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Health Literacy Requires Talking with People – Not Patients

Health Literacy Requires Talking with People – Not Patients

by | Dec 14, 2022

“When someone is having an acute situation, that is not a teaching moment.” Peter Pitts  I recently participated on a panel at the STAT Summit with two brilliant healthcare thought leaders, former FDA Associate Commissioner and current president of the Center for...
A Citizen’s Response Corps for Digital Health

A Citizen’s Response Corps for Digital Health

by | Nov 15, 2022

Editor’s note: In his new book, The Long Haul – Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, journalist and patient Ryan Prior depicts the courage of patients with Long COVID who were the first to name,...
Collaborative Notes, Engaged Partners, Fewer Errors

Collaborative Notes, Engaged Partners, Fewer Errors

by | Jun 13, 2022

Patients, care partners & clinicians can reduce record errors with collaborative notes. Dr. Peter Elias shares his note-writing with collaborative partners. Proem Expecting an error-free medical record seems unreasonable – too many opportunities, too many forces,...
Person-First Safe Living in a Pandemic #1

Person-First Safe Living in a Pandemic #1

by | Nov 16, 2020

How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find...
A Family’s Guide to the ICU: Series Introduction

A Family’s Guide to the ICU: Series Introduction

by | Jul 15, 2019

My name is Narinder Singh. I joined SPM in April. That’s my mom in the photo above. Last year our family was caught by surprise when she had a completely unexpected and dramatic ICU stay of three months. We had a lot to learn fast and too little help, and when...
Getting Your Doctor to Really See You

Getting Your Doctor to Really See You

by | Nov 9, 2018

Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting...
Cinderblocks 2018

Cinderblocks 2018

by | May 27, 2018

Thanks to support from SPM Travel Fund I attended Regina Holliday’s Cinderblocks Conference in Grantsville, MD. Still pound-for-pound the best conference going. Several days of local and national presentations about health, public health, and advocacy.  Small,...
Lived Experience + Expertise = Value

Lived Experience + Expertise = Value

by | Jul 22, 2017

Recently I connected a patient expert in insurance and provider billing with a patient at the tail end of chemo struggling with huge unexpected bills. I introduced a cancer survivor with web design skills to a patient advocate setting up a new blog. I linked a parent...
From the UK: “Habits of an Improver”

From the UK: “Habits of an Improver”

by | Jun 7, 2017

We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...

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