The image above is from the blog post described below.
SPM board member-at-large Peter Elias MD is a recently retired family physician who says he’s always practiced participatory medicine, long before he knew it had a name. He’s contributing a terrific amount of his supposedly “spare” time to SPM, both as board member and as a driving force behind implementation and management of our “SPM Connect” community platform. A long-time social movements thinker, he’s always looking at the underlying principles and forces that make things the way they are (or could lead us to change). Today he wrote me this short email, which merits posting in its entirety.
Subject: Have you seen the stuff Jarche writes?
Harold Jarche blogs and lectures about management, learning, the nature of work and related topics. I enjoyed and learned from his stuff back when I was running a practice and doing administrative work for my hospital, and I still follow his blog.
His post from today, while not specifically about participatory medicine, involves concepts like autonomy, transparency, trust, relationships. I think his stuff overlaps with what we do in some interesting ways.
I’ve used self-determination theory in designing decision aids for shared decision making. Especially when it comes to trade-offs, patients and even family members have conflicting emotions and may not want to even hear about treatment options they have strong feelings or biases against without understanding them well. Understanding what patient’s are really concerned about instead of assuming https://www.ncbi.nlm.nih.gov/pubmed/26950308 and then providing patients with competence and letting them have autonomy increased their willingness to hear about all of their treatment options. Check out Deci’s book: Why we do what we do. Short, good read.