Update: My notes are now online: Mind the Gap: Peer-to-peer HealthCare.
The newest material is in the section entitled, “Getting Past the Early-Adopter Stage” — roadblocks, opportunities, and beacons for change (patient leaders, clinician leaders, and technology leaders). Not surprisingly, the NIH audience members suggested adding “policy leaders” to that lineup. It was an extraordinarily good discussion — I’ll post a link to the video when it’s live.
I’ll speak tomorrow at the National Institutes of Health as part of their Mind the Gap lecture series which “explores a wide range of issues at the intersection of research, evidence, and clinical practice—especially areas in which conventional wisdom may lead us astray.”
You can watch the webcast starting at 10am Eastern U.S. time. If you miss it, the video will be archived and I plan to post the text of my remarks (my slides are already up on pewinternet.org).
Much of what I’ll say is a synthesis of what I’ve written and read in the comments here on e-patients.net, including the following posts:
Examples, please: peer-to-peer healthcare
Peer-to-peer healthcare: Crazy. Crazy. Crazy. Obvious.
And here are the reports from which I’m drawing most of my data and insights:
Social Networking Sites and Our Lives
The Social Life of Health Information, 2011
I will also retell (in a nutshell) Deborah Copaken Kogan’s amazing story in Slate from July 13, 2011:
How Facebook Saved My Son’s Life
And finally, a special thank you to Regina Holliday, whose paintings are featured in the last two slides of my presentation. Those images from The Walking Gallery are better illustrations of what I’m trying to convey in this talk than any chart or table I could possibly create.
We’d like to opportunity to tell NIH about our work. Perhaps you could suggest us to your Mind the Gap hosts.