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| August 28, 2017
by Danny van Leeuwen | Aug 28, 2017 |
Two stories for you: More than 20 years ago my oldest son was training to do development aid work in the bush of Zimbabwe. As part of his team training, he invited me to come give a talk about health with his team. I was a nurse and a paramedic at the time. I did the...
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| July 22, 2017
by Danny van Leeuwen | Jul 22, 2017 |
Recently I connected a patient expert in insurance and provider billing with a patient at the tail end of chemo struggling with huge unexpected bills. I introduced a cancer survivor with web design skills to a patient advocate setting up a new blog. I linked a parent...
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| April 29, 2017
by Danny van Leeuwen | Apr 29, 2017 |
I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in a different state. My mother has diabetes and is depressed. Her care team, besides herself and me, includes medical providers in various health settings, community support...
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| March 23, 2017
by Danny van Leeuwen | Mar 23, 2017 |
I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in...
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| January 4, 2017
by Danny van Leeuwen | Jan 4, 2017 |
Last month, in Communicate What? #CarePlanning, I declared the #CarePlanning hashtag, and told from personal experience the importance of communication in enabling participatory care. I ended with this – my perspective as the person who has the problem and the...
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| December 9, 2016
by Danny van Leeuwen | Dec 9, 2016 |
I want to share a family story and show how it connects to something we’ll all face, where real participatory thinking – and communication – make all the difference. My wife and I built a house together – the whole house, everything except...
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| November 11, 2016
by Danny van Leeuwen | Nov 11, 2016 |
On September 26, 2016, President Obama recognized Health IT Week by saying: We have worked to clarify an individual’s legal right to access their health information and transmit it where they choose—whether it’s to a family member or to their smartphone. These efforts...
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| June 24, 2016
by Danny van Leeuwen | Jun 24, 2016 |
SPM member Danny van Leeuwen is @HealthHats on Twitter. Last week I attended the American Academy of Communication in Healthcare (AACH) Conference in New Haven – 2016 ENRICH Healthcare Communication Course and Research Forum at Yale, entitled, Diverse Voices, Common...
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| October 12, 2013
by Danny van Leeuwen | Oct 12, 2013 |
The relationship between health team members, especially people and their clinicians and caregivers, frequently arises as a topic of this blog. Let me share with you one of the values of Advocates. I work for Advocates as VP of Quality. We express our values...
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| July 22, 2013
by Danny van Leeuwen | Jul 22, 2013 |
You may remember that I’m a Patient Reviewer for PCORI (Patient Centered Outcomes Research). PCORI, a federal initiative, helps people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity,...
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Health Partner or Care Partner?August 28, 2017
Healthcare Experts in Quebec Ask “Who Chooses How Much of What?”August 18, 2017
WikiProject Medicine three years on: “converting clinicians to active digital contributors”August 7, 2017
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