by Danny van Leeuwen | Apr 29, 2017 |
I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in a different state. My mother has diabetes and is depressed. Her care team, besides herself and me, includes medical providers in various health settings, community support...
by Danny van Leeuwen | Mar 23, 2017 |
I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in...
by Danny van Leeuwen | Jan 4, 2017 |
Last month, in Communicate What? #CarePlanning, I declared the #CarePlanning hashtag, and told from personal experience the importance of communication in enabling participatory care. I ended with this – my perspective as the person who has the problem and the...
by Danny van Leeuwen | Dec 9, 2016 |
I want to share a family story and show how it connects to something we’ll all face, where real participatory thinking – and communication – make all the difference. My wife and I built a house together – the whole house, everything except...
by Danny van Leeuwen | Nov 11, 2016 |
On September 26, 2016, President Obama recognized Health IT Week by saying: We have worked to clarify an individual’s legal right to access their health information and transmit it where they choose—whether it’s to a family member or to their smartphone. These efforts...
by Danny van Leeuwen | Jun 24, 2016 |
SPM member Danny van Leeuwen is @HealthHats on Twitter. Last week I attended the American Academy of Communication in Healthcare (AACH) Conference in New Haven – 2016 ENRICH Healthcare Communication Course and Research Forum at Yale, entitled, Diverse Voices, Common...
by Danny van Leeuwen | Oct 12, 2013 |
The relationship between health team members, especially people and their clinicians and caregivers, frequently arises as a topic of this blog. Let me share with you one of the values of Advocates. I work for Advocates as VP of Quality. We express our values...
by Danny van Leeuwen | Jul 22, 2013 |
You may remember that I’m a Patient Reviewer for PCORI (Patient Centered Outcomes Research). PCORI, a federal initiative, helps people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity,...
by Danny van Leeuwen | Apr 11, 2013 |
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...
by Danny van Leeuwen | Feb 26, 2013 |
The overlap between the clinical aspects of our health journey and behavior of health team members occurs most often in medication management. Effective medication management depends on empowered, informed patients and caregivers prepared for clinician visits, and...
What My 90-Year-Old Mom Taught Me About the Future of AI In Health Care (WBUR)June 21, 2017
RIP: Larry Weed, MD the creator of the Problem-Oriented Medical RecordJune 19, 2017
“Amenable mortality”: how well 195 countries deliver existing cures (or don’t, so you die)June 13, 2017
SPM member & husband try to get care from one of the “best systems in the world.” #Fails.June 9, 2017
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