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Resources for Patients

Participatory Medicine Resources for Patients

Becoming an e-patient (individuals who are equipped, enabled, empowered, and engaged in their health and health care decisions) is a continuing journey, one where you are always open to learning and discovering new and better ways of interacting with your healthcare team.

We’ve compiled a list of participatory medicine resources for patients below. In addition to the resources the Society has produced, many of the resources below are produced by other aligned organizations, including the Empowered Patient Coalition who have an additional set of amazing patient resources over at their website, EngagedPatients.

Society Resources

First-time e-patients may benefit from reading about other e-patients on our blog and checking out e-patient resource articles.

Our forums also offer a great wealth of resources for e-patients who are members of the Society.

Would you like to travel to a patient conference? Our patient travel scholarships can help to offset some or most of the cost of your travel expenses.

Rare Disease Resources for Patients, Caregivers & Medical Professionals

Sign the Participatory Medicine Manifesto


Choosing a Doctor

The Empowered Patient Coalition Choosing a Doctor Fact Sheet

Be Prepared for Doctor’s Visits from AHRQ

Tips for Talking to your Doctor from AHRQ

Questions to Ask the Doctor for Cancer Patients from

Communicating with your Doctor from the Family Caregiver Alliance


Speaking Up About Your Medical Care

The Empowered Patient Coalition’s Preparing for Discharge Fact Sheet is an initiative of the Center for Communication in Medicine. It offers a free Patient’s Guide to Difficult Conversations (PDF version). They also offer a variety of educational programs for patients.

The Joint Commission’s Speak Up in Preventing Medicine Errors

The Joint Commission’s Speak Up to Prevent Errors in Your Care

The Joint Commission’s Speak Up for Your Patient Rights

Five Steps to Safer Healthcare from AHRQ

Become More Involved in your Healthcare from AHRQ

Checklist for Getting the Right Diagnosis from NPSF

Questions to ask your doctor from AHRQ

5 Questions to ask your doctor (PDF) from ABIM Foundation

Know Your Rights from the Joint Commission

Preparing for Surgery: An Anesthesia Checklist from the American Society of Anesthesiologists


Understanding Medical Jargon & Lab Reports

Deciphering Your Lab Report from

Reference Ranges and What They Mean from

Collecting Samples for Laboratory Testing from


Getting a Second Opinion

Second Opinion information (and Should I get a second opinion?) from the Patient Advocate Foundation

Getting a Second Opinion before Surgery for Medicare Patients

Second Opinions for Adult Cancer Patients in California