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e-Patients Blog

Our blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

Power of People. Pause and Trust. Lynne Becker

Power of People. Pause and Trust. Lynne Becker

Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...

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Marketing & Communications Rockstars Wanted!

Marketing & Communications Rockstars Wanted!

The Society for Participatory Medicine (SPM) is looking for some rock stars to join our Marketing committee and to help change the world. If you would like to volunteer or know someone who may be interested, please take a look. We are a fun, high energy team committed...

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Leadership Transition, Part 2: Meet Mary Hennings

Leadership Transition, Part 2: Meet Mary Hennings

Hi Fellow SPM Members, As a follow up to the note from Danny Sands on Monday, I would like to provide you with an update on some of the exciting strategy work a group of board members and others undertook this summer and fall. Much has changed in the world at large...

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Leadership Transition, Part 1

Leadership Transition, Part 1

Leadership transitions are an essential part of the maturity of any organization. I have been board chair of Society for Participatory Medicine (SPM) for many years and now it is time to pass the torch to Mary Hennings so that I may become our first chief advocacy...

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Person-First Safe Living in a Pandemic #1

Person-First Safe Living in a Pandemic #1

How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find...

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Everyone-Included Research

Everyone-Included Research

Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...

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Checking the Compass of Participatory Medicine

Checking the Compass of Participatory Medicine

To paraphrase Abraham Lincoln, "A compass will point you to true north, but it doesn't show you the swamps. If you get bogged down, what's the use of knowing the direction?" When on a journey, it's a good policy to periodically take inventory of the landscape in order...

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