by e-Patient Dave | Jul 15, 2019 |
My name is Narinder Singh. I joined SPM in April. That’s my mom in the photo above. Last year our family was caught by surprise when she had a completely unexpected and dramatic ICU stay of three months. We had a lot to learn fast and too little help, and when... 
by Michael Millenson | Nov 9, 2018 |
Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting... 
by Danny van Leeuwen | Oct 7, 2018 |
Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS) technology can maximize trust and engagement during decision-making if used to its full potential. Or NOT. Consider the patient and family perspective... 
by Danny van Leeuwen | May 27, 2018 |
Thanks to support from SPM Travel Fund I attended Regina Holliday’s Cinderblocks Conference in Grantsville, MD. Still pound-for-pound the best conference going. Several days of local and national presentations about health, public health, and advocacy. Small,... 
by Danny van Leeuwen | Mar 28, 2018
Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise... 
by e-Patient Dave | Dec 20, 2017 |
No surprise to e-patients: a new study in the journal Surgery found that when patients facing a liver transplant connected with each other, they liked it. Read the article about it in MobiHealthNews or the original paper, if you can get it. Here’s an extract... 
by e-Patient Dave | Aug 7, 2017 |
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about... 
by e-Patient Dave | Aug 3, 2017 |
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,... 
by Danny van Leeuwen | Jul 22, 2017 |
Recently I connected a patient expert in insurance and provider billing with a patient at the tail end of chemo struggling with huge unexpected bills. I introduced a cancer survivor with web design skills to a patient advocate setting up a new blog. I linked a parent... 
by e-Patient Dave | Jun 7, 2017 |
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
Checking the Compass of Participatory MedicineJuly 10, 2020
The Health Story Collaborative & the Power of Healing NarrativesJune 10, 2020
Haiku as a path to resilience in the COVID-19 era: #HaikuChallenge20June 6, 2020
Courage and resilience help face the uncertainty of coronavirusMay 29, 2020
SPM & Health Story Collaborative Join Forces: Please Share Your Stories During the PandemicMay 19, 2020
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