2023 • 2022 • 2021 • 2020 • 2019 • 2018 • 2017 • 2016 • 2015 • 2014 • 2013 • 2012 • 2011 • 2010 • 2009 • 2008 • 2007 • 2006

2023 (24)

• 26/09 - ChatGPT summarized my OpenNotes. Wow!
• 25/09 - A Surprising Collaboration Gives Trauma Patients a Second Chance
• 28/08 - Moments that Matter: in-between routine care to emergency medicine
• 17/08 - What My Second Lease on Life Taught Me about the Power of Human Connection
• 08/08 - Team Building In The Wake of the COVID-19 Pandemic
• 04/08 - BMJ publishes obituary of “Mighty Casey” Quinlan: Outspoken patient activist
• 12/07 - Building for Success: How Good Clinicians Can Empower Patients
• 12/06 - Update: How empathy, education, communication and the PAST Model transformed Sickle Cell patient care
• 06/06 - Through the Maze: A New Model for Equitable Health Data Exchange
• 24/05 - How Trust Fuels Equitable Health Outcomes
• 17/05 - The Power of the Prescription Pad
• 09/05 - A Reminder of How To Care Through Self-Reflection
• 02/05 - Glimmers of Hope: Real Progress In Participatory Medicine
• 20/04 - Participatory Medicine: the Final Mile of Health Care System Change
• 06/04 - AI Gives SPM a New Opportunity to Lead
• 28/03 - In hospice, Mighty Casey receives SPM’s “Doc Tom” Award
• 24/03 - Full scholarship or free reg for DIA Global Boston: apply by March 31
• 16/03 - Mighty Casey is entering hospice
• 14/03 - How to Increase Applications from Underrepresented Scholars for Funding Mechanisms
• 06/03 - When a Genetic Counselor Brought Information – and Comfort
• 14/02 - Why Dying is Not Giving Up
• 01/02 - Patients and Industry: Starting Our New Life Together in 2023
• 11/01 - How All of Us in Healthcare Can Close the Empathy Gap
• 04/01 - Expert Advisory Boards: A New Model for Co-Exploration

2022 (31)

• 14/12 - Health Literacy Requires Talking with People – Not Patients
• 06/12 - “It Can Save Your Life”: How You Can Play an Active Role in Your Cancer Care – A Book Excerpt
• 30/11 - Patient Design: The Importance of Including Patients in Designing Health Care
• 15/11 - A Citizen’s Response Corps for Digital Health
• 10/10 - SPM and health equity: is our Manifesto equitable? Join us Oct. 20
• 06/10 - Storytelling: Where Compassion is Born
• 27/09 - Building Us Up, Not Tearing Us Down
• 19/09 - Active Surveillance 101: A New Resource Driven by Patients and Crafted With Physicians
• 12/09 - Dr. Danny Sands: Participatory Medicine Can Cure Many Ills
• 07/09 - Patients and the Diagnostic Journey: Finding Specialists
• 23/08 - The Keys to Good Relationships With Your Care Teams
• 17/08 - Participatory Medicine is Where You Find It
• 12/07 - Turning Pain into Power through Advocacy
• 17/06 - Urgent – comment TODAY: stop this CMS rule change that suppresses hospital safety data
• 13/06 - Collaborative Notes, Engaged Partners, Fewer Errors
• 05/05 - Creating Your Own Self-Advocacy Style
• 27/04 - Tell Me Your Story: How Narrative Medicine Fosters Trust
• 20/04 - Simple Measures to Put Caring Back in Health Care
• 18/04 - Patient Advocates on National Boards: Mind the Sausage
• 13/04 - Improving Cancer Care for BIPOC Women is Everyone’s Cause
• 06/04 - The Curse of Knowledge – When Expertise Creates Blindspots in Patient Communication
• 16/03 - Trusting Yourself, Trusting Your Care Team: Conscious Partnerships and the Gift of Life
• 07/03 - How Reception Areas can Open Doors to Better Health
• 01/03 - Playing the Waiting Game While Living with a Rare Disease
• 23/02 - Family Caregivers and Care Partners: An Essential, but Underserved Part of Participatory Medicine
• 03/02 - Getting “unstuck” after a life-changing medical diagnosis
• 27/01 - Let’s Save the Date and Make Patient Engagement Official in 2022
• 14/01 - Zoom Workshop: ‘Learning to FIRST Observe & Listen Without Evaluation’ with Rob Kanzer
• 11/01 - Building a Framework for Authentic Patient Centricity
• 05/01 - Let’s Work Together to Help Reduce Barriers to Clinical Trials
• 03/01 - Coaching for Peak Performance and Best Health

2021 (36)

• 20/12 - Healthcare as a Meeting of Two Experts
• 15/12 - Linnea Olson: An Appreciation of a Giant
• 07/12 - How Empathy, Education, Communication and the PAST Model transformed Sickle Cell Patient Care
• 22/11 - Understanding the Impact of Medication Storage Locations on Adherence
• 15/11 - Video Series: Doctor to Doctor – The Future of Tele-Health
• 08/11 - The Power of Storytelling
• 01/11 - Reflecting on the Importance of Ethics in Clinical Care and Research
• 25/10 - The Imperative to Develop the Participatory Patient
• 18/10 - Cost, In Any Other Language
• 11/10 - An Easy Way we can Help Encourage Healthcare Conferences to Include Patients & Advocates
• 04/10 - Social Work and The SPM Manifesto: It Just Makes Sense
• 04/10 - Innovation, Local Persistence
• 27/09 - Video Series: Doctor to Doctor – How to be an Engaged Patient
• 21/09 - Trust and Respect between Doctor and Patient are Critical to the Healing Process
• 13/09 - Following in the Footsteps of Others to become an Empowered Patient Advocate
• 07/09 - There’s More to Participatory Medicine than Doctors and Patients
• 30/08 - Video Series: Doctor to Doctor – Meeting Patients Where They Are
• 23/08 - The Manifesto is a Helpful Framework for Finding Healthcare in the LGBTQ+ Community
• 16/08 - An Introduction to our new Executive Director, Randy Houk
• 10/08 - It’s Time to Acknowledge the Invisible Caregivers Among Us
• 02/08 - Video Series: Doctor to Doctor – What is Participatory Medicine?
• 29/07 - Pay Attention to the Symptoms, but Don’t Ignore the Patient
• 22/07 - Video Series: Doctor to Doctor
• 20/07 - Seeing Red about Pink Eye
• 14/07 - Boost Health IT’s Impact: Think With a Participatory Lens
• 03/07 - Participation starts with understanding goals, values and preferences
• 02/07 - Join SPM in August at the HIMSS21 Conference
• 28/06 - From the Heart: My Patient Engagement Journey
• 16/06 - Manifesto Made Real: Sharing My Story Helps Others Share Theirs
• 14/05 - Health Information Technology Must Enhance Collaboration and Patient Care
• 16/03 - Moving Forward to Make SPM Stronger
• 08/03 - Shake up the System: Sign & Share the Participatory Medicine Manifesto!
• 01/03 - Trust is Complicated: Person-First Safe Living in a Pandemic Part 3
• 26/01 - We’re Looking for an Executive Director to Join the Society
• 12/01 - Power of People. Pause and Trust. Lynne Becker
• 10/01 - Marketing & Communications Rockstars Wanted!

2020 (24)

• 21/12 - Person-First Safe Living in a Pandemic: Part 2: Finding Guidance
• 20/12 - Leadership Transition, Part 2: Meet Mary Hennings
• 17/12 - Leadership Transition, Part 1
• 10/12 - OpenNotes site upgrades its literature search, to help authors and educators find relevant papers
• 30/11 - Engage! Community Organizing, Coalitions & Infrastructure
• 27/11 - Fostering Solidarity on the Front Lines Through Stories
• 16/11 - Person-First Safe Living in a Pandemic #1
• 09/11 - Everyone-Included Research
• 10/07 - Checking the Compass of Participatory Medicine
• 10/06 - The Health Story Collaborative & the Power of Healing Narratives
• 06/06 - Haiku as a path to resilience in the COVID-19 era: #HaikuChallenge20
• 29/05 - Courage and resilience help face the uncertainty of coronavirus
• 19/05 - SPM & Health Story Collaborative Join Forces: Please Share Your Stories During the Pandemic
• 12/05 - NEJM: OpenNotes/”OurNotes” releases its innovative pre-visit questionnaire for COVID-19 televisits
• 07/05 - A nurse writes from the COVID-19 front lines: “the biggest barrier to care I’ve ever faced”
• 09/04 - Health informatics and why participatory healthcare is key to its future
• 19/03 - Web introduction to a crowd-sourcing platform for COVID-19 “information therapy”
• 17/03 - COVID-19 Information Resources: SPM, Peter Elias MD & Others
• 09/03 - Long-awaited US rules on data access and information blocking are out
• 09/03 - Three minute patient video nails the suffering from information blocking
• 28/02 - “Help me see the dragon I’m slaying”: pathologists meeting directly with patients
• 28/01 - Epic, Using Scare Tactics & Paternalism, Opposes ONC Rule
• 26/01 - Patient/caregiver letter supporting proposed HHS rules on improving flow of our data
• 11/01 - Why I Joined SPM: Brad Power

2019 (26)

• 15/12 - Apparently Only Doctors Can Help on Twitter?
• 24/11 - “My Data and Me”: Brenda Denzler’s amazing story at #FHIRDevDays
• 23/11 - A Romanticised History of SPM
• 20/11 - Jane Sarasohn-Kahn: Social Determinants of Health – My Early Childhood Education and Recent Learnings, Shared at the HealthXL Global Gathering
• 19/11 - “Training medical students how to communicate with E-patients”
• 15/11 - Conservators
• 01/11 - FHIR #DevDays announces Patient Innovator Track finalists: two companies, two patients!
• 31/10 - Congratulations to the 2019 Doc Tom Award Winners: Susannah Fox & Ileana Balcu
• 14/10 - #S4PM2019 conference livestream: how to use Facebook Live
• 04/10 - Patient-Generated Health Data: Taking the Lottery Out of Love
• 09/09 - Call to action! Second annual Doc Tom award nominations now being accepted!
• 19/07 - A Family’s Guide to the ICU, Part 4: The Human Aspect of Care
• 18/07 - A Family’s Guide to the ICU, Part 3: Being An Advocate
• 17/07 - A Family’s Guide to the ICU, Part 2: Understanding the Why and the How of the ICU
• 16/07 - A Family’s Guide to the ICU, Part 1: Your Strategy for Navigating the Unexpected
• 15/07 - A Family’s Guide to the ICU: Series Introduction
• 01/06 - #HCLDR chat on the 100th anniversary of women’s suffrage: 8:30 ET Tuesday
• 02/05 - Fast-Paced Compelling Topics at Atlantic Pulse: The Atlantic Summit on Health Care, Boston
• 11/04 - Manage your health data, or trust blindly? Setting the stage for a data disaster, part 2
• 10/04 - It’s the 10th anniversary of trying to get our health data: “I’m putting my data in Google and HealthVault”
• 05/04 - A million views in 44 days! ClearHealthCosts price transparency TED Talk goes viral
• 27/03 - The process of shared decision-making: What it is, when it’s not, and what it should be
• 12/03 - Got Candles? Happy 30th Birthday to the World Wide Web!
• 21/02 - SPM member Jeanne Pinder on TED home page
• 31/01 - Sara Riggare is Swede of the Year in medicine
• 07/01 - So, about this “big data” thing …

2018 (61)

• 26/12 - Gail Phillips: My journey to the Society for Participatory Medicine
• 05/12 - Meetin’ Up and Building SPM Community in Chicago
• 04/12 - SPM’s team leadership search for 2019
• 16/11 - Pay people for their data – yes, or no?
• 11/11 - CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?
• 09/11 - Getting Your Doctor to Really See You
• 02/11 - For Diabetes Month, be conscious that language matters.
• 29/10 - Doc Tom Awardees Announced at SPM2018 Conference
• 20/10 - Whither Cochrane, for e-patients and everyone else?
• 15/10 - At #SPM2018, Ivan Handler (with @MightyCasey) Wants to Put the Care Back in Healthcare
• 13/10 - The who, what, when, where, and why of Cochrane
• 12/10 - #SPM2018 speaker preview – Brennen Hodge: “Health is the New Wealth”
• 10/10 - #SPM2018 speaker preview – Jason Bobe: “The future of medicine begins with the patient”
• 09/10 - Dr. Patti Brennan – #SPM2018 speaker preview “Supporting the Care Between the Care: The Role of the National Library of Medicine”
• 07/10 - Putting Patients at the Center of Pain Management Decisions
• 06/10 - #CochraneForAll + #BeyondTheRoom = #PatientsIncluded on blast
• 05/10 - #SPM2018 speakers @_AngelaKennedy and daughter Grace: “Personal Health Information is Saving Grace”
• 03/10 - #PatientsIncluded statement for SPM’s Second Annual Conference: #SPM2018
• 28/09 - #SPM2018 Hot Topic: Can a Market for Health Data also Protect Patients’ Rights to Their Data?
• 27/09 - A “METRIC” of Progress for Participatory Medicine. Join us at #SPM2018
• 26/09 - #SPM2018 speaker Kristina Sheridan: Leveraging the data of patients’ stories
• 25/09 - #SPM2018 speaker @RasuShrestha: “Let’s move from paternalism to where the patient is a true participant”
• 24/09 - The next evolutionary step for SPM: a manifesto
• 17/09 - #SPM2018 speaker @MightyCasey gets piped in at Cochrane in Edinburgh
• 17/09 - @PsychCentral Show’s Gabe Howard to co-host live podcast episode at #SPM2018
• 14/09 - Burt Rosen on the #SPM2018 conference: “Fix this f$%(*$&’ing mess we call health care!”
• 10/09 - #SPM2018 speaker Doug Lindsay: Driven by experience to advocate passionately for participatory medicine
• 07/09 - Lead article in influential journal proposes weaving participatory medicine into clinician education
• 27/08 - THCB picks up post by Josh Rubin – “We The Patients” is a winner!
• 07/08 - What Healthcare Can Learn from Mr. Rogers
• 05/08 - Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”
• 03/08 - Announcing SPM’s new Doc Tom Awards. Nominations are open!
• 26/07 - Study: Engaging patients in co-design works. Join us at our #SPM2018 conference Oct 17!
• 22/07 - Patient Ownership of Data?
• 15/07 - Facebook patient privacy issue – important #BCSM Twitter chat TONIGHT, July 16 9pm ET
• 04/07 -
• 27/06 - Medicare Holds Out Promise of Health Record Access Revolution
• 27/06 - SPM’s comments on important proposed CMS interoperability rules
• 19/06 - Request: Harnessing the patient voice from the ward to the boardroom
• 13/06 - SPM on TV in Hartford after last week’s “Better Health” conference
• 10/06 - Give Me My DaM Data::The Revolution
• 05/06 - Skeptics ask why patients would even WANT their medical images. We asked on Facebook.
• 27/05 - Cinderblocks 2018
• 23/05 - You Don’t Have to be Alone to be Lonely
• 14/05 - BMJ seeks new patient essays for “What your patient is thinking” series
• 14/05 - SPM members Lorraine & Gene Sacco’s story nominated for Emmy
• 06/05 - Paying for value. I’m overwhelmed. Please read this.
• 27/04 - Join the VA’s “Open API Pledge” session at Health Datapalooza
• 18/04 - Join SPM’s workshop May 16 at “What’s The Fix?” at Dell Medical School. Free registration!
• 13/04 - Support @HealthHats Danny van Leeuwen’s nomination for PCORI Board of Governors
• 12/04 - Psych Central podcast: “We often feel very isolated, but we have a lot more in common than we realize.”
• 02/04 - Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!
• 01/04 - TED joins the cry: Why isn’t publicly-funded research publicly available??
• 28/03 - Introducing the Patient-Centered Clinical Decision Support-Learning Network
• 20/03 - How the Latest on Facebook, Cambridge Analytica and the “Deep State” Could Undermine Patient Data Sharing and AI
• 06/03 - Join SPM’s “Patient Perspectives” interop tour at #HIMSS18 (11 am Weds)
• 14/02 - The Heart Attack That Wasn’t
• 25/01 - Apple’s new health data download feature: nice start, but little use for sick people
• 17/01 - “Transforming the Culture of Care” session 2: Patient Experience panel
• 16/01 - Mark Sullivan: Who gets to define the clinical problem?
• 04/01 - The Power of Words in Healthcare: A Patient-Friendly Lexicon. Top 10 List #WordsDoMatter Project

2017 (50)

• 29/12 - @HealthHats: Paying patient experts
• 20/12 - Study: Facebook support group increases patient engagement, satisfaction. Who knew?? (Patients.)
• 06/12 - Breaking News! JMIR Publications is the new publisher of Journal of Participatory Medicine
• 29/11 - “Transforming the Culture of Care” Keynote 1: OpenNotes
• 27/11 - Patient Engagement: More Bark than Bite? Let’s Get to Work!
• 16/11 - “Have you seen the stuff Jarche writes?”
• 15/11 - Participatory Medicine in Pinstripes: What Baseball Can Teach Doctors
• 24/10 - Care Coordination, The Holy Grail of Good Medicine
• 24/10 - How to participate in the 2017 Patients’ View Impact Awards #PVImpact17
• 27/09 - My Mother’s Scrap of Paper
• 22/09 - Sarah Krüg’s TedX: “The Patient Doctor Tango”
• 13/09 - Learning More from ‘Less is More’ Medicine
• 01/09 - How many tries does it take to flip a physician?
• 28/08 - Health Partner or Care Partner?
• 18/08 - Healthcare Experts in Quebec Ask “Who Chooses How Much of What?”
• 07/08 - WikiProject Medicine three years on: “converting clinicians to active digital contributors”
• 03/08 - WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)
• 22/07 - Lived Experience + Expertise = Value
• 12/07 - #BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ET
• 07/07 - Millenson in BMJ: When “patient centred” is no longer enough: the challenge of collaborative health
• 05/07 - Webinar today, 11am ET: Increasing patient involvement in assessing new treatments
• 21/06 - What My 90-Year-Old Mom Taught Me About the Future of AI In Health Care (WBUR)
• 19/06 - RIP: Larry Weed, MD the creator of the Problem-Oriented Medical Record
• 13/06 - “Amenable mortality”: how well 195 countries deliver existing cures (or don’t, so you die)
• 09/06 - SPM member & husband try to get care from one of the “best systems in the world.” #Fails.
• 08/06 - Eric Topol: Landmark Digital Medicine Trial: Patient-Generated Data Improve Cancer Survival
• 07/06 - From the UK: “Habits of an Improver”
• 02/06 - Closing the Gaps in South African Health
• 16/05 - Allie Davanzo: The Power of Art in Medicine
• 10/05 - How Data Registries Help with Full Information at the Point of Care
• 02/05 - e-Patients Drive the Conversation at CCCC’s 9th Palliative Care Summit
• 29/04 - Precision Prism
• 26/04 - Join SPM Newsletter Team as Editor and Bring Real News to Members!
• 24/04 - Our Journal of Participatory Medicine: an update, current metrics, how you can help
• 07/04 - Shared Decision Making in Imaging: How Should Patients and Physicians Discuss the Costs of Care?
• 07/04 - “Words that annoy, phrases that grate”: BMJ Patient Panel post & tweetchat
• 29/03 - Prepare for NEJM’s major web event on sharing research data next week
• 27/03 - Research & drug development news: European Public Health Alliance joins Europe-wide challenge to patent for Hepatitis C treatment
• 23/03 - Service Agreements Among Friends and Colleagues
• 20/03 - e-Patient perspective on evolocumab (that new cholesterol study): beyond the headlines
• 03/03 - “Inviting the patient’s perspective” paper: today’s needs, 25 years ago *this week!*
• 02/03 - Quiz: When was “Enriching the relationship by inviting the patient perspective” published?
• 20/02 - Dell Medical School and the Future of Care
• 11/02 - Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care
• 09/02 - Diabetes patient leaders: apply by 2/15 for fully funded #MasterLab Leadership Institute
• 25/01 - Precision Medicine For Me (a new open collaboration) launches at #PMWC17
• 11/01 - Apply by 1/23: PCORI grant to fund e-patients at palliative care summit!
• 10/01 - Angela Lundberg: Health Insurance & RA: Dangerously Uncovered
• 09/01 - History lesson! “LINC with Tomorrow”: Warner Slack on “educational TV,” 1967
• 04/01 - Person-Centered #CarePlanning – What data?

2016 (72)

• 30/12 - The S’mores Circle
• 09/12 - Communicate What? #CarePlanning
• 23/11 - Thanksgiving Letter to my Doctor
• 21/11 - A first: Participatory Medicine thinking in the Harvard Business Review
• 11/11 - OpenID HEART: Sharing our data gives patients power
• 11/11 - NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?
• 07/11 - Participatory Medicine Learning Exchange: How Are We Moving the Needle?
• 02/11 - Why We Are Losing the Battle Against Infectious Disease
• 21/10 - Imagine if You Could Cut Through the Clutter With a Health GPS
• 11/10 - We’re partnering to support The Big Heist!
• 29/09 - From Regina Holliday’s blog: on Patient Advocacy
• 22/09 - Last call: Vote for patient activists (and more) at Health 2.0 next week
• 29/08 - e-Patient alert: “Are sites like WebMD healthful?” Dive in on NYTimes debate
• 23/08 - Sips with the Society: SPM Receptions at Health 2.0 and Connected Health Summit
• 09/08 - OpenNotes hits TEN MILLION patient level
• 09/08 - How can we cope with uncertainty?
• 08/08 - e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal
• 01/08 - Cleo Kordomenos: How My Opinion on Online Health Communities Changed
• 31/07 - “Unmarried teens would jump off bridges”: NY Times on suppression of home tests
• 30/07 - Teaching Health Communication with Participatory Medicine Highlights
• 29/07 - New data from CMS insurance claims will empower consumer choice
• 21/07 - Health 2.0: first conference to offer Patient Activist awards. Vote!
• 07/07 - Peter Elias: a physician experiences a portal from the family side, and… #fail
• 24/06 - “Sister” Organization! AACH: American Academy of Communication in Healthcare
• 23/06 - In our journal: exploration of gardening to foster engagement in stroke patients
• 22/06 - “Google to offer better symptom search”: Relief at last, or “Here we go again”?
• 17/06 - “It’s not about the car – it’s about the drive.” #OpenAPS standing ovation for Mark Wilson.
• 15/06 - OpenNotes on stage at live Washington Post event
• 14/06 - Has your doctor ever talked to you like this Oliver Wendell Holmes quote?
• 07/06 - Eric Dishman’s transformational speech on his last day at Intel: “Knowledge is survival”
• 03/06 - Just Say “No” to Medicare’s MACRA Tokenism
• 01/06 - Fighting Cybercrime: One Hacker at a Time
• 24/05 - OpenNotes study in BMJ Quality & Safety finds patient-doctor “relational benefits”
• 23/05 - #OpenAPS is bearing big fruit, part 2: Quantified Self presentation in San Diego
• 20/05 - #OpenAPS is bearing big fruit, part 1: Dana Lewis’s speech at O’Reilly’s OSCON
• 18/05 - Jody Schoger, co-founder of #BCSM breast cancer community, has passed
• 16/05 - Patient solves difficult diagnosis using … an online image sharing service??
• 05/05 - Cancer: What’s Happening in the Lab that will Change Diagnosis and Treatment?
• 04/05 - CCCC conference announces inaugural class of palliative care e-patients
• 30/04 - You Won’t Believe What Medicare Just Did on Patient Engagement!
• 21/04 - White Paper Introduction: “Tech is changing how we think about ourselves” #DocTom10
• 21/04 - “Extremis”: new Netflix documentary on end of life with Dr. Jessica Zitter
• 20/04 - #DocTom10: Foreword by Pew Research – astounding statistics from Y2K
• 17/04 - Susannah Fox: Tom’s legacy #DocTom10
• 15/04 - Warmly Remembering Tom Ferguson & His Legacy #DocTom10
• 14/04 - Remembering Tom’s death 10 years ago today: #DocTom10, post 4
• 13/04 - #DocTom10, post 3: The preface and the paradigm
• 12/04 - #DocTom10, post 2: Please download the White Paper / Libro Blanco
• 11/04 - Honoring the memory of “Doc Tom” Ferguson, ten years after his death
• 04/04 - Sara Riggare: “The new kind of patients challenge healthcare”
• 30/03 - National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient
• 29/03 - How I became an e-patient: through practice, with coaching (using Lean on the patient side)
• 23/03 - Curiosity Got These Cats Their Health Data – from GetMyHealthData
• 22/03 - A hackathon for Open Access?? Check it out!
• 15/03 - Don Berwick wants healthcare to take it to the limit, with Patients as Peers
• 08/03 - Pharma TV ads: Film at 11
• 01/03 - SPM survey results at HIMSS: “Patients want to be involved with their health information”
• 27/02 - The Precision Medicine Initiative, Patients’ Health Data Rights and You
• 26/02 - Why I joined SPM – and why maybe you should!
• 25/02 - Meet Donna Cryer, new co-chair of SPM
• 24/02 - Join the #ScopeScope, March 1, to help Fight Colorectal Cancer
• 23/02 - Participatory Medicine: An Administrator’s Point of View
• 19/02 - Scholarships available to e-patients for palliative care summit
• 08/02 - New England SPM members: free admission to 3/29 local HIMSS meeting
• 02/02 - Evidence! New S4PM Survey Shows People Want to Collaborate with Their Doctors and Co-Produce Their Clinical Data
• 25/01 - Proposal for a TRULY patient-centered medical record
• 21/01 - John Q. Sherman Award in Patient Engagement: Nominations Open
• 21/01 - NEJM opens access – discuss! Time for a Patient-Driven Health Information Economy?
• 18/01 - Astounding #RareDisease e-patient story: Jill Viles, via @SusannahFox tweets
• 12/01 - 2016: Opportunities and Challenges in Health Care
• 12/01 - Individuals’ Rights to Their Health Information: The Federales Awaken
• 01/01 - Regina Holliday and the Walking Gallery are in AMA Journal of Ethics

2015 (87)

• 23/12 - Alternative Choices for Healthcare: What are the Options?
• 18/12 - When no other feedback channels exist, the Patient Advocate becomes a single point of failure
• 17/12 - 50 million more patients to get OpenNotes! Huge win for empowered partnership!
• 14/12 - KevinMD picks up SPM’s “The truth about that mug” post. Engage.
• 13/12 - “Patients organise and train doctors to provide better care”: patients writing in the BMJ
• 10/12 - NPR Shots: Small Violations Of Medical Privacy Can Hurt Patients And Corrode Trust
• 09/12 - Why the Google mug leaves such a bitter taste
• 05/12 - “Where can I get that mug???”
• 02/12 - New in our journal: Evaluation of a Lay Health Educator Model with Low-Income Latinas
• 02/12 - Forbes article featuring Carol Gunn: One Doctor’s Quest To End The Plague Of Screwed-Up Medical Diagnoses
• 01/12 - Read & share! Washington Post *nails it* about patient-clinician partnership
• 30/11 - The truth about that “your Googling and my medical degree” mug
• 28/11 - Dr. Danny Sands explains what participatory medicine is and isn’t (great 5 minute video)
• 27/11 - BMJ seeks more patients to be reviewers on articles about their conditions
• 25/11 - Global Forum on Health Promotion Focuses on Health Equity and e-Health
• 17/11 - New paper: “The Road to Making Patient-Centered Care Real: Policy Vehicles and Potholes”
• 10/11 - Crohnology Blog: Am I disabled?
• 04/11 - Misdiagnosis: A Chronic Condition Looking for a Cure
• 04/11 - The e-Patient “e”s reach Japan!
• 02/11 - Monthly introduction to e-Patients.net
• 01/11 - EHR? What is it good for?
• 28/10 - Key legal victory moves medical device patients one small step closer to full access to their data
• 26/10 - How can we achieve shared work, connection, and communication?
• 25/10 - Sure to be a complex controversy: “Concurrent surgery” (Boston Globe Spotlight series)
• 22/10 - “When someone else speaks for you, you lose”: patient empowerment as a civil rights movement
• 20/10 - VIDEO: How Patients are Helping Change Medical Journals: BMJ’s Tessa Richards at MedX 2015
• 07/10 - Perfect @ADrane graphic on the misalignment of industry’s & patients’ perspective
• 02/10 - Watch: Webcast – patient engagement from the patient’s point of view
• 22/09 - BREAKING: SPM board member Peggy Zuckerman, on NBC Nightly News tonight (about diagnostic errors)
• 15/09 - Guest Post by Mary Beth Schoening: a Definition of the Engaged Patient
• 09/09 - We’re all in this together
• 08/09 - Sep 26 – Patient Summit on Diagnosis in Alexandria, VA
• 06/09 - The Medical Humanity of Oliver Sacks: In His Own Words
• 01/09 - Monthly introduction to e-Patients.net
• 20/08 - Crohnology blog: “Doctor Thyself: How Patients Self-Care”
• 17/08 - “We demand a medical record SPIGOT!”
• 03/08 - Monthly introduction to e-Patients.net
• 30/07 - Happy Birthday Medicare, Medicaid and Social Security
• 22/07 - Partnering with Patients – From Theory to Practice: #HealthcareTransformers
• 10/07 - A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article
• 06/07 - Monthly introduction to e-Patients.net
• 03/07 - Conference Organizers to Affected Patients: “Go Fund Yourself”!
• 01/07 - No Rhyme or Reason
• 30/06 - Healthcare Econ 101 from SPM’s Nick Dawson
• 27/06 - On Making Patient Reviews of Physicians More Useful
• 26/06 - SPM applauds King v Burwell – “making healthcare accessible & participatory for all”
• 20/06 - Tune in for Patient Reviews of Physicians: The Wisdom of the Crowd?
• 19/06 - The Role of Dignity in Health Care
• 17/06 - Guest Post by Matthew Katz, MD: E-Patients Deserve E-Doctors
• 16/06 - “Inside Medicine at Weill Cornell: Meeting in the Middle”
• 15/06 - “Taxpayers need better access”: Last day to comment to CMS on #NoMUwithoutMe
• 15/06 - “The perfect thing a doctor can tell a patient with chronic illness”
• 10/06 - Guest post by Annette McKinnon: Power Equality: Not Even on the Radar
• 03/06 - Guest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me Off
• 01/06 - New Participatory Medicine Resources for Providers
• 28/05 - BREAKING: Susannah Fox is HHS’s new Chief Technology Officer
• 20/05 - Add Your Voice: Meaningful Use Regulations Mustn’t Leave Patient Engagement in the Dust
• 19/05 - Announcement: SPM to advise ACP’s new Center for Patient Partnership in Healthcare
• 12/05 - Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’ (KQED)
• 11/05 - Guest post by Annette McKinnon: Power Equality: Why Is My Silo Two Miles Away?
• 08/05 - Patient POV: Seasons Change
• 21/04 - Good Medicine: Choosing What to Do and What Not to Do.
• 18/04 - #NoMUwithoutME: Primary School Edition
• 18/04 - NY Times editorial on forces who “knowingly interfere” with health info exchange
• 16/04 - “No MU without ME”: join the campaign to fight health data hiding
• 15/04 - PHI Data Breaches May be Increasing, But It’s Not Impacting Our Sharing
• 13/04 - Proposed rule change will *reverse* data sharing requirements; Regina & Farzad call for “National Day of Action” to fight back
• 10/04 - “Lighting Goes to Ground”: Peter Elias responds to Paul Levy in JoPM
• 08/04 - SPM survey in Times Square: “Americans believe their medical data should be shared with their providers”
• 02/04 - Regina Holliday’s whooping cough story in PharmaTimes: “Treat us as partners”
• 27/03 - Accountable Care: Transparency of Fees Is Mandatory
• 24/03 - Leveraging Technology to Improve Health
• 05/03 - Partnering with Patients: From Theory to Practice
• 02/03 - Health Affairs: patient activation impact on cost + outcome
• 24/02 - Mythbusting, “demanding patient” edition
• 17/02 - NLM Director Donald Lindberg is retiring. Speak up: what’s next for the Library?
• 12/02 - OpenNotes in the BMJ: the message goes global, adoption is international
• 11/02 - Big BMJ supplement on Patient Centred Care – with many SPM and MedX voices
• 09/02 - on the complexity of problems and ePatients as innovators
• 05/02 - e-Patient efforts on “precision medicine” #LCSM edition
• 02/02 - Join @HurtBlogger’s 48-hour “live tweet my chronic life”
• 31/01 - A landmark day in the movement: Patients in the Front Row
• 27/01 - The movement gets real: one of Doc Tom’s sightings gets $28 million with Iora Health
• 23/01 - From OpenNotes to OurNotes: New project heads toward *real* participatory medicine
• 18/01 - Opening the ICU doors to family: report from Virginia Mason
• 15/01 - CHCF’s iHealthBeat podcast on online communities
• 14/01 - Patient Generated Health Data webinar featuring SPM members

2014 (94)

• 29/12 - For the #MedX “year of doing”: “Don’t be a nail”
• 22/12 - Great Marie Ennis-O’Connor infographic on live-tweeting an event
• 22/12 - Hot Trends in Health Care for 2015
• 16/12 - Consumer Reports: “Respectful” treatment key to patient safety?
• 15/12 - What happens when patients can accurately make their own diagnosis?
• 12/12 - Engaging Patients in Safety: Naughty or Nice?
• 11/12 - Sequencing Your Genome: Opportunities and Challenges
• 05/12 - A Case for Autonomy & The End of Participatory Medicine
• 03/12 - Evidence: “Patients value direct, independent access to their medical exams.” Who knew??
• 02/12 - “Activate your super-patient powers”: Public event (free!) at Brown next Monday
• 17/11 - #epatient – Are Millennials Born That Way?
• 13/11 - Digital Technology in Health and Participatory Medicine Recognized in UN Forum
• 07/11 - Count the e-patient takeaways: “What I learned going down an emergency slide”
• 04/11 - Inaugural Emerging Leader Award from CCFA- DC Chapter for Carly Medosch
• 30/10 - WHO in Geneva – SPM in the house!
• 27/10 - What has happened to the Personal Health Record?
• 22/10 - Mayo chief residents name SPM patient as Visiting Professor in Internal Medicine
• 14/10 - WSJ: “Researchers are asking patients to help design clinical trials.”
• 06/10 - Remembrance in New York: “Jessie Gruman, the Force”
• 16/09 - New on JoPM: “e-Patients Never Retire”
• 16/09 - The diverse nature of patient communities: a prostate cancer patient’s experience
• 11/09 - Jessie Gruman: Poetry in Motion
• 10/09 - (Video) Larry Weed, father of the Problem Oriented Medical Record – Grand Rounds, 1971
• 10/09 - Health Affairs – Narrative Matters: Suzanne Mintz’s article about caring for caregivers
• 07/09 - Zack Berger from #MedX on uncertainty and decision aids
• 05/09 - Request: true stories of where patient engagement in the chart made a difference
• 04/09 - To Be, or Not to Be, a B Corp
• 18/08 - Jessie Gruman remembrances set for NY, DC
• 09/08 - Longitudinal study: engaged (activated) patients do better and cost *less.*
• 08/08 - American Heart Association journal announces new Patient Viewpoints
• 01/08 - OpenNotes in the news: Now 3 million patients – and mental health, too
• 29/07 - An important moment in our movement (JoPM article): The evolving language of patient engagement
• 28/07 - Researcher seeks patient input: what should a stent decision aid include?
• 27/07 - Let’s crowdsource what a “good” medical record tool for patients is (and list some products)
• 26/07 - Recently in JoPM: Jessie Gruman tribute, book review on asthma
• 23/07 - Communicating the experience of illness in the digital age
• 18/07 - Susannah Fox is leaving Pew Research
• 16/07 - Guest post by Zack Berger, MD, PhD: The pledge of the patient-centered physician
• 15/07 - Jessie Christine Gruman, 1953-2014
• 02/07 - Keeping Patients in the Dark: SIIPC14
• 23/06 - The Doctor as Patient
• 17/06 - Of half gods and mortals: Aesculapian authority
• 16/06 - A Farewell to Richard Rockefeller, e-Health Visionary
• 13/06 - From BMJ: The BMJ’s own patient journey – Seeks to promote patient partnership by walking the talk
• 10/06 - Wall Street Journal on patient access: “Health-Care Providers Want Patients to Read Medical Records, Spot Errors”
• 10/06 - HIMSS blog: Thought Leadership – The Patient Perspective
• 09/06 - Wall Street Journal article on getting patients involved in their healthcare
• 04/06 - Getting your health data: BlueButton/ShareCare tweetchat Thursday
• 27/05 - SF Bay Area chapter of SPM starting. Join!
• 21/05 - Patients Invited! Health Informatics Conference seeks Patient Participation
• 18/05 - New in JoPM: “I No Longer Have to Go to See the Doctor:” How the Patient Portal is Changing Medical Practice
• 15/05 - Uri Goren TedxHIT video: Patients are Not Empty Carriages
• 13/05 - Via @Cancer101: 10 things every patient needs to know
• 06/05 - JAMA: Reducing the Trauma of Hospitalization
• 04/05 - Times science reporter asks: “Ever hit a paywall?”
• 04/05 - Aging & e-Patients: Challenges and Opportunities in Geriatrics
• 01/05 - OpenNotes & Transparency: Ongoing conversation
• 01/05 - The Iceberg Waiting for Your Health Care Data
• 14/04 - New ACP center will foster physician-patient collaboration : Internal Medicine News
• 08/04 - Health Information Exchange: We’re not there yet
• 03/04 - It’s time to C-ME (see me): Consumer Mediated Exchange
• 02/04 - From BMJ: The interdependent roles of patients, families and professionals in cystic fibrosis
• 27/03 - New paradigm in data sharing and analysis?
• 27/03 - SPM loves Flip The Clinic – we’re an “ally”
• 26/03 - An angry veterinarian says “I don’t understand…” (Reprise five years later)
• 26/03 - Erin Moore: “Your message did not fall on deaf ears.”
• 25/03 - “Imagine someone had been managing your money and you thought you weren’t qualified.” (Reprise five years later)
• 23/03 - Digital Communication and m-Health in Developing Nations
• 21/03 - Detecting Emotional Contagion in Massive Social Networks (PLOS One)
• 13/03 - Surgeon: “Participatory Medicine encourages partnership between patient and provider”
• 13/03 - Guest post by Kate Lorig: Words Matter – Let’s Reconsider the Term “e-Patient”
• 12/03 - #patientgate – digital recordings change everything
• 11/03 - What’s the PATIENT value in health IT?
• 05/03 - WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)
• 05/03 - “How collaborating with patients improves hospital care”: Guardian
• 02/03 - “Health cometh not from healthcare”
• 28/02 - Rare Diseases: Powered by Patients
• 26/02 - JAMA, patient centered medical homes, and the ongoing cost/quality conundrum
• 25/02 - Emory study: “PHR resulted in significantly improved quality of care and use of services”
• 23/02 - Crowdsourcing Curriculum on Consumer Health Informatics
• 13/02 - Twitter Empowers Patients to Seek and to Speak Out
• 11/02 - French Wikipedia now contains e-patient
• 04/02 - Patients to Have Right to Access Lab Test Result Data – Finally!
• 03/02 - TMIT, Dr. Chuck Denham, and Patient Safety’s First Scandal?
• 01/02 - Monthly introduction to e-Patients.net
• 30/01 - Patients-included Pharma? Disingenuous, and busted.
• 25/01 - A neurosurgeon confronts his mortality: lessons in statistics and living while you can
• 23/01 - Evernote is my EMR
• 21/01 - Prize-winning Consumer Reports app seeks study participants: Hip or Knee Replacement
• 14/01 - What to do if your doctor wouldn’t fax YOU your records…
• 14/01 - e-Patient Lisa Adams
• 13/01 - Husband-wife pieces in NY Times and The Guardian break ethics and lack a clue (re @AdamsLisa)
• 03/01 - Hot Trends for 2014: Care Collaboration and Coordination Top the List
• 01/01 - Response to “We need to talk about TED” from an evangelist’s perspective

2013 (123)

• 19/12 - Patient Designed: Top 3 things hospitals can do today to be more participatory
• 19/12 - How WebMD May Unfairly Influence Your Health Choices — Through Search
• 19/12 - Breaking news: New Orleans health chief Dr. Karen DeSalvo Named to Head ONC
• 03/12 - Matthew Katz on 23andMe: “Return to Sender, Genome Unknown: Seven Reasons I Will Return My Personal Genome Kit”
• 27/11 - My Reasons for Thanksgiving: On The Ultimate Loss of Control, Unclear Diagnoses, and Being a Patient
• 27/11 - Thanks from the Philippines
• 26/11 - Susannah Fox: Field Guide to Pew’s new report “The Diagnosis Difference”
• 24/11 - For whose benefit do boards certify? (Updated!)
• 22/11 - Regina Holliday: The Walking Gallery film
• 18/11 - e-Patient Manifesto: “Patients Included”
• 15/11 - Mobile, social, health, care
• 13/11 - Summit on Identifying Family Caregivers on Medical Records – by Suzanne Mintz
• 12/11 - Author Anna Quindlen asks medical schools: do you really know your patients?
• 08/11 - Patients in Power conference in Athens
• 03/11 - Monthly introduction to e-Patients.net
• 30/10 - Major cover story in Healthcare IT News
• 21/10 - How do we know that social media is important to health care?
• 14/10 - Rainbow Button – 2013 Edition
• 12/10 - A Powerful Union – Relationships within Health Team
• 11/10 - Janice McCallum’s Interview at StrataRx – About #GMDD and #SPM
• 10/10 - Join #s4pm tweetchat Saturday 10/12 at 3pm ET
• 09/10 - Tango as metaphor for doctor/patient relations: Patients 2.0 – Kathy Kastner
• 08/10 - Monthly introduction to e-Patients.net
• 07/10 - Engage! HIMSS book documents the *real* value of patient engagement (through SPM members and dual members)
• 29/09 - Let’s bring “e-patient” to geriatrics
• 24/09 - SPM is hiring a Development Director
• 23/09 - Expanding HIPAA Rights: Lab Test Results to Come Under the Big Tent
• 15/09 - Monday: Watch the Consumer Health IT Summit live. Our time is here!
• 13/09 - Flip the Flip
• 11/09 - New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern
• 08/09 - Monthly introduction to e-Patients.net
• 06/09 - Beth Israel Deaconess FAQ for their patients reading OpenNotes
• 04/09 - The OpenNotes project goes wide: a million patients and families enabled by information!
• 28/08 - Health Plan Member Engagement and Empowerment Index: The EveryMove 100
• 27/08 - Screw HIPAA: Here’s a Look at My Doctor’s Office
• 25/08 - Erin Moore’s speech: What if CF had a Collaborative Care Network?
• 16/08 - Rheumatoid Arthritis Ruined Her Elbow, But Nothing Could Break Her Hope
• 16/08 - Resources for health literacy
• 13/08 - That is a Real Doctor
• 06/08 - “I’d be 400 years behind” – updated, bigtime
• 06/08 - Peer-to-peer health care is a slow idea that will change the world
• 04/08 - Monthly introduction to e-Patients.net
• 01/08 - What I Wish I’d Known Earlier…
• 31/07 - “Apprenticeship” for developing patient skills: results from the CollaboRhythm platform
• 24/07 - Ivan Oransky (Reuters, RetractionWatch) joins MedPage Today
• 22/07 - PCORI and us
• 19/07 - A parent speaks: “Our child’s disease is OUR disease”
• 15/07 - NY Times: “Do clinical trials work?”
• 13/07 - Crowd trumps credentials: Medpedia’s dead.
• 01/07 - On the road to shared office visits
• 27/06 - How e-Patients Plan for End of Life Decisions
• 24/06 - “Stetho-Snopes”: MightyCasey calls for medical myth-busting
• 20/06 - Caregivers: a celebration
• 17/06 - Raw data now! Open science! Sign Ben Goldacre’s #AllTrials petition
• 13/06 - Are Physicians Truly Engaging with their Patients?
• 10/06 - Cleveland Clinic To Give Patients Full Access to Data
• 06/06 - Erin Moore: Are Patients a Distraction? I think not…
• 05/06 - Lisanne St Onge Klute: The Power of Social Healthcare; Becoming an Empowered Patient and Surviving a Cavernous Malformation of the Brainstem
• 05/06 - Blue Button Plus Challenge – Call for Patient Input
• 03/06 - Patient-family advisors: “Don’t say you volunteer – say it’s pro bono”
• 02/06 - Monthly Introduction to e-Patients.net
• 30/05 - When Bad Heads Go Viral: How A Malformed Headline Is Skewing Medicine’s View Of The Patient’s Role In Decisions
• 28/05 - Caregivers, please share your stories
• 20/05 - Angelina Jolie, BRCA1, Public Health, Patent Law — & the Empowered Patient
• 14/05 - How to be Participatory in the Face of Adversity
• 12/05 - Mother’s Day
• 12/05 - The FDA Patient Network Website – Patient-Centeredness that Walks the Walk
• 08/05 - Massively Open Online Medicine: Bad Idea or Just Before Its Time?
• 06/05 - Monthly Introduction to e-Patients.net
• 02/05 - How do (older, lower-income) patients learn?
• 01/05 - How Things Change
• 26/04 - A picture worth a thousand “What if health care..?” words
• 24/04 - SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
• 22/04 - The Black Box of You: Why the Quantified Self is so Frustrating Today
• 14/04 - Farewell (seven years ago today), Doc Tom
• 11/04 - Clinicians are from Mars, e-Patients are from Venus
• 08/04 - Veteran Internet Use and Engagement With Health Information Online
• 05/04 - Who Are These Guys? Why the PCORI Picks Matter And a Lot More Than You Probably Realize
• 02/04 - Anniversary of a health data earthquake
• 30/03 - A sign of the times: thyroid cancer patient says TWO docs recommended a patient organization
• 28/03 - Provide Your Input to Inform ONC’s Consumer eHealth Strategy
• 20/03 - Tweetchat on Wed March 20 about Gimme my DAM Data, Blue Button Plus and Commonwell
• 18/03 - RECENT rule violations that caused serious harm: CMS releases searchable database
• 05/03 - “Show Me the Data!” – Eric Topol rocks the #HIMSS13 keynote
• 04/03 - Revised: *could have been* the biggest HIMSS news for e-patient families: CommonWell Health [data] Alliance
• 03/03 - Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
• 28/02 - Rare Disease Day 2013: Help Spread Awareness
• 26/02 - Medication Management: Experience of Engaged Clinicians and Empowered Patients
• 24/02 - Partnering with patients – about patient centered RESEARCH METHODS
• 19/02 - Fwd: [New post] Does scientific misconduct cause patient harm? The
• 19/02 - Reading our own EKG
• 18/02 - “My Health Counts: e-Patients” to premier on WNED!
• 17/02 - Regina Holliday: What I learned on the road to the Shortys
• 15/02 - Health Affairs Patient Engagement Edition – with videos and commentary
• 11/02 - Why Walk–in Medical Clinics Provide a Good Alternative
• 09/02 - What if health care…?
• 09/02 - PCORI Board Meeting, San Francisco, February 9, 2013
• 07/02 - SPM and HIMSS announce collaboration and tweet-up (and book!)
• 07/02 - HIMSS and S4PM collaborative – Advise us!
• 06/02 - What if we treated substandard *info* like substandard drugs? (Riff on an IOM report)
• 06/02 - Closed systems collapse, open ones thrive: the Health Design Challenge
• 05/02 - Cristin Lind: My new litmus test for patient-centeredness
• 03/02 - Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
• 02/02 - Minnesota Supreme Court sides with patient on social media defamation suit
• 01/02 - Final HIPAA Privacy & Security Rule – What’s in it for Patients?
• 29/01 - How to Provide Emergency Medical Services to Everyone
• 27/01 - The Case for Being On Top of Your Case
• 25/01 - Eric Topol at Rock Health
• 25/01 - HIMSS blog featured e-Patient Dave
• 24/01 - Thoughts on requirements for Patient-Centric HIT Systems
• 21/01 - 1 Million VA Patients Can Now Access Their Complete Health Record
• 18/01 - NEJM: Post-Hospital Syndrome
• 17/01 - Breaking news: HHS publishes long-awaited HIPAA rule changes
• 17/01 - Medical Errors: Will We Act Up, Fight Back?
• 17/01 - Our latest “doctor as e-patient”: SPM member Leana Wen
• 16/01 - Research – Route funding through consumer organizations
• 15/01 - Health Online 2013: survey data as vital sign
• 14/01 - Meaningful Use Stage 3 – Society for Participatory Medicine Comments on Proposed Objectives
• 14/01 - Heads up: New Pew Internet report coming out tomorrow
• 08/01 - Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
• 06/01 - Finally! An initiative from *within* science to reproduce studies. (And not everyone likes it.)
• 04/01 - PCORI and Micro-Contracts
• 02/01 - Science Fraud site is shut down by legal threats

2012 (217)

• 31/12 - “Arm” ourselves with information: Health News Review and 2009’s “war on cancer” post
• 30/12 - PCORI and Just-in-Time Decisions
• 29/12 - MedKaz blog: “Where’s the urgency, the anger, the outrage?”
• 29/12 - “The Patient as Partner” in Medical Research at Radboud University
• 28/12 - Top 5 Posts of 2012
• 24/12 - When the doctor-patient relationship splits up (Boston Globe)
• 19/12 - Taking Stock: Managing Your Health Care Costs
• 18/12 - ONC’s new visual companion to their great vids about EHRs
• 17/12 - Can Patient-Centered Care Reduce Hospital Readmissions?
• 16/12 - Mobile Devices: Know the RISKS. Take the STEPS. PROTECT and SECURE Health Information
• 11/12 - PCORI Puzzle: Can a Marriage of Goo-Goos and Pinky-Ringers Transform Health Care?
• 04/12 - Give us our damn data – or at least stop screwing up when *you* use it.
• 03/12 - “As She Lay Dying” – a son calls on the health system to involve patients and families in improving safety
• 02/12 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 01/12 - The Waiting Room
• 30/11 - When is patient data not patient data? When a patient wants his or her ICD data
• 29/11 - Wall Street Journal – Heart Gadgets Test Privacy-Law Limits
• 28/11 - New Hospital Safety Score data: a key enabler for informed choice
• 22/11 - Engage with Grace
• 21/11 - Rural e-patients face access challenges
• 19/11 - Danny van Leeuwen: The Right Information in My Health Record
• 08/11 - A wide-open brainstorm: let’s list clinicians’ skills, beyond diagnosing
• 07/11 - “My Health Counts: e-Patients” (coming soon from WNED, PBS Buffalo!)
• 06/11 - “Vote No on Suffrage: 90% don’t care”
• 04/11 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 04/11 - Sincerity in the storm (welcome to our world)
• 01/11 - PCORI Workshop post 3: Danny van Leeuwen (@HealthHats)
• 31/10 - PCORI Workshop post 2: Kathy Day RN (McCleary MRSA Prevention)
• 30/10 - PCORI Workshop post 1: Kelly Young (@RAWarrior)
• 30/10 - Beginning a series: SPM members’ thoughts on the PCORI workshop
• 25/10 - Nancy Finn: Collaborative Teams that Include Patients Make Care Coordination Possible
• 23/10 - No-brainer alert: sign this now! O’Reilly letter on “give us our lab data”!
• 23/10 - Be informed. Hospital quality varies widely by state, within states, even within hospitals
• 22/10 - What makes a doctor-patient partnership flourish?
• 22/10 - First Electronic Health Record exchange in MA @stales
• 17/10 - #s4pm Tweetchat tonight Oct 17 at 8 PM ET / 5 PM PT about… hashtags
• 09/10 - New series on overdiagnosis
• 07/10 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 06/10 - Hugo in the San Francisco Examiner – in a *non-medical* column
• 05/10 - Fact checking at Medicine X
• 04/10 - What Bryant and Katie saw, while Doc Tom was seeing the future
• 01/10 - OpenNotes: The results are in. GREAT news for patient engagement.
• 30/09 - Crossing a threshold: the e-Patient movement enters wave 2
• 27/09 - Health Affairs: An Evidence-Based Approach To Communicating Health Care Evidence To Patients
• 26/09 - Marya Zilberberg: ACOG’s dysmenorrhea FAQs: Evidence of propaganda?
• 20/09 - Participatory Medicine and e-Patient on morning TV! Good Day Maine
• 18/09 - Medicine 2.0 Day 2 – Magnificent!
• 18/09 - Neel Shah: Costs of Care Essay Contest 2012 for Patients and their Caregivers to Improve Healthcare Value
• 16/09 - Medicine 2.0 Day One
• 14/09 - Susan Mende: Making Health Care Decisions Easier — and Reliable
• 13/09 - Nancy Finn: How Do Patients Make Good Choices?
• 11/09 - Our Society is hiring: Executive Director
• 10/09 - Why asking what treatment will cost matters
• 07/09 - What’s in a (disease) name?
• 05/09 - The internet’s downsides: tell us your stories
• 04/09 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 30/08 - @Ahier on Stage 2 Meaningful Use rules
• 30/08 - Final weeks: Register & attend Regina’s “Partnership WITH Patients” conference
• 30/08 - New IOM Report To Be Released Sept 6 (webcast)
• 27/08 - #S4PM #BigData Tweetchat on Wed Aug 29 – 8 PM ET / 5 PM PT
• 24/08 - “Mind the Gap” on patient engagement: uck, “What???” and the scapegoat disconnect
• 16/08 - State of the Meme, summer 2012
• 16/08 - Hey lurkers – hi! Step right up, speak up here!
• 14/08 - New SPM Members Bring Magic Levers and Untanglers for Healthcare
• 08/08 - ONC Video: It’s time healthcare caught up with the way we live the rest of our lives
• 02/08 - Eve Harris: Health coaches and involving patients in primary care decision making
• 01/08 - Benoit Bisson: Being a patient knows no boundaries
• 31/07 - SUITS and VOMIT: fun at the ABIM Foundation Forum
• 30/07 - XX in Health: Women Leading Healthcare
• 28/07 - Input please for ABIM Foundation Forum: Choosing Wisely in an Era of Limited Resources
• 25/07 - About Healthcare’s Online Communities
• 25/07 - It’s not about being online. It’s about being empowered and engaged – thinking and speaking up.
• 24/07 - What Do ‘Engaged’ Patients Do?
• 24/07 - “What’s in YOUR record?” Make data quality fun: play along in ONC’s video challenge!
• 23/07 - Does this proposed law take “give us our data” far enough?
• 23/07 - Clarity is Power: an effective decision aid graphic (Boston Globe)
• 19/07 - Health Care Hackers
• 17/07 - Ted Eytan: Update on “Gimme My [image] Data” from Group Health
• 17/07 - Social Media Breakfast – Healthcare in the Social Media Era
• 15/07 - Facial Paralysis, Not Personality Paralysis
• 13/07 - Nursing Alliance for Quality Care kicks off effort to put the patient relationship at the cornerstone of patient safety and quality
• 12/07 - Caregivers Online
• 11/07 - NeHC and ONC organize an eHealth Engagement Summit
• 10/07 - CureTogether acquired by 23andme
• 05/07 - Idelle Davidson: “ASCO, Where Have You Been?”
• 03/07 - How American Independence Created a New Kind of Patient
• 01/07 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 27/06 - Mayo Clinic Scholarship Contest for e-Patients
• 26/06 - Bowling Alone, Healing Together
• 25/06 - ONC discusses giving data to patients – more on the Blue Button initiative
• 25/06 - A patient story: HIMSS’ Adam Bazer on IT from a patient’s perspective
• 23/06 - Patient engagement of the financial kind: “Getting Lost in the Labyrinth of Medical Bills” (NYTimes)
• 22/06 - Checklists for children hospital stays
• 22/06 - 2012 Patient, Caregiver Scholarship Contest for Social Media Summit
• 21/06 - Marya Zilberberg elaborates on structured vs. nonstructured clinical data
• 20/06 - An Empowered Patient Faces Serious Chronic Disease: How a Strategy of Remaining “Level-Headed” Worked for One Woman
• 19/06 - Writer seeks examples of physician conflict of interest that affected care
• 19/06 - Writer seeks examples of physician conflict of interest that affected care
• 19/06 - Time trip: “Participant-Entrepreneurs: Innovating Toward Better Health” (May 2010)
• 19/06 - Eve Harris reviews Joe and Teresa Graedon’s book
• 19/06 - The government seeks patient voices again – this time about info WE put in the record
• 14/06 - Regina Holliday announces “Partnership WITH Patients” conference
• 12/06 - Who owns your data? Why?
• 11/06 - Watson: a love story
• 07/06 - Unpacking self-tracking
• 05/06 - SPM Rolls Out Participatory Seal Program
• 05/06 - ONC Meeting with Patients at the White House
• 03/06 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 01/06 - Nancy Finn: Are You Getting What You Paid For and Is It Worth the Money?
• 31/05 - A powerful e-patient story – parents search for what ails their son
• 31/05 - A “de-marketing strategy”
• 28/05 - “A growing movement of e-patients”: Hugo Campos on NPR’s Morning Edition & “Shots”
• 24/05 - “Check the box for e-Patient”
• 24/05 - Send a message to the White House: Show strength of support for Open Access
• 24/05 - Cleveland Clinic’s John Sharp with a review of Social Media in Healthcare
• 20/05 - What Do Aggregators Know About Me and Why It’s Important
• 19/05 - KQED blog on Hugo Campos and his quest to access his data
• 19/05 - Storify feed from Health FOO this weekend
• 18/05 - HIT Journalist becomes patient advocate after seeing the danger of uncoordinated care and poorly designed workflows
• 10/05 - Hugo Campos has major arrhythmia, goes to ER, wants his data even more now
• 07/05 - Is “gimme my damn data” damning to patients?
• 06/05 - @Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient
• 06/05 - Millenson on THCB: Will Regina Holliday Become Health Care’s Rosa Parks?
• 06/05 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 05/05 - SPM’s responses to the proposed rules for Meaningful Use Stage 2
• 04/05 - International survey for chronic disease patients
• 04/05 - “With this the AHA admits that it does not know what an EHR was and is meant for”
• 03/05 - Important ONC/NeHC Webinar, noon ET – the Patient’s Role in EHR Data Quality (SPM speaking)
• 02/05 - American Hospital Association declares war on patient empowerment. Please act.
• 30/04 - Making Sense of “Patient-Centered Care”
• 30/04 - Globe article on EMRs: status and the safety issue
• 26/04 - Let’s Get Medical Info as Good as Our Pets Get! — A Petition
• 25/04 - AHRQ Cancer Resources to Help Understand Treatment Options
• 25/04 - Applying Tom Gilbert’s performance improvement framework to the “compliance” issue
• 24/04 - Technology Enables Collaborative Doctor-Patient Relationships
• 24/04 - Gangadhar Sulkunte: TEDMED 2012 Highlights
• 19/04 - SPM Tweetchat last night: Patients at conferences
• 19/04 - Regina Holliday in Newsweek (Shannon Brownlee on hurried docs and lack of care)
• 17/04 - “The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data
• 16/04 - Patient Engagement shows up big in special WSJ section on Healthcare Innovations
• 16/04 - Regina Holliday / Ted Eytan interview: StoryCorps audio, now in the Library of Congress
• 15/04 - Petition and Call for Public Comments (from you): Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use
• 13/04 - TEDMED and RWJF accept “The Role of the Patient” as a Great Challenge
• 12/04 - A Season in Hell
• 11/04 - Health 2.0 Tools: Recommendations from a Net-Friendly Doc
• 11/04 - Help TEDMED focus on what patients want. Vote.
• 09/04 - Scott Strange: The Only “Thing” that Can Empower You Is You
• 07/04 - System 1, System 2, Elephants and Illusions
• 05/04 - Self-Service Healthcare?
• 04/04 - JoPM: “Making Every Second Count” at the Doctor’s Office
• 01/04 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 31/03 - The DIY Clinical Trial – Health Blog – WSJ
• 29/03 - Consumer Reports: Medical devices are rarely tested
• 28/03 - Nancy Finn: Changes to Health Delivery Are Key to Reducing Costs
• 27/03 - The BRCA patents, the Supreme Court and Empowered Healthcare Consumers
• 26/03 - What happens when an engaged consumer tries to help control costs?
• 24/03 - “People without medical background can understand if you tell it in a language they understand”
• 23/03 - SPM member Akiva Zablocki: “Step One to an Informed Decision: Convene an Expert Panel”
• 23/03 - Getting copies of your medical records: rule & resource info from CDT
• 21/03 - #firstMRI is a project! Tweetchat tonight
• 20/03 - Former NEJM editors on the corruption of American medicine (NY Times)
• 18/03 - Visualize This: An e-Patient’s Medical Life History
• 17/03 - The Government’s Assault on Women’s Health
• 16/03 - Hugo Campos: compelling 3 minute video (Medicine X promo video)
• 16/03 - “Physicians, Patients and the Internet”: good article in Physicians Practice magazine
• 16/03 - A psychiatrist touts self-care for patients and clinicians
• 16/03 - Mama birds: Catherine Fairchild Calhoun and Laurie Strongin
• 15/03 - Michael Millenson: Will health reform move patient-centeredness to center stage?
• 14/03 - Robert P. Krause dies, age 90 – was an engaged patient for 85 years
• 14/03 - CostsOfCare.org
• 13/03 - Patients: Your Researcher Will See You Now!
• 13/03 - The impact of the internet on one man’s life
• 11/03 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
• 09/03 - What’s the future for self-tracking?
• 01/03 - Nancy Finn interview on Fox News
• 01/03 - Regina Holliday’s testimony at NCVHS
• 01/03 - An e-Patient Goes to the Eye Doctor – and, ahem, expresses himself
• 28/02 - Rheumatoid e-Patients Share the Spotlight at Medical Conferences
• 27/02 - An e-Patient Perspective on Stage 2 of Meaningful Use (Adrian Gropper)
• 25/02 - The Power of Rare Disease Patients
• 16/02 - Health, Technology, and Communities of Color
• 15/02 - The Debate Over Patient Access to Lab Results (THCB post from RWJ)
• 13/02 - Save the Date: PCORI’s National Patient and Stakeholder Dialogue
• 12/02 - An e-patient issues an RFP, saying what’s important to him
• 08/02 - Helen Palmquist: Supporting my cyber-sisters with words of hope
• 07/02 - Alex Albin: Why patients aren’t managing their care (Healthcare
• 03/02 - What’s your health care dream?
• 01/02 - New editorial series in JoPM asks the tough questions
• 01/02 - Katie Matlack: iOS medical peripherals: convenient and connected
• 31/01 - Mayo Proposal: Make Med Students Understand Costs?
• 31/01 - Opening the Door to Closeted Science
• 30/01 - “I have a right to my damn data”: Hugo Campos in the Mercury News
• 27/01 - TED talk on doctors’ mistakes
• 26/01 - “That means there is hope” – Atul Gawande at #CISummit
• 24/01 - Medical Devices: Another take on “We want Access to our Damm Data”
• 22/01 - Hugo Campos on NPR’s “On The Media”
• 20/01 - Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition
• 19/01 - Scrubs N Suits posts a good intro to SPM and e-patients
• 19/01 - The Rise of the e-Patient
• 19/01 - e-Patient hits the mass media: WBZ Radio and Angie’s List magazine
• 19/01 - Peter Elias: Empowerment and collaboration
• 18/01 - OpenNotes helps me prep for a visit
• 17/01 - MIT Media Lab’s Health & Wellness 2012: ten day innovation fest, six us-centered projects
• 12/01 - Pauline Chen: Getting Patients to Take Charge of Their Health
• 12/01 - Open knowledge saves lives. Oppose H.R. 3699!
• 12/01 - Gloucester Times: Taking control of our own care in today’s health maze
• 11/01 - Jessie Gruman’s “Lessons from the Year of Living Sick-ishly”
• 11/01 - JoPM: A Doctor’s Remedy for Long Waits
• 10/01 - HBR blog: “The trouble with treating patients as consumers”
• 09/01 - Ileana Balcu: The marriage of HIT with quality, transparency and cooperation between patients and doctors
• 07/01 - GeekDoctor’s wife, newly diagnosed, gives Cancer 101’s Cancer Planner high marks
• 07/01 - Star Tribune: Simple pharmacy change produces major quality improvement
• 07/01 - New Society to Improve Diagnosis in Medicine
• 05/01 - Fred Trotter: “e-Patients: The Hackers of the Healthcare World”
• 03/01 - Epic tale of Gimme My Son’s Damned Data! – by a doc *at his own hospital*
• 03/01 - Facebook as a source of healthcare value?? Item 2
• 01/01 - Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine

2011 (221)

• 31/12 - ACOR kidney cancer community wins 25th anniversary “Maily” Listserv award
• 29/12 - A physician who really understands patient-centered care
• 27/12 - Fred Trotter: Data, damn data, and statistics
• 22/12 - Most popular health *topics* of 2011?
• 22/12 - Rookie e-patient @Xeni helps the docs view her data
• 22/12 - Book review takes a look at neurofeedback
• 22/12 - Patient and family engagement in hospice decisions – if they’ll let you
• 21/12 - The #firstMRI project: helping patients through that horrible first MRI
• 21/12 - Two great posts on how patients can be responsible for their care
• 20/12 - Gimme My Damn Data: cancer patient Xeni finds a “ghost penis” in her bone scan
• 19/12 - Important papers released on patients and their medical records
• 14/12 - Two new JoPM articles tell one great participatory medicine success story
• 14/12 - Daniel Carpenter in NY Times: Move the FDA out from under politicians
• 12/12 - Nancy Finn: Personalized medicine and participatory medicine intersect
• 12/12 - Michael Millenson: When the patient’s wish was irrelevant
• 12/12 - Interactive timeline of EHR history
• 08/12 - For some people, it’s still 1994
• 07/12 - .5 x .5: Deconstructing Margolis
• 06/12 - Kathy Kastner: Why I joined is not why I’ve stayed
• 04/12 - Monthly introduction for new subscribers
• 03/12 - How Doctors Die
• 02/12 - @AfternoonNapper on two Stanford medicine blogs
• 02/12 - Once again: e-patient essential – sorting out what writings to trust
• 01/12 - World AIDS Day
• 30/11 - Health News Review gets its second makeover. With comments!
• 28/11 - Alert: Lawrence Weed, father of the Problem Oriented Medical Record, looks ahead
• 27/11 - In memoriam: Monique Doyle Spencer
• 25/11 - EHR data spurs real-time evidence-based medicine (NEJM / Health IT Exchange)
• 22/11 - This year it’s … Occupy With Grace
• 21/11 - Kenneth S. Spriggs: The Benefits Of Visualizing Your Medical Data
• 16/11 - Worst Headache of My Life Becomes Lesson About Role of Story in Health
• 16/11 - Elaine Schattner: Don Berwick, Head of CMS, on the Value of Patient-Centered Care
• 15/11 - Society for Participatory Medicine Files Comments in Support of Proposed CLIA and HIPAA Regs Making Lab Results Available to Patients
• 11/11 - Kari Ulrich: Experienced from both sides of the bed
• 10/11 - Libro Blanco de los e-Pacientes en Español
• 10/11 - Announcing: the e-Patient White Paper, in Spanish
• 09/11 - Nancy Finn: Smartphone Health Care Apps Storm the Market
• 07/11 - A glimpse of OpenNotes findings: “Patients are overwhelmingly interested”
• 02/11 - Action in the face of uncertainty
• 01/11 - What do Participatory Medicine and OWS have in common?
• 01/11 - JoPM: Patient-oriented content on hospital websites
• 28/10 - Lisa Gualtieri: Must waiting be inherent to medical care?
• 27/10 - Next “doctor as e-patient”: Howard Luks, MD
• 23/10 - Steve Jobs’ Cancer Denial
• 22/10 - Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
• 21/10 - Federales finalize Accountable Care Organization regs, define “patient engagement” and “patient-centeredness”
• 20/10 - Is “Gimme my damn data” coming to radiology at last??
• 20/10 - “Know Your Numbers”: new music video parody that gets good things stuck in your ear
• 19/10 - “WhiteOut” campaign (give babies real food, not white rice) wins HCHW Prevention award
• 18/10 - Health Info Have-Nots
• 16/10 - Invitation to Connected Health Attendees, 2011
• 14/10 - The Patient Activation Measure (PAM): a framework for developing patient engagement
• 11/10 - “When I became a patient, I felt my identity slipping away.”
• 05/10 - e-Patient Training via TED Talk: “Battling Bad Science”
• 04/10 - Conference Season: Patients and Caregivers Welcome
• 04/10 - e-Patient Dave corrects a “troll”
• 02/10 - Health Literacy series on “Engaging the Patient” blog
• 30/09 - Lab Results for All! Of Data Liberation, Participatory Medicine, and Government 2.0
• 29/09 - “Design and create a safe, decent, patient centered healthcare system.”
• 27/09 - Nancy Finn: Talking to your doctors and getting what you need
• 25/09 - Beth Austin: Choosing a doctor and other death-defying feats
• 23/09 - Peer-to-peer Healthcare at Medicine 2.0
• 23/09 - Your Medical Mind: New book on *your* medical decision making process
• 21/09 - The unexpected power of storytelling
• 19/09 - Neel Shah: Using bedside stories to unmuddy the waters
• 18/09 - BMJ commentary: “Enlist the patients’ help”
• 17/09 - Guest post: Overcoming “battle fatigue” in an online support community
• 15/09 - The Green Button idea in practice
• 14/09 - Do You Know What FDA Approval of a Drug Means?
• 13/09 - Case Study on ‘Autonomy in Jeopardy’ for Mental Health Patients
• 12/09 - Tami Boehmer: Hope versus statistics
• 12/09 - Doctor Pay Too High?
• 10/09 - ONC’s new Query Health initiative – what’s in it for e-Patients?
• 10/09 - “Listening to the Patient Voice” – a Planetree story
• 09/09 - Jonena Relth: Participatory medicine: my first-hand account
• 08/09 - When Patients Band Together: Far From a Disgrace
• 07/09 -
• 06/09 - Just Say “Know” to Drugs: A Proposal to Improve Prescription Drug Information
• 04/09 - How To Dump A Doctor
• 02/09 - e-Patient Classic: Elyse Chapman, April 2009
• 02/09 - Nancy Finn: E-Visits foster continuum of care and communication, but there is a price
• 01/09 - Australian Consumer Health Forum flips from opt-in to opt-out for EHR enrollment
• 31/08 - Help Me Choose: Sessions at Medicine 2.0
• 31/08 - New FDA book: “Communicating Risks and Benefits: An Evidence-Based User’s Guide”
• 30/08 - Rare disease patient community and Mayo explore trial with far-flung patients
• 30/08 - Two Doctors Take a Patient-Centric Approach in New Books (NYTimes)
• 29/08 - New Study in JoPM Uses Smartphones To Enable Healthy Choices
• 25/08 - “The Office” Takes on Primary Care
• 24/08 - “The Participation Hypothesis”
• 23/08 - “Who Can Fix Health Care?” Al Mulley’s talk at TEDx Dartmouth
• 22/08 - JoPM recommendation: “Team Up for Health”
• 17/08 - A “shopping for healthcare” blog
• 17/08 - Health Literacy Missouri: Clarity is Power.
• 16/08 - JoPM book review: “Out of Her Mind”
• 09/08 - How about PHR = *Portable* Health Record?
• 09/08 - Social media, patients, and physicians: a sticky wicket
• 08/08 - Communication, A Vital Skill for Participatory Medicine
• 07/08 - NOT an e-patient: freaks out at the first search result
• 06/08 - Twenty years ago today: “The WWW Project aims to allow links…”
• 05/08 - What You Can Do if You See Slipshod Health Care News
• 05/08 - Tune in to hear Retraction Watch on Science Friday
• 05/08 - Medicare releases hugely important hospital quality/safety data
• 02/08 - Introducing Sue Woods, new SPM board member
• 01/08 - Mind the Gap: Peer-to-peer Healthcare
• 27/07 - Alan Greene: “Jumping out of a Plane is 47 Times Safer Than Checking into a Hospital. Unless…”
• 27/07 - The e-Perspectives of e-Patient Dave
• 26/07 - “Don’t you wanna know??” A proposed PSA about asking questions
• 26/07 - We’ve changed!
• 24/07 - Why Sometimes Health Reporting Should be Done By Journalists
• 22/07 - An out-of-office email – from a computer
• 21/07 - The Green Button idea: support app development with a “Donate My Data” button
• 19/07 - Wendy Station: A community lifts up a priest in need
• 19/07 - What I learned at Health Foo
• 15/07 - How Facebook Saved My Son’s Life (Slate.com)
• 15/07 - Are patients knights, knaves, or pawns?
• 11/07 - JoPM: A pediatric PHR, bidirectional with the EMR, where the family owns the data
• 11/07 - Information spreads like wildfire, right or wrong
• 10/07 - Healthcare Associated Infections: What’s an Infographic Got To Do With It?
• 09/07 - What happens when you ask Atul Gawande to join a Twitter discussion of his work?
• 07/07 - First Diagnosing Mole iPhone app
• 06/07 - Alpha Geeks in Health Care
• 02/07 - “Father Knows Best”: Vint Cerf on what innovation really is
• 01/07 - Health Month, the game
• 30/06 - Would Your Doctor Pay for Wasted Time? (CNN.com)
• 28/06 - Shared Decision Making in the News
• 27/06 - Examples, please: peer-to-peer healthcare
• 25/06 - Bye Bye Google Health
• 24/06 - 2011 Socialnomics video is out
• 23/06 - Richard Smith: Beware journals, especially “top” ones (BMJ blog)
• 23/06 - FICO’s new Med Compliance score: #FAIL
• 18/06 - NYTimes: Smaller hospitals often perform double CTs unnecessarily
• 17/06 - Rating the Better Business Bureau
• 17/06 - Two roads ahead: “I fear to be a patient” vs. “Opportunities for Patient-Clinician Partnership”
• 16/06 - Do e-Patients Cross the Line With Clinician–Patient Responsibilities?
• 16/06 - Meredith Gould: Why Go Public Now About My Fibro?
• 16/06 - Cancer Blogger Gets Legal Threat
• 14/06 - Ellen Hoenig Carlson: Patients Beware – 1 Out of 3 Subject to Hospital Error
• 13/06 - Justin’s Journey With Brain Cancer, Chronicled Through Facebook and His Blog
• 07/06 - Peter Schmidt: The virtue of participating in your care – it serves others, too
• 06/06 - Kids Talk About What It’s Like to Have Asthma
• 04/06 - Chilmark: HealthVault continues to build, Google Health still useful
• 03/06 - Regina paints Susannah’s jacket; Susannah replies
• 03/06 - “Dumb patients? No way. It’s only normal behavior and status-quo clinical care.”
• 01/06 - The Evidence for and Experience of Engaging in Health Care: Jessie Gruman’s powerful speech at ICSI
• 29/05 - CNN: “10 dumb things you do at the doc’s office”? Discuss.
• 25/05 - Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.
• 24/05 - Stifling Primary Care: Why does Medicare/Medicaid Still Support the “RUC” Rate Setting Cabal?
• 24/05 - “All your reviews are belong to us”: Medical Justice is still in business
• 22/05 - Safety net populations do benefit from online PHRs: poster at ICSI/IHI Colloquium
• 20/05 - This Business of Being Patients Is Far From All We Do
• 13/05 - Amazon, now Blogspot: “cloud only” is dead for health.
• 12/05 - The Social Life of Health Information, 2011
• 11/05 - Map the frontier. Bring data. (More coming soon!)
• 06/05 - Participate in SPM’s glossary project: Abbreviations, Acronyms, and Alphabet Soup
• 03/05 - Society for Participatory Medicine Comments on ONC Federal Health IT Strategic Plan 2011-2015
• 30/04 - Terrific example of patient-centered instruction (and thinking)
• 27/04 - Patient empowerment talk hits Israel
• 27/04 - Pioneers of patient engagement
• 23/04 - “Not just a bucket of information — a platform with applications.”
• 22/04 - e-Patient Beware: Bad Data, Badly Reported
• 21/04 - “Patients are not consumers”
• 18/04 - Powerful new “Doctor becomes an e-patient” story in Journal of Participatory Medicine
• 14/04 - Heads-up on EMR usability discussion
• 13/04 - ISO: Randomized Trials
• 12/04 - Rest in Peace: Personal Health Records (PHRs)
• 11/04 - PatientsLikeMe goes wide
• 10/04 - SPM on the Air: People’s Pharmacy (NPR)
• 08/04 - An ode to health data rights
• 06/04 - BMJ posts expert roundtable audio on Salzburg Statement and Shared Decision Making
• 04/04 - Peer-to-peer healthcare on NPR
• 01/04 - Accountable Care Organizations and Patient-Centeredness
• 27/03 - TEDMED End Of Life videos are up
• 25/03 - In the End
• 24/03 - What if information spread more quickly than a virus?
• 23/03 - How can a community organization tap into the health dev craze?
• 22/03 - The Salzburg Statement on Shared Decision Making
• 22/03 - Care coordination: a MUCH bigger task than most of us realize
• 21/03 - Health IT update: Significant announcement and webcast today about the Direct Project
• 20/03 - Compelling lecture on clinical decision making and diagnostic error
• 16/03 - “I Am Iron Man”
• 16/03 - Ooops: Health Net Loses 1.9 Million Patient Data Records
• 11/03 - The discovery of practice variation: follow the data
• 10/03 - Peer-to-peer Healthcare at the White House
• 10/03 - Making Strides Toward Improving Health Literacy Online
• 08/03 - New JoPM Commentary: “Healthcare: A Human Rights and Economic Justice Issue”
• 07/03 - Too Many Doctors?
• 05/03 - Should More Doctors Participate in Social Media?
• 04/03 - NPR’s Talk of the Nation: Patients Seek Moral and Medical Support Online
• 01/03 - IHI names patient activist Dale Ann Micalizzi as 2011 co-chair
• 01/03 - Jackie Fox: Why I Joined the Society for Participatory Medicine
• 27/02 - Rare Disease Day 2011: “Raise Your Hand To Help Millions of Americans”
• 25/02 - Practice variation and shared decision making on CBS Evening News
• 25/02 - Healthcare Out Loud
• 24/02 - Lack of “innovation” as vendors focus on meaningful use?
• 23/02 - Putting patients into “meaningful use”
• 23/02 - ABCNews.com: “The Biggest Wasted Resource in Health Care? You.”
• 22/02 - Invitation: crowdsource the definition of “Patient Centered Outcomes”
• 18/02 - IHI releases video of SPM’s keynote
• 16/02 - Patient Experience of Care: Measuring and Incentivizing High Performance
• 15/02 - Documenting and promoting Open Innovation: The Open 100 wiki
• 02/02 - Guest Post Guidelines
• 01/02 - A Health Information Divide
• 30/01 - February retrospective on e-patients.net
• 29/01 - “Electronic Health Records Do Not Impact the Quality of Healthcare?”
• 28/01 - Why Almost Everything You Hear About Medicine is Wrong (Newsweek)
• 26/01 - What people living with disability can teach us
• 24/01 - SPM’s response to the PCAST recommendation on Health IT
• 22/01 - Found on the Net: “Why Steve Jobs will be the ultimate e-patient”
• 21/01 - Tips for understanding studies (Health News Review)
• 20/01 - Is the culture finally budging?? Time reports that patients who google can help doctors
• 18/01 - The kind of thinking to look for
• 17/01 - The Complete Guide to Self Tracking
• 14/01 - BMA warns against letting patients have access to their electronic records (BMJ)
• 13/01 - The Decline Effect: Is there something wrong with the scientific method? (New Yorker)
• 12/01 - ‘Some Worms Are Best Left in the Can’ – Should You Hide Medical Errors?
• 11/01 - Doctors often use treatments with little scientific support
• 09/01 - Journal of Participatory Medicine: Top Ten Articles
• 07/01 - Wikipedia’s entry on “e-patient”
• 05/01 - SPM Public Policy Committee Joins the Patient Engagement Dialogue with the Federales
• 03/01 - New at the Journal for Participatory Medicine
• 03/01 - Six US health systems to share data

2010 (196)

• 29/12 - “The Difficult Science”: series by Kent Bottles
• 28/12 - “They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy
• 22/12 - “A lot of shackling lives in language”
• 20/12 - “Unwarranted practice variation”: an essential e-patient awareness topic
• 20/12 - “The Spoon Theory”: brilliant description of chronic illness
• 13/12 - Cancer 2.0
• 12/12 - Salzburg Global Seminar, December 2010: Informing and Involving Patients in Medical Decision Making
• 10/12 - Going Viral Against HIV and STIs
• 06/12 - “Consent to Hoard” and other news from #IHI
• 03/12 - Fools! Damn fools! And Medical Science. (Right, Santa??)
• 02/12 - Will patients be involved in Patient-Centered Outcomes research?
• 01/12 - “I’m getting impatient”: an empowered patient guest post
• 30/11 - President’s Cancer Panel: Input, Please
• 29/11 - A live case study in patient engagement and participatory thinking
• 27/11 - “Equity & Excellence: Liberating the NHS” (UK white paper)
• 26/11 - Avoiding harm in the hospital
• 24/11 - Engage With Grace Over Thanksgiving
• 23/11 - What’s the point of Health 2.0? (Some answers this time)
• 22/11 - The Future of Health: Robots, Enchanted Objects, and Networks
• 22/11 - Connected Health: Patient networks panel
• 16/11 - Who *are* those guys? (Matt Wiggins and Remedy Systems)
• 15/11 - AMIA board: “Hold harmless” clause in EMR contracts is unethical
• 13/11 - Smashing myths & assumptions on PHR use (Chilmark)
• 12/11 - Disruptive Women in Healthcare video: Health Reform after the Mid-Terms
• 11/11 - Busting the paradigm about mobile for health: it’s not just phones and browsers. (Morgan Stanley, April 2010)
• 11/11 - On Veterans Day: Inspiration
• 04/11 - DC seeks citizen input (YOUR input) on health IT policy. Comment now!
• 01/11 - To improve health and health care faster… (fill in the blank)
• 28/10 - TEDMED on owning death: Sekou and Steve perform, Alexandra Drane on Engage With Grace
• 27/10 - Day 1 of TEDMED: Charity Tillemann-Dick, e-patient
• 23/10 - How One Cancer Center Lets Patients Call the Shots
• 22/10 - Why can’t medical records have basic Wikipedia features?
• 22/10 - Texas Tribune: David Blumenthal on EHR
• 20/10 - Fixing Those Damn Lies
• 18/10 - Twitter: filter, suggestion box, idea machine, window
• 17/10 - Atlantic: Lies, Damned Lies, and Medical Science
• 14/10 - No social network Rx? Malpractice!
• 14/10 - First Annual Society for Participatory Medicine Cocktail Reception
• 12/10 - Participatory Medicine Grand Rounds
• 11/10 - Constant Beta vs. Evidence-Based Policy: Tension in the Data Continuum
• 11/10 - Building a Research Agenda for Participatory Medicine
• 06/10 - e-Patients.net hosts Grand Rounds
• 06/10 - Sneak peek: MyHospitalIdea.com – consumer-driven improvement
• 05/10 - Regina Holliday is not special!
• 04/10 - The presence of patients changes public conversations about health care
• 02/10 - “Empowered Patient” special on CNN
• 02/10 - Readers Digest: “Doctors confess their fatal mistakes”
• 29/09 - e-Patient Connections 2010
• 27/09 - “Another Devastating Diagnosis”: JoPM Editor Jessie Gruman undergoes surgery for a fourth cancer
• 27/09 - What is the ROI on love?
• 24/09 - Article: The Rise of the Empowered Patient
• 22/09 - What can surgeons learn from patients?
• 22/09 - Journal of Participatory Medicine Releases New Content
• 21/09 - Truth is stranger than fiction – and deceptive websites are all too plentiful
• 20/09 - Informed Medical Decision-Making: the challenges of doctor-patient communication
• 17/09 - The Unwilling E-Patient: Learning to use my mother-of-a-patient voice
• 15/09 - The Power of Mobile (Video)
• 14/09 - NPR: Three Tips for Picking a Better Doctor
• 14/09 - Open Health Data is Here. Welcome To The Great Data Divide!
• 13/09 - The Power of Mobile
• 09/09 - Dealing – together – with medical error
• 07/09 - Doctors Say One Thing, Patients Hear Another
• 02/09 - Hand Hygiene Saves Lives: video for hospitals to show newly admitted patients
• 01/09 - Job openings at ONC for State HIE
• 01/09 - Caremark, Prescriptions and Personal Information
• 30/08 - E-patients, Cyberchondriacs, and Why We Should Stop Calling Names
• 28/08 - “Are You Safe?” patient safety awareness video
• 26/08 - A Troubled Trifecta: Peer Review, Academia & Tenure
• 24/08 - “Blogs are the foundation in a world of streams”
• 23/08 - “Why Can’t Medicine Be Like Car Talk?”
• 19/08 - “How to become a more effective e-patient” (and clinician): lecture at Duke by Dr. Charles Smith
• 19/08 - Rheingold, Nelson, and Engelbart
• 17/08 - Should Patients Read Doctor’s Notes? Wrong Question.
• 12/08 - Medical Self-Care: The Doc Tom interview in Mother Earth News
• 10/08 - Next history lesson: Doc Tom (and the Graedons) in the way-back machine
• 09/08 - Living N=1
• 09/08 - Patient Communities: Which Way Forward?
• 08/08 - Reflections after a specialist visit *without* OpenNotes
• 07/08 - Must-hear: four Journal of Participatory Medicine contributors discuss how we know what we know
• 05/08 - Blowing your mind with Doc Tom’s seven laws of self care
• 03/08 - Why Victor Montori joined the Society for Participatory Medicine
• 03/08 - We’re quoted in PBS Newshour online
• 02/08 - Essential e-patient topic: understanding the challenges of pathology and diagnosis
• 02/08 - “Give Us Our Dammed Data” – Regina Holliday
• 26/07 - Majority of consumers use social networks to influence buying decisions (Gartner)
• 25/07 - Why Mark Boguski joined the Society for Participatory Medicine
• 21/07 - Moving the mountain: Producing evidence and results on methods for better care
• 20/07 - Dear White House: The Personal Data Challenge
• 20/07 - Initial OpenNotes report: project description and baseline attitude survey
• 19/07 - CMS slides from the Meaningful Use rules announcement
• 19/07 - Susannah Fox on BBC’s “Americana” on US mobile internet usage
• 18/07 - Laugh, Sing, and Eat Like a Pig
• 16/07 - Crowdsourcing a Survey: Health Topics
• 15/07 - HHS posts Consumer e-Health job. Apply by 8/16.
• 15/07 - Pandas, Lobsters, and Health Care
• 13/07 - Mobile, Social Health at the National Library of Medicine
• 09/07 - Why Kent Bottles, MD joined the Society for Participatory Medicine
• 08/07 - Why Gary Schwitzer joined the Society for Participatory Medicine
• 07/07 - Maggie Mahar on Doctors & Patients Sharing Information
• 07/07 - Collaborative Care Technology Working Group forms to accelerate improvement in primary care, patient participation
• 04/07 - First anniversary of our Declaration of Participation. Please renew!
• 02/07 - In the UK, over-50s getting online faster than anyone else
• 02/07 - Healthcare.gov goes live: terrific site on health coverage options
• 01/07 - Chilmark: “Where is the consumer in HIEs?”
• 30/06 - Hm: Because of viewing my visit notes, I did something better.
• 27/06 - “You’re 100% alive or 100% dead at any given moment”
• 26/06 - National Library of Medicine’s ePatient Conference
• 21/06 - Paul Roemer’s e-patient story: Cancer, who’s in charge here?
• 17/06 - Patient Communities… at Walgreens?
• 16/06 - Health Geek Tip: Abstracts are ads. Read full studies when you can.
• 15/06 - OpenNotes background information: WIHI webcast and Ted Eytan post
• 14/06 - “Over My Dead Body”: Why System Usability Matters
• 13/06 - Innovators speak up! How should we rename “Community Health Data Initiative”?
• 12/06 - “OpenNotes” project begins: what happens when patients can see the physician’s visit notes?
• 11/06 - Nice summary of definitions of “Health 2.0” etc
• 11/06 - e-Patients and doctors both, wise up. If you haven’t already.
• 09/06 - Why a Patient 2.0 Panel at the Health 2.0 DC conference?
• 08/06 - Health 2.0 DC: Passion and Execution at Scale
• 07/06 - Great news from “Mama Lion” Engelman and daughter
• 06/06 - Community Health Data Initiative: vast amounts of health data, freed for innovators to mash up!
• 02/06 - Making Health Data Sing (Even If It’s A Familiar Song)
• 26/05 - e-Patient Judy Feder’s time runs out
• 24/05 - Gov 2.0 Expo: Health Geek Guide
• 24/05 - It Takes Guts To Be A Neuroendocrine Patient: A Story of Participatory Medicine
• 22/05 - Donna Cryer’s “I am an e-patient” story: e-patient advocate to the FDA
• 21/05 - A New Conversation About Health Privacy: Who’s In?
• 20/05 - Big, deep Time article on “oversharing” & privacy
• 20/05 - “If fire were invented today”: empower the young
• 18/05 - Through the Land of Smoke and Mirrors: An e-Patient’s Odyssey
• 18/05 - Patients Like Me beats Lancet Neurology by a mile
• 17/05 - “What I’ve Learned from e-Patients”: Doc Tom and Dan Hoch, 2005
• 16/05 - Society’s ICSI keynote makes front page of Star-Tribune
• 13/05 - Participant-Entrepreneurs: Innovating Toward Better Health
• 11/05 - Frequently Asked (But Unanswered) Questions About E-patients
• 10/05 - Patient-centered care: coordination and putting the compliance shoe on the clinician’s foot
• 08/05 - “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation.
• 05/05 - The Power of Data and the Power of One
• 04/05 - Health Geek Radio: Adam Bosworth’s Straight Talk Express
• 01/05 - The Decision Tree: How Better Health Can Scale
• 28/04 - “The stage is being set for patient-driven disruption”
• 25/04 - Joe Kvedar’s “cHealth blog” (Connected Health)
• 25/04 - Dennis Quaid’s “Chasing Zero”
• 23/04 - Teaching HIPAA with a Seinfeld clip
• 22/04 - Insights on how the HITECH stimulus plan is working
• 22/04 - Save lives first, *then* compete: Simple Interop for Healthcare
• 19/04 - Health 2.0 Europe: A Moveable Feast
• 16/04 - Testimony submitted to the Meaningful Use workgroup (and an urgent call for citizen participation)
• 15/04 - The HealthCare Pyramid – Views from the Apex and the Base
• 14/04 - Tell HHS: What’s the role of patient generated data in Meaningful Use?
• 12/04 - Health Data is Useful… if it Informs Conversations
• 10/04 - What my mom takes to the doctor
• 02/04 - A Patient-Centric Definition of Participatory Medicine
• 26/03 - Video message to medical students learning Medicine 2.0
• 25/03 - Healthcare’s Privacy Problem (Hint: It’s Not What You Think It Is )
• 24/03 - Chronic Disease in Data and Narrative
• 23/03 - Librarians and ePatients as Partners
• 23/03 - NPSF’s magnificent Universal Patient Compact
• 22/03 - Why is participatory medicine such a tough sell?
• 19/03 - e-Patients, send video messages to @Berci’s med students
• 18/03 - EHR Etiquette and the Importance of Eye Contact in Clinician-Patient Communication
• 17/03 - What would a checklist for patients look like?
• 16/03 - Second wave of comments on Health IT safety issues
• 15/03 - Patient Stories on Health Web Sites Can Not Always Be Trusted
• 12/03 - Is Your Healthcare Practice Patient-centered?
• 10/03 - Calling All Physicians: Support the Participatory Medicine Movement
• 09/03 - Are consumers at the bottom of the evidence pyramid?
• 08/03 - Patient to doctor: “Why aren’t you harder on me?”
• 04/03 - VA data glitch mimics MIT’s
• 04/03 - Healthcare journalists point out difficulty of using Joint Commission’s hospital quality site
• 04/03 - All Together Now: The Internet Does Not Replace Health Professionals
• 03/03 - Designing for Better Health
• 01/03 - E-Patient Erin Proves a Point
• 26/02 - What do YOU want from the Society for Participatory Medicine?
• 24/02 - Testimony submitted to the Adoption/Certification Workgroup for its Feb 25 meeting
• 21/02 - “Alone we are rare. Together we are strong.”
  Rare Disease Day 2/28/10
• 20/02 - Panelist questions for ONC’s 2/25 hearing on EHR patient safety issues
• 19/02 - Proposal for a health data system to support urgent cancer patients and wounded warriors
• 18/02 - Some people just won’t take death for an answer.
• 18/02 - What to do about “the cream of the crap”? ONC’s Adoption/Certification Workgroup meeting
• 17/02 - E-patients.net = suggested reading
• 14/02 - The Decision Tree: What to Expect When You’re Expecting a Long Life
• 13/02 - Data-Driven, Patient-Centered Health Care: A #WhyPM Video
• 12/02 - The e-Patient Salute
• 11/02 - Privacy can kill, openness can heal
• 06/02 - Who are you, DarthMed?
• 03/02 - Pay me now or pay me later.
• 01/02 - ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”
• 01/02 - Participatory Medicine in Time magazine
• 31/01 - What’s the point of Health 2.0?
• 21/01 - Health Sites: Some Are More Equal Than Others
• 20/01 - Unleash the Hot Talent: A Letter from a Patient
• 16/01 - Health 2.010: New Year, New Era
• 15/01 - Video: If Air Travel Worked Like Health Care
• 14/01 - Health data rights on CNN
• 06/01 - The Invisible Stakeholder:
  Why America Needs a Patient-in-Chief
• 02/01 - My Father’s Medical Record Fiasco

2009 (186)

• 31/12 - What’s in your… bucket queue?
• 27/12 - “The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009
• 22/12 - Access is (almost) everything
• 20/12 - PeoplesPharmacy.com in NYTimes: “Not All Drugs Are the Same After All”
• 18/12 - “Concern that sharing information with patients may cause sustained psychological distress is probably unfounded”
• 16/12 - Ahem. :-)
• 15/12 - What part of “Give us our damn data” do you not understand?
• 12/12 - 2010: The Year of Open Streams & Fax Machines
• 10/12 - Journal of Participatory Medicine cited on Scientific American blog
• 10/12 - Stupid Cancer Show
• 10/12 - Making Healthcare Better through Participatory Medicine
• 05/12 - Our Bodies Ourselves: support this pioneer of empowered, participatory healthcare
• 04/12 - Health News Review launches new site with improved e-patient training
• 01/12 - Inviting Controversy: David Eddy at ICSI
• 30/11 - Shared Decision Making: Informed Consent v. Informed Choice
• 27/11 - Terrorized By The ‘War On Cancer’
• 26/11 - Engage With Grace
• 23/11 - A new blog worth noting: “Evidence In Medicine”
• 21/11 - Woman Loses Health Insurance Due to Facebook
• 20/11 - The Pew Internet/Health FAQ
• 18/11 - A Mission 2 End Diabetes
• 16/11 - ICMCC: Perhaps the single most valuable e-patient info site
• 16/11 - Participatory medicine and health data rights on NPR
• 15/11 - MITSS: Much-needed support after medical errors
• 15/11 - From Ted Eytan’s blog: “Now Reading: Patients actually want their entire medical record”
• 12/11 - #FDASM: + ca change, + c’est la meme chose
• 11/11 - From incurable to “We can now call you cured”: Cheryl Greene’s story
• 10/11 - Regina Holliday’s “73 cents” story on NPR
• 09/11 - Why Participatory Medicine?
• 08/11 - Tell the FDA the whole story, please
• 01/11 - Low-Tech Models of Participatory Medicine: The Astounding Results of Group Prenatal Care
• 29/10 - Clinical Trial Data Rights?
• 28/10 - The internet is changing healthcare – video from Reshape09
• 24/10 - Cindy Throop’s personal story of Participatory Medicine
• 21/10 - Journal of Participatory Medicine Launches at Connected Health
• 15/10 - A quote I won’t soon forget
• 14/10 - Superheroes and rock stars at the Institute of Medicine
• 13/10 - #WhyPM?
• 12/10 - Why the Journal of Participatory Medicine?
• 09/10 - Call for Submissions: Grand Rounds next week is on Participatory Medicine
• 05/10 - Christensen/Hwang: “Power to the Patients” (The Atlantic)
• 04/10 - Recommended 2-minute video: “Patient Revolution”
• 03/10 - “Doctors Are Killing Their Profession, the Healthcare System and Their Patients with Paternalism”
• 02/10 - Participation Matters
• 30/09 - A Lifetime of Participatory Medicine Can Start With Maternity Care
• 29/09 - Keep an eye out for tomorrow morning’s post
• 29/09 - Journal of Participatory Medicine and e-Patients
• 28/09 - Social media and healthcare: hospitals lead
• 27/09 - What Participatory Medicine can learn from a $2,467 phone bill
• 26/09 - Participatory Medicine around the world: the Seven Preliminary Conclusions reach India
• 25/09 - “HIPAA is SO 1996”
• 21/09 - Give patients (that’s you) access to all their (your) data – so they can help
• 18/09 - Why Electronic Medical Records Still Leak
• 17/09 - Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!
• 17/09 - Health IT Policy: E-patients want access
• 15/09 - Dennis Quaid on Electronic Medical Records (CBS Sunday Morning)
• 14/09 - HIPAA’s Broken Promise
• 12/09 - Regina Holliday’s mural is in the BMJ
• 01/09 - e-Patients and Participatory Physicians Creating Podcasts
• 27/08 - Senator Ted Kennedy was an e-patient
• 20/08 - Age of Participatory Medicine
• 18/08 - Social Media’s Promise for Public Health
• 14/08 - e-Patient Training Topic: National Article Reports Relative Risk, Not Raw Data.
• 12/08 - How to Rein in Medical Costs
• 11/08 - Trying to Measure the Quality of Health Information on the Internet: Is It Time to Move On?
• 10/08 - KQED examines realities of Canadian healthcare
• 06/08 - e-Patients: a high tech group wants our input (gasp!) on connected health. DO IT!
• 28/07 - What do YOU think they mean by “health reform”?
• 23/07 - Guest post on The Ideal Doctor/Patient Relationship (Kent Bottles, MD)
• 22/07 - A Participatory Medicine Story
• 16/07 - Shared Kismet: Wikipedia and the NIH
• 15/07 - Civil rights activist Dorothy Tillman vindicated
  a year after arrest for demanding medical records
• 14/07 - E-patients in U.S. News
• 10/07 - I’m sick of hearing Washington talk about savings “over ten years”
• 09/07 - The Economist picks up the meme again
• 08/07 - Participatory Medicine at PdF09: Can we get a do-over?
• 01/07 - Dx: Revolting.   Rx: Revolt.
• 29/06 - US Health Care Reform: A Contemporary Example of
  Goodhart’s Law?
• 28/06 - Question For President Obama
• 26/06 - My Right to Data, Happiness, and a Long and Healthy Life
• 25/06 - e-Patients Discover Unrecognized Side Effects
• 23/06 - “No political power center for regular people”
  in health reform
• 22/06 - In Iran and in the US Health Care System,
  Citizens’ Access to Computable Data
  Frees Everything!
• 19/06 - “Economic Euthanasia On the Rise”
  (Veterinary Practice News)
• 19/06 - Imagine someone had been managing your data: next anecdote
• 16/06 - Participatory Medicine: Blending Traditional Medicine with “Health 2.0”
• 15/06 - e-Patients Are Proud Deviants!
• 14/06 - Social Healthcare: “Medicine in the Age of Twitter”
• 10/06 - The Social Life of Health Information
• 10/06 - “Moms, do not give up.”
• 07/06 - Dossia, Microsoft HealthVault & Google Health:
  Illegal in NJ?
• 06/06 - “Give us our data”:
  my talk at the NeHC board meeting
• 04/06 - e-Patients Demand: Put An End To
  Data-Hugging Disorder
• 04/06 - For Want of a Surge Protector…
• 30/05 - David Kibbe & Mark Leavitt : Openness vs. Opacity
• 29/05 - Getting health insurance with a pre-existing condition
• 28/05 - Atul Gawande examines why health costs are high some places and lower others
• 27/05 - Adopting a Style for Improved Health Outcomes
• 26/05 - X PRIZE Blog Rally:
  $10M for Health Care Innovators
• 25/05 - The power of listening and being heard
• 20/05 - Another great reason to be a participatory e-patient
• 19/05 - Will The Great Recession Create Millions of e-Patients?
• 18/05 - Participatory Medicine: What Is It For You?
• 18/05 - Meaningful Use: The Elephant IS In The Room
• 15/05 - EMRs: “Would you take it if it were FREE?”
• 13/05 - Next stage in mapping my hospital’s clinical data to PHRs
• 13/05 - Consumer Partnership for eHealth’s thoughts on Meaningful Use
• 12/05 - PLEASE, No More Magical Thinking in HIT!
• 11/05 - Participatory Medicine as Revolution! Think Critically! Communicate!
• 10/05 - The Markle Foundation’s work on Meaningful Use
• 10/05 - “Meaningful Use”: a pivotal definition for new-wave medical records systems
• 06/05 - Democracy and Healthcare
• 06/05 - AHRQ embraces Participatory Medicine.
  The President? Not So Much!
• 05/05 - Open Access to Publicly-Funded Research: Let Them Eat Cake?
• 02/05 - Stress: the New Normal for Cancer Patients?
• 30/04 - Immediate data requested. Please share with breast cancer patients everywhere.
• 30/04 - Health 2.0 / Ix Conference: What About Minority Representation?
• 30/04 - Patients first. Doctors second.
• 29/04 - Health 2.0 meets Ix: The Rise of the Patient Voices
• 26/04 - An e-Patient is Born: Elyse Chapman’s story
• 23/04 - Mobile could be a game-changer – but only for those who get in the game.
• 21/04 - The Parable of the Wicked EMR
  (guest post by David Kibbe)
• 20/04 - Applying Participatory Principles to EHRs/PHRs
• 19/04 - Completing my list of billing code errors
• 18/04 - Globe follow-up on my hospital’s decision to stop transmitting billing data as clinical history
• 17/04 - Medicine Goes Digital: Special Report from the Economist
• 17/04 - Remembering Doc Tom
• 17/04 - Participatory Democracy, Participatory Medicine
• 17/04 - Quick update on moving my data
• 14/04 - E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work
• 13/04 - Electronic Health Records Raise Doubt
• 12/04 - Encoding information is a key part of I.T.
• 11/04 - Surprise: doc finds it’s useful having records online
• 09/04 - The I in IT stands for Information
• 06/04 - When is “Information Therapy” Simply Learning?
• 06/04 - You’re Not Crazy After All
• 05/04 - An angry veterinarian says “I don’t understand…”
• 03/04 - A wonderful story of participatory medicine
• 01/04 - Imagine someone had been managing your data, and then you looked.
• 30/03 - Mobile, social technology and the impact on health care
• 30/03 - A business thinker asks: what will it take to get traction?
• 25/03 - Electronic Medical Records? Yeah, Not So Much
• 25/03 - If you have been the victim of clinical harm…
• 24/03 - e-Patient Judy Feder:
  Patient Community Knowledge Saves a Life
• 23/03 - Dr. Reuben deeply regrets that this happened!
• 19/03 - Let’s hear it for the d-patient e-patients. :-)
• 18/03 - Imagine someone had been managing your money and you thought you weren’t qualified.
• 17/03 - I Am “A Nobody & A Nothing” & I’m Proud Of It!
• 15/03 - Bartering for your health
• 15/03 - Who gets to say what’s reliable, part 2:
  A shoddy podcast – from an MD’s company
• 12/03 - Stars & Stripes (!): Patients urged to take charge of their care
• 12/03 - Opaque, Inc.
• 10/03 - Social Networking in Health: e-Patients, Data & Privacy
• 10/03 - Crowdsourced Healthcare Reform: The First Round
• 09/03 - Health Affairs: Take Two Aspirin and Tweet Me in the Morning
• 08/03 - Profound illustration of effects of stress on well-being
• 08/03 - When someone can read your medical records, is that “social networking”?
• 06/03 - Action! $300 Million to Actively Promote Participation & Improve Care
• 05/03 - Boston Globe Kills Health & Science Section
• 04/03 - RateMDs.com: Medical Justice’s approach is “repulsive”
• 01/03 - I’m putting my data in Google and HealthVault
• 28/02 - Rare Disease Day 2009
• 27/02 - MedPage: Negative Data on Seroquel Suppressed by Drug’s Maker
• 26/02 - Live Blogging the Boston Summit on Transforming Healthcare
• 25/02 - Participatory medicine might have reduced this tragedy
• 24/02 - Why Technology is No Longer Optional in Public Health
• 22/02 - Medpedia: Who gets to say what info is reliable?
• 21/02 - Disruption and the healthcare bubble
• 14/02 - A thousand points of pain
• 13/02 - Welcome VisibleBody.com
• 13/02 - Ted Eytan’s Twitterview
• 13/02 - Twitter, Facebook, and e-patients
• 04/02 - Raise Awareness of the Reality of Rare Disorders
• 02/02 - “Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT
• 30/01 - The Wellsphere Blogging Controversy
• 27/01 - Computers reduce odds of in-hospital deaths
• 27/01 - The e-patient white paper: Seven Preliminary Conclusions
• 22/01 - Clinical trials: Unfavorable results often go unpublished (Science Blog)
• 18/01 - Moving from “medicine as individual heroism” to “medicine as a team sport”
• 15/01 - An e-patient call to arms
• 15/01 - Health Care Law Slides
• 13/01 - In the Spin III: The Smart Resident
• 12/01 - FDA Gives Light Scrutiny to Investigators’ Financial Ties
• 09/01 - Teens, Sex and Technology
• 09/01 - Physicians as coaches, part 2: “Embrace knowledge symmetry”
• 08/01 - Doing Our Best to Blow Your Minds (Emerging Trends in Chronic Disease Care)

2008 (202)

• 31/12 - “Physicians are coaches. Patients are players.”
• 29/12 - Patient Voices at CHCF’s Chronic Disease Care Conference
• 27/12 - Women and Health Care Disparities: Who Dies and Who Profits?
• 26/12 - Malpractice cost impact
• 23/12 - In the Spin II: You and Your Billing Code
• 17/12 - NIH Summit on Health Disparities
• 16/12 - NeuroTalk Parkinson’s Group Brings About Change at Michael J. Fox Foundation
• 11/12 - Breaking News at Hematology Meeting – for Patients
• 10/12 - Personalized Medicine, the Next Frontier
• 09/12 - Saving Lives, Old-School Style
• 07/12 - Virtual Participatory Medicine Town Meeting
• 05/12 - Internet diagnoses: Trust them or toss them?
• 05/12 - New Health Journalism Blog
• 04/12 - How We Die
• 03/12 - A Fatally Flawed Medical Educational Model
• 03/12 - “The 100 Percent Organic Man”
• 02/12 - Cyberchondria: Old Wine in New Bottles
• 30/11 - Florence Nightingale, passionate statistician
• 29/11 - “I can buy a damn good amputation…”
• 28/11 - “The Evidence Gap”: Pharma impedes patient access to better treatment
• 26/11 - Engage With Grace
• 25/11 - Reducing Disparities, Spreading Improvement
• 24/11 - Illness in the Age of ‘e’: A case study in participatory medicine
• 20/11 - No *other* conflict of interest, huh?
• 18/11 - Lies, Damn Lies And Statistics: Collective Statistical Illiteracy
• 17/11 - Making sense of health statistics
• 16/11 - Your Health Information at Your Fingertips
• 13/11 - Confessions Yield Debate
• 13/11 - Using Aggregate Data to Help Public Health
• 12/11 - The Risks of Going All Digital
• 12/11 - Information Silos Are Everywhere. But So Is The Internet!
• 11/11 - Do Doctors Read?
• 11/11 - Happy Dogs in a Pile of Sticks (Spreading Improvement in Chronic Disease Care)
• 10/11 - How Good Are Doctor Rating Sites?
• 10/11 - Patient Involvement Makes People Smile
• 06/11 - In the Spin: Death by Referral
• 05/11 - Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?
• 03/11 - Can you say “Ludique”?
• 03/11 - Participatory Medicine: Text of my speech at the Connected Health symposium
• 03/11 - When a doctor is a patient: experiencing a medical error
• 03/11 - Help Me Choose: Sessions at the Chronic Disease Care Conference
• 30/10 - Health 2.0 & The Widening Digital Divide: A Call to Action
• 30/10 - Participatory Medicine, Connected Health
• 28/10 - Wall Street Journal goes e-Patient
• 27/10 - How can we have informed patients, if hospitals won’t inform?
• 26/10 - Placebos & the Doctor-Patient Relationship
• 26/10 - A Glimpse of American Healthcare of the Future (My Talk at Health 2.0)
• 24/10 - Connected Health Symposium 2008
• 24/10 - “How to Take American Health Care From Worst to First”
• 22/10 - Quality of Care & e-Patients
• 21/10 - 41% of Adults are “Activated Patients”
• 20/10 - All MRIs Are Not Created Equal
• 19/10 - Overtreatment – sometimes against our will
• 19/10 - One Doctor’s Prescription for Fixing U.S. Healthcare
• 18/10 - Extending Your Healthcare Dollar
• 16/10 - Learning from medical errors
• 15/10 - Crowdsourcing the Definition of Participatory Medicine
• 15/10 - Blogging to Save a Father’s Life
• 14/10 - Complex Patient Choices on Life or Death
• 13/10 - Spellchecker
• 11/10 - “When physicians are ready to promote patient empowerment / engagement, what do we want them to do?”
• 09/10 - Mobilizing Support for the CIS
• 09/10 - Health 2.0 Northeast Meeting Review
• 06/10 - Patient Power: Andrew Schorr
• 03/10 - Response to Tara Parker-Pope’s “You’re Sick. Now What?”
• 03/10 - Revolution Health Gets Gobbled Up By Everyday Health
• 01/10 - New York Times Health Section
• 30/09 - Taxpayer Access: The NIH Public Access Policy
• 29/09 - Crowdsourcing a Survey: Health Topics
• 27/09 - Please vote for GlobalCures
• 26/09 - The Im-Patient Consumer
• 24/09 - Cognitive Surplus & Tough Economic Times: An Explosive Cocktail?
• 23/09 - Dr. Val Jones Leaves Revolution
• 22/09 - Pareto’s Tyranny vs. the Paradox of Rarity: Why ACOR succeeded
• 19/09 - For Sale: Revolution Health
• 18/09 - Cloud computing puts your health data at risk?
• 18/09 - e-patients: How they can help us heal healthcare, chapter 1
• 16/09 - Healthcare Quality Movement conference in Boston
• 15/09 - Nexthealth: a picture worth a thousand words
• 15/09 - Participatory Medicine at NIH, part 2
• 08/09 - Safety Net Populations
• 05/09 - Comarow on Quality
• 04/09 - Not Just a Pretty Picture
• 03/09 - Eyeballs AND Data, Please
• 02/09 - What’s in *your* MIB?
• 26/08 - Health System Change: Collaborative Researchers
• 25/08 - Doctors’ Digital Footprints
• 13/08 - Latinos’ sources of health information
• 07/08 - Monique tells why she doesn’t see herself as “e”
• 06/08 - e-Patient finds henna relief for Hand-Foot Syndrome
• 01/08 - New e-patient population estimate
• 31/07 - Interview: Mary Matthiesen, Conversations for Life
• 29/07 - Is ANYONE responsible for the whole patient?
• 28/07 - Medpedia – where are the patients??
• 26/07 - Take control of your images!
  Where to get DICOM readers
• 25/07 - An e-Patient Hero Leaves Us
• 22/07 - Surprise! Students Find Inaccurate Health Information Online
• 19/07 - Now THAT’s an e-participating patient
• 16/07 - Can Professional Medical Societies Further the Ideals of Participatory Medicine?
• 15/07 - Steal these slides
• 14/07 - Statistics, Genetics, and Playing the Lottery
• 10/07 - Are on-line pharmacies a threat to participatory medicine?
• 09/07 - E-patients with Agency (or Attitude?)
• 08/07 - The Two Toms
• 04/07 - Observations of Daily Living and Personal Health Records
• 04/07 - Patriotic Participation
• 03/07 - CNN’s “Empowered Patient heroes” recognizes Tom Ferguson and Gilles Frydman
• 30/06 - Pez Dispensers = Inspiration
• 26/06 - Doc Searls: patient as platform and “point of integration”
• 26/06 - Information Overload: Problem or Not?
• 25/06 - Common Framework for Networked Personal Health Information
• 23/06 - Participatory Medicine at NIH
• 23/06 - Welcome, “Reasonably Well”
• 20/06 - Have you ever heard of ODL?
• 19/06 - Data and Insights on Minority Populations
• 18/06 - Physician, Teacher, Farmer
• 17/06 - Psych Central in Time’sTop 50
• 17/06 - Participatory Medicine: an End to Rational Ignorance in Medicine
• 16/06 - CCHIT, PHR and the Lack of e-Patient Representation
• 15/06 - Parade should have asked e-patients
• 14/06 - Information Therapy Conference
• 11/06 - Diabetes Reloaded
• 09/06 - An e-Patient discusses how technology helped him
• 07/06 - CaringBridge, CarePages: community support sites
• 06/06 - E-patient Interview: Keith Schorsch
• 06/06 - How do US journalists cover medical news?
• 05/06 - Nice Review at Consumer Reports
• 03/06 - Unimplementable standards: seedie.org
• 02/06 - e-Patient stories: several types
• 30/05 - In memorial: e-Patients Have Lost an Important Leader
• 29/05 - Here Comes Everybody
• 28/05 - What can you do while you’re sitting in the doctor’s office waiting room?
• 27/05 - Two Research Papers Published on PatientsLikeMe
• 22/05 - What patients really want
• 21/05 - Health Commons
• 20/05 - Google Releases Google Health
• 19/05 - Consumers talk back to CNN’s Empowered Patient
• 15/05 - The Plausible Promise of Participatory Medicine
• 15/05 - Patient Activism
• 14/05 - Electronic Medical Records No Panacea
• 12/05 - Um, let’s start by just being polite
• 11/05 - Randy Pausch, empowered patient / participatory medicine
• 09/05 - Consumers? Wha?
• 06/05 - Sheryl Stein’s info hunt: an e-patient odyssey
• 06/05 - Participate in defining “Health 2.0”
• 05/05 - Upcoming Conferences
• 01/05 - E-patient Interview: Sheryl Stein
• 28/04 - The Wisdom of Patients Report
• 23/04 - E-patients Unite To Document Problems with Generic Drug
• 22/04 - Why Doesn’t My Doctor Answer My Email?
• 19/04 - Wikipedia’s Arcane Rules Censor Health Information
• 18/04 - E-patient Interview: Amy Tenderich
• 17/04 - CNN Takes on Doctor Ratings… And Gets it Wrong
• 16/04 - Google Says, “Don’t Forget Your Keywords So Our Software Gets It!”
• 16/04 - No Secrets
• 16/04 - E-patient Interview: Stirrup Queen
• 15/04 - Patients Rating Hospitals? What Next!?
• 15/04 - “You can do it. We can help.”
• 14/04 - Health Care Consumerism
• 13/04 - Doctors Discuss How to Deal with e-Patients
• 13/04 - Impact of “Fee for Service” payment
• 09/04 - Prevention is the Best Investment
• 08/04 - Neither patients nor the Internet nor the healthcare system is flawless.
• 05/04 - Serial referral delays are harm
• 03/04 - Thank you, Dr. Tom
• 03/04 - Lookout for Illness! Here it Comes!!
• 28/03 - NON-Practicing Patients
• 27/03 - Social DNA at 23andme: who owns your genome?
• 24/03 - “Practicing Patients” (New York Times Magazine)
• 21/03 - Minnesota wrong kidney tragedy, part II
• 18/03 - E-patients might have prevented Minnesota wrong kidney tragedy
• 15/03 - When the Patient is a Yahoo
• 14/03 - Trusted doesn’t mean accurate. Safe is almost certainly stale
• 12/03 - Flashback to 2001
• 12/03 - Patient 2.0
• 06/03 - Susannah Fox at Health 2.0
• 06/03 - Recruit doctors. Let e-patients lead. Go mobile.
• 05/03 - “Succeeding in online health” lunch meeting
• 04/03 - e-Patients Lead The Way at Health 2.0 Conference
• 26/02 - Empathy via email
• 21/02 - Degrees of Access
• 19/02 - Friends, Family & Post-surgical Outcomes
• 15/02 - The Players in the PHR Space
• 14/02 - Technology as a means, not an end
• 12/02 - Go online. Not too much. Mostly…?
• 08/02 - Harnessing Openness
• 06/02 - More 2.0 Definitions
• 06/02 - Consumer Resources
• 01/02 - Women Healthcare Executives & e-Patients
• 31/01 - Wikis: Cautionary Tale 2.0
• 31/01 - It’s Not Just about Healthcare…
• 29/01 - Medscape Editorial
• 28/01 - Hey there, e-Patient Dave!
• 25/01 - Women — You’ve Been comScored!
• 25/01 - New York Times and e-Patients
• 19/01 - The WELL
• 15/01 - Two Views on e-Patients, and the Doctors who See Them
• 14/01 - E-health Reality Check
• 14/01 - Medical Googlers, Part 2
• 14/01 - Medicine for the People
• 06/01 - Rate a Doctor?
• 03/01 - Visiting hours