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e-Patients Blog

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How Trust Fuels Equitable Health Outcomes

How Trust Fuels Equitable Health Outcomes

At the Society for Participatory Medicine, we recognize trust and respect as a two-way relational dynamic essential to our mission to transform the culture of healthcare relationships so people can live their best lives (see our Participatory Medicine manifesto). And...

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The Power of the Prescription Pad

The Power of the Prescription Pad

At some point in our lives, we’ll be handed a little sheet of paper from our physician that has scribbled on it the medication we need, how much of it, and how often we should take it. These little slips of paper are power. They tell us that in order to get better, we...

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A Reminder of How To Care Through Self-Reflection

A Reminder of How To Care Through Self-Reflection

After 28 years of  nursing I could potentially consider myself an expert in the field. But this perception couldn’t be further from the truth. I still come home from a shift and often wonder and hope that I brought comfort to at least one patient. Did I do enough?...

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Glimmers of Hope: Real Progress In Participatory Medicine

Glimmers of Hope: Real Progress In Participatory Medicine

Twenty-five years ago, I learned I had a large liposarcoma in my left quadricep. I have written elsewhere about my surprise when my surgeon informed me that he and the team had changed the treatment plan. What team? Who are these people? Why wasn’t I at the team...

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AI Gives SPM a New Opportunity to Lead

I recently posted an article entitled, “In Cancer, Patient-Empowering AI Begins to Change Care, Relationships,” that contained this declaration, “Good medicine needs to become participatory medicine, not least because involving the patient as a partner consistently...

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In hospice, Mighty Casey receives SPM’s “Doc Tom” Award

In hospice, Mighty Casey receives SPM’s “Doc Tom” Award

The board of our Society for Participatory Medicine has voted unanimously to give the society's "Doc Tom" award to life member Casey Quinlan, who is in hospice in Richmond VA, as we blogged this month. On Saturday former board member Jan Oldenburg presented Casey with...

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Mighty Casey is entering hospice

Mighty Casey is entering hospice

Update 3/19: We've opened a CaringBridge page for Casey, where her support team will post updates. You can subscribe to get notifications and to leave words of support, memories, etc. Anyone can view; posting requires free registration. This news hit us worse than a...

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The Society for Participatory Medicine’s ePatients blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

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