thurs, Noon – 1p EST

• Defining 4 pillars – a tool to help us better understand the existing activities to further define our strategy : (Sarah K)

1. Research – establishing a research exchange and practice collaboration (perhaps developing a research library and integration of the )
2. Education and Resources: Establishing best practices, information for ambassadors, meetups, questions patients can ask
3. Advocacy and Policy
4. Community: creating a solution for the list serve so it’s less overwhelming  and partnerships

• Link to working document to be posted HERE

• What are ways to clean up our community and the overwhelming list serve?
• Hosting webinars – Could offer formal stage and structure to our existing open dialog – successful president set with Tweetchat (Thank you to Marcela for the Tweetchat efforts)
• Can we launch a member survey? What information would be useful
• Regional Ambassadors
  • We might be able to craft some rules around this
  • Dave and Sarah taking this on
• Seal Program and Board Reconstitution to be discussed next week

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Original Agenda

1. Seal program status—defining programming needs (Alan)-Alan not able to attend, tabled to next meeting

2. Board Reconstitution -Alan not able to attend, tabled to next meeting
3. Strategic Planning-all ok with pillars but will review document and provide preliminary comments. (link to DRAFT)

4. SPM Webinars-all ok with concept. Danny-Can CISCO provide webinar capabilities? What committee will coordination fall under?

5. Regional Ambassadors -all ok with volunteers who are willing to spread awareness in respective region. Dave had proposed someone from Greece. Discussed need for clear description of role. This will eventually morph into a more formal but simple training, which consists of standardized decks that can be used at meetings, etc.  Dave, not sure if I recall this correctly, but didn’t your contact offer to draft a description? If so, might be a good start!

6. Other – Discussed sending out survey to members to understand what is greatest value of SPM? What are priorities? This will help with strategic planning. Sue offered to help with survey. Also discussed understanding which members did not renew. Understanding rationale for non-renewal can also feed into strategic planning process. Jon will send out non-renewal report. Discussed issues with overwhelming amount of information distributed through listserv. What are solutions? First step-might be simple education around changing frequency settings. This was also discussed on listserv today. Should we pull a team of volunteers together to address this?