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e-Patients Blog

Our blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

Building a Framework for Authentic Patient Centricity

Building a Framework for Authentic Patient Centricity

As a leader in patient advocacy, I am often asked to speak on the topic of patient centricity and patient advocacy from the biotech/pharma perspective. What do we mean by patient centricity or when we say that patients are at the center of what we do or patients are...

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Coaching for Peak Performance and Best Health

Coaching for Peak Performance and Best Health

Coaching, critical to my success in life, art, politics, advocacy. Still need to do my own work & make choices. Listen to a session with one of my coaches, Jan Oldenburg https://health-hats.com/pod153/ or watch it on YouTube https://youtu.be/4TnT6Pk3TgM or read it...

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Healthcare as a Meeting of Two Experts

Healthcare as a Meeting of Two Experts

When I was training to become a clinical psychologist, my supervisors gave me several pieces of great advice. One told me that the psychologist or therapist is the expert on mental health treatment and research but the patient or client is the expert on their own...

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Linnea Olson: An Appreciation of a Giant

Linnea Olson: An Appreciation of a Giant

Pioneers of medical progress are lauded in published articles and by their professional peers. But it is often the patient advocates, particularly those who demanded better treatment, spearheaded clinical trial advances, and bravely took on institutions and standards...

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The Power of Storytelling

The Power of Storytelling

In the fall of 2020, in the depths of the pandemic, I attended the Philadelphia Inquirer Telling Your Health Story Conference from the safety of my home. I had volunteered to do the Story Slam at the end of the conference and planned on presenting a piece about caring...

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