by e-Patient Dave | Jun 6, 2020 |
Guest post by SPM member Pam Ressler RN, MS of Stress Resources LLC. See bio at end. I have just finished co-teaching a month-long elective on the topic of pain to a group of rising 4th year medical students. In collaboratively planning the curriculum with my...
by e-Patient Dave | May 12, 2020 |
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve...
by e-Patient Dave | Mar 17, 2020 |
“The cure for anxiety is knowledge and preparation.” That line is from the hip and edgy (and smart) Stanford doc @ZDoggMD in the amazing live conversation on YouTube he had with his 12 year old daughter last Friday. Here are some resources. Society for...
by e-Patient Dave | Mar 9, 2020 |
The long-awaited rules on data access have been published this morning from two key parts of the US Department of Health & Human Services. I’ll expand this post with more links as we digest what’s been offered and will unfold in the coming week. The...
by e-Patient Dave | Mar 9, 2020 |
Six weeks ago we hosted the Patient/caregiver letter supporting proposed HHS rules on improving flow of our data. It’s a crowdsourced collection of stories of how patients suffered, were harmed, incurred costs or delays because their own health data wasn’t...
by e-Patient Dave | Feb 28, 2020 |
Now this is patient-centered care. This may be the most wonderful participatory innovation I’ve seen since OpenNotes in 2012. This one’s completely different: OpenNotes is about patient access to the medical record, but this one invites patients to see...
by e-Patient Dave | Jan 26, 2020 |
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive...
by e-Patient Dave | Jan 11, 2020 |
Editor’s note: this guest post by SPM member and lymphoma survivor Brad Power (LinkedIn) shares his journey to our society and our #S4PM2019 conference last October. Members can submit guest posts to our blog (guidelines). Join SPM here. Here’s the introduction...
by e-Patient Dave | Nov 24, 2019 |
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she...
by e-Patient Dave | Nov 19, 2019 |
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to...
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