by Danny van Leeuwen | May 27, 2018 |
Thanks to support from SPM Travel Fund I attended Regina Holliday’s Cinderblocks Conference in Grantsville, MD. Still pound-for-pound the best conference going. Several days of local and national presentations about health, public health, and advocacy. Small,... 
by Danny van Leeuwen | Mar 28, 2018 |
Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise... 
by e-Patient Dave | Dec 20, 2017 |
No surprise to e-patients: a new study in the journal Surgery found that when patients facing a liver transplant connected with each other, they liked it. Read the article about it in MobiHealthNews or the original paper, if you can get it. Here’s an extract... 
by e-Patient Dave | Aug 7, 2017 |
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about... 
by e-Patient Dave | Aug 3, 2017 |
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,... 
by Danny van Leeuwen | Jul 22, 2017 |
Recently I connected a patient expert in insurance and provider billing with a patient at the tail end of chemo struggling with huge unexpected bills. I introduced a cancer survivor with web design skills to a patient advocate setting up a new blog. I linked a parent... 
by e-Patient Dave | Jun 7, 2017 |
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a... 
by Ileana Balcu | Feb 11, 2017 |
This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on... by e-Patient Dave | Jun 22, 2016 |
Regular followers of this blog know for years we’ve been hot on the trail of the never-ending search for truth, justice, and please some reliable advice on medical matters. Tonight a google alert alerted us to the next round, the next attempt: a column by the... by e-Patient Dave | May 24, 2016 |
As regular readers know, we’ve written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new...
Facebook patient privacy issue – important #BCSM Twitter chat TONIGHT, July 16 9pm ETJuly 15, 2018
20725July 4, 2018
Medicare Holds Out Promise of Health Record Access RevolutionJune 27, 2018
SPM’s comments on important proposed CMS interoperability rulesJune 27, 2018
Request: Harnessing the patient voice from the ward to the boardroomJune 19, 2018
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