Beautiful and comprehensive blog post from Regina Holliday about different types of patient advocates, the evolution of the patient as speaker, consumer, policy-igniter and her own work.
A short quote, but please read the whole article, it was so difficult to pick just a paragraph:
It is very easy to push aside someone’s story, if that story is only the bullet point on a slide or the footnote in an academic article. It is much harder to look away at the painting on someone’s back, screaming at you like so many wheals and welts. To know this image is someone’s story. To look at the painted eyes that look into yours and seem say, “I died, and it is all for naught if you do not act.”
If you do not already know Regina’s work and art, also check The Walking Gallery, and join us there with your health story.