Danny van Leeuwen | SPM Blog

Give Me My DaM Data::The Revolution

by Danny van Leeuwen | Jun 10, 2018 | 0 comments

SPM advocates vociferously for patient ownership of their own data. Success would be revolutionary. But revolutions do not suddenly appear. They result from persistent long-term effort, strategy, and tactics. Key milestones often only appear in hindsight. The...

Cinderblocks 2018

by Danny van Leeuwen | May 27, 2018 | 0 comments

Thanks to support from SPM Travel Fund I attended Regina Holliday’s Cinderblocks Conference in Grantsville, MD. Still pound-for-pound the best conference going. Several days of local and national presentations about health, public health, and advocacy. Small,...

Paying for value. I’m overwhelmed. Please read this.

by Danny van Leeuwen | May 6, 2018 | 0 comments

As you may know from previous posts, I sit as a patient/caregiver stakeholder on a Center for Medicare and Medicaid Services (CMS) technical expert panel (TEP) about Quality Measurement Development: Supporting Efficiency and Innovation in the Process of Developing CMS...

Introducing the Patient-Centered Clinical Decision Support-Learning Network

by Danny van Leeuwen | Mar 28, 2018

Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise...

Health Partner or Care Partner?

by Danny van Leeuwen | Aug 28, 2017 | 1 comment

Two stories for you: More than 20 years ago my oldest son was training to do development aid work in the bush of Zimbabwe. As part of his team training, he invited me to come give a talk about health with his team. I was a nurse and a paramedic at the time. I did the...

Lived Experience + Expertise = Value

by Danny van Leeuwen | Jul 22, 2017 | 0 comments

Recently I connected a patient expert in insurance and provider billing with a patient at the tail end of chemo struggling with huge unexpected bills. I introduced a cancer survivor with web design skills to a patient advocate setting up a new blog. I linked a parent...

Precision Prism

by Danny van Leeuwen | Apr 29, 2017 | 6 comments

I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in a different state. My mother has diabetes and is depressed. Her care team, besides herself and me, includes medical providers in various health settings, community support...

Service Agreements Among Friends and Colleagues

by Danny van Leeuwen | Mar 23, 2017 | 2 comments

I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in...

Person-Centered #CarePlanning – What data?

by Danny van Leeuwen | Jan 4, 2017 | 3 comments

Last month, in Communicate What? #CarePlanning, I declared the #CarePlanning hashtag, and told from personal experience the importance of communication in enabling participatory care. I ended with this – my perspective as the person who has the problem and the...

Communicate What? #CarePlanning

by Danny van Leeuwen | Dec 9, 2016 | 2 comments

I want to share a family story and show how it connects to something we’ll all face, where real participatory thinking – and communication – make all the difference. My wife and I built a house together – the whole house, everything except...

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