Jessie Gruman: Poetry in Motion

By | September 11, 2014
 

This essay was written by Sarah Greene, co-founder of the Journal of Participatory Medicine and currently Founder/CEO of RapidScience.org.  “That the powerful play goes on, and you may contribute a verse.” – Walt Whitman, ‘O Me, O Life’ We New Yorkers have been...

Communicating the experience of illness in the digital age

By | July 23, 2014
 

At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing...

Rare Diseases: Powered by Patients

By | February 28, 2014
 

A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...

Mobile, social, health, care

By | November 15, 2013
 

A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you...

How do we know that social media is important to health care?

By | October 21, 2013
 

A cross-post from susannahfox.com… On Friday, I spoke at the Albert Einstein College of Medicine, along with Kevin Pho, MD. During a planning call, the symposium organizers had shared results from a faculty survey: Fully two-thirds do not use social tools on a...

A parent speaks: “Our child’s disease is OUR disease”

By | July 19, 2013
 

Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...

Caregivers: a celebration

By | June 20, 2013
 

Becoming a caregiver seems to change people as health information consumers. They turn up the volume on every information source. They track down information as if it is a competitive sport.* They don’t let pay walls or office hours stand in their way....
Caregivers, please share your stories

Caregivers, please share your stories

By | May 28, 2013
 

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a...

Mother’s Day

By | May 12, 2013
 

We have posted many stories featuring mothers over the years. In celebration of Mother’s Day, a compilation: A Lifetime of Participatory Medicine Can Start With Maternity Care Through the Land of Smoke and Mirrors: An e-Patient’s Odyssey (“Mama Lion”...

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