By e-Patient Dave | August 3, 2018
It’s here: our Society’s new Doc Tom Awards are open for nominations! Spread the word, and join us at our second annual conference on October 17 for the award! If you don’t yet know about Doc Tom Ferguson, founder of the e-patient movement, read our... 
By e-Patient Dave | July 26, 2018
A new article in the open access BMC journal Implementation Science reviewed 48 articles about involving patients in projects that redesigned small and large parts of healthcare delivery. Conclusion: higher levels of engaging patients in the work led to higher level... 
By e-Patient Dave | July 15, 2018
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to... 
By e-Patient Dave | June 27, 2018
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon... 
By e-Patient Dave | June 19, 2018
I know there are numerous initiatives along these lines so please circulate this widely. Help publicize and share what others are doing to incorporate patient perspectives in the present and future of healthcare! I’ve received the following request from Luke... 
By e-Patient Dave | June 13, 2018
Email subscribers, I’m not sure the video below will come through to you – if it doesn’t, click the headline to come see it online. http://www.wtnh.com/ct-style/the-better-health-conference-helping-to-change-healthcare-as-we-know-it/1236774613 Last... 
By e-Patient Dave | June 5, 2018
This is so exasperating. For years we at the Society for Participatory Medicine have been among the leaders of the movement for patients to have access to their medical records, in EMRs and everywhere. We’ve blogged repeatedly (and advocated in DC) about patient... 
By e-Patient Dave | May 14, 2018
As regular readers know, this blog has long been friends with The BMJ (formerly the British Medical Journal), especially because of its world-leading Patient Partnership campaign including the Patient Advisory Panel, which includes several SPM members and has an... 
By e-Patient Dave | May 14, 2018
Posted today on our SPM Connect member forum by SPM vice-chair Joe Ternullo Join me in cheering on SPM members Lorraine and Gene Sacco, founders of the Reid R. Sacco Adolescent & Young Adult Cancer Alliance. (@AYACancerAllian) The Chronicle Episode “Beyond... 
By e-Patient Dave | April 27, 2018
In the interest of speed, this is a quick note for interested parties – apologies for minimal explanation. 90 minutes from now, 2:30 pm ET on Friday 4/27, at the Health Datapalooza conference in DC, people will gather in an “unconference” session to...
What Healthcare Can Learn from Mr. RogersAugust 7, 2018
Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”August 5, 2018
Announcing SPM’s new Doc Tom Awards. Nominations are open!August 3, 2018
Study: Engaging patients in co-design works. Join us at our conference!July 26, 2018
Patient Ownership of Data?July 22, 2018
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