Participatory Medicine Resources for Patients
Becoming an e-patient (individuals who are equipped, enabled, empowered, and engaged in their health and health care decisions) is a continuing journey, one where you are always open to learning and discovering new and better ways of interacting with your healthcare team.
We’ve compiled a list of participatory medicine resources for patients below. In addition to the resources the Society has produced, many of the resources below are produced by other aligned organizations, including the Empowered Patient Coalition who have an additional set of amazing patient resources over at their website, EngagedPatients.
Society Resources
First-time e-patients may benefit from reading about other e-patients on our blog and checking out e-patient resource articles.
Our forums also offer a great wealth of resources for e-patients who are members of the Society.
Would you like to travel to a patient conference? Our patient travel scholarships can help to offset some or most of the cost of your travel expenses.
Rare Disease Resources for Patients, Caregivers & Medical Professionals
Sign the Participatory Medicine Manifesto
Choosing a Doctor
The Empowered Patient Coalition Choosing a Doctor Fact Sheet
Be Prepared for Doctor’s Visits from AHRQ
Tips for Talking to your Doctor from AHRQ
Questions to Ask the Doctor for Cancer Patients from Cancer.net
Communicating with your Doctor from the Family Caregiver Alliance
Speaking Up About Your Medical Care
The Empowered Patient Coalition’s Preparing for Discharge Fact Sheet
SpeakSooner.org is an initiative of the Center for Communication in Medicine. It offers a free Patient’s Guide to Difficult Conversations (PDF version). They also offer a variety of educational programs for patients.
The Joint Commission’s Speak Up in Preventing Medicine Errors
The Joint Commission’s Speak Up to Prevent Errors in Your Care
The Joint Commission’s Speak Up for Your Patient Rights
Five Steps to Safer Healthcare from AHRQ
Become More Involved in your Healthcare from AHRQ
Checklist for Getting the Right Diagnosis from NPSF
Questions to ask your doctor from AHRQ
5 Questions to ask your doctor (PDF) from ABIM Foundation
Getting the Health Care You Need from The Health Consumer Alliance
Know Your Rights from the Joint Commission
Anesthesia & Me Checklist from the American Society of Anesthesiologists
Understanding Medical Jargon & Lab Reports
Deciphering Your Lab Report from Testing.com
Reference Ranges and What They Mean from Testing.com
Collecting Samples for Laboratory Testing from Testing.com
Getting a Second Opinion
Second Opinion Information from Womenshealth.gov
Getting a Second Opinion before Surgery for Medicare Patients
Second Opinion information (and Should I get a second opinion?) from the Patient Advocate Foundation
Second Opinions for Adult Cancer Patients in California