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Pay Attention to the Symptoms, but Don't Ignore the Patient
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog... read more ❯
Pay Attention to the Symptoms, but Don't Ignore the Patient
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog... read more ❯
Manifesto
Participatory Medicine Manifesto
The manifesto was created by the members of the Society to help people understand what participatory medicine is all about. Read it now.
Downloads
Download the whitepaper that’s the foundation for the Society: e-Patients: How they can help us heal health care (Spanish version).
Download our most recent brochure or the 2019 Strategic Plan.
News
What’s new at the Society?
Check out our member newsletter past issues or the meeting minutes from our leadership.
Check out our member newsletter past issues or the meeting minutes from our leadership.
Events & Meetings
Visit our Events & Meeting Calendar to see upcoming meetings and events hosted by the Society.
