Had chemotherapy and weeks after the treatment has ended, still feeling not quite yourself? You’re not alone. The memory and cognitive problems after receiving chemotherapy is known as “chemobrain.” As Ellen Clegg notes in The Cloud Over Chemotherapy, finally the medical profession is taking notice of years of patients’ complaints about this phenomenon and conducting the needed research. Better late than never, I suppose, but it does make you wonder — what were doctors thinking their patients were complaining about all those years? All just in their heads? Or a not well-explained but expected side effect of chemo?
John M. Grohol, Psy.D.
John M. Grohol, Psy.D. is one of the pioneers in online mental health and support groups, getting his start on the Internet in 1992 with depression support groups and advocacy efforts. He is a writer, researcher, and the publisher & founder of the Internet's leading mental health and psychology network, Psych Central, a founding corporate member of the Society for Participatory Medicine. Dr. Grohol sits on the editorial board of Computers in Human Behavior and does e-health consulting in his spare time.
Dr. Grohol is a founding member and treasurer of the Society for Participatory Medicine, and is also a member of the Association of Health Care Journalists.
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Anybody who spends a week on any ACOR community where people are treated with chemotherapy will read many stories about chemobrain .
I am not a doctor but know of chemobrain for 15 years. I know of chemobrain research for at least 10 years.
So what is the problem with all the medical professionals working in oncology who have not acknowledged the reality of this deep side effect? Too disturbing? Not explained? A hindrance? Have they been brainwashed by the pharma representatives? Something else?