by e-Patient Dave | Feb 28, 2020
Now this is patient-centered care. This may be the most wonderful participatory innovation I’ve seen since OpenNotes in 2012. This one’s completely different: OpenNotes is about patient access to the medical record, but this one invites patients to see...
by e-Patient Dave | Jan 26, 2020
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive...
by e-Patient Dave | Jan 11, 2020
Editor’s note: this guest post by SPM member and lymphoma survivor Brad Power (LinkedIn) shares his journey to our society and our #S4PM2019 conference last October. Members can submit guest posts to our blog (guidelines). Join SPM here. Here’s the introduction...
by e-Patient Dave | Nov 24, 2019
SPM member Brenda Denzler had Inflammatory Breast Cancer (IBC), which was followed by years of intractable symptoms that her doctors couldn’t diagnose – all their tests kept saying she was “fine.” “But I live with this body,” she...
by e-Patient Dave | Nov 19, 2019
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to...
by e-Patient Dave | Nov 1, 2019
This is a cross-post from my personal blog. The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s...
by e-Patient Dave | Jun 1, 2019
On June 4, 1919, Congress passed the 19th Amendment, giving women equal voting rights. (It was ratified by ¾ of the states, just in time for the 1920 elections.) Activists for patient power (and partnership) have often pointed to parallels of our movement with women...
by e-Patient Dave | Apr 11, 2019
What if you hired a financial manager to handle your money – a trusted professional, like that guy above – then discovered they didn’t know what they were doing, and your records were a mess? How would you feel? That’s pretty much what happened...
by e-Patient Dave | Apr 10, 2019
It’s a big anniversary, this spring – this week, even. Ten years ago the whole issue of personal health data exploded into the headlines. It was about something I wrote here, not having a clue it was any kind of a big thing, but it ended up on the front...
by e-Patient Dave | Apr 5, 2019
SPM member Jeanne Pinder has spent years crusading for price transparency with her startup ClearHealthCosts. She’s formed partnerships with WHYY in Philadelphia, been on CBS News, won awards for investigative journalism with NOLA.com and Fox 8’s...
by e-Patient Dave | Mar 27, 2019
This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010’s Salzburg...
by e-Patient Dave | Feb 21, 2019
The famous TED Talks site TED.com is the holy grail of many evangelists. Aside from the extraordinary visibility it gives your message, and aside from the validation of your message (the site’s tagline is “Ideas worth spreading”), it means...
by e-Patient Dave | Jan 31, 2019
Sara RIggare, one of the earliest members of our Society, has just received a great honor: Fokus magazine (“Sweden’s Time”) has named her “Swede of the Year” in medicine. In the photo from the award ceremony she seems appropriately...
by e-Patient Dave | Jan 7, 2019
On Facebook last Friday our member Carla Berg Nelson posted briefly about a new Psychology Today blog post, Data: the New Window into Humanity, by John Nosta. She tagged a number of other members (and non). I know and respect Nosta from his days creating a LinkedIn...
by e-Patient Dave | Dec 26, 2018
Editor’s note: this guest post by SPM member Gail Phillips shares the odyssey that led her through numerous related disciplines, eventually discovering our society and our conference last October. Members can submit guest posts to our blog (guidelines). Join SPM...
by e-Patient Dave | Dec 4, 2018
Our Society for Participatory Medicine is growing in membership and in projects and teams. If you’re a member, have you considered leading a team? If you’re not, have you considered joining? The message below was posted last weekend by co-founder and...
by e-Patient Dave | Nov 2, 2018
Lifetime SPM member Deborah Greenwood is a diabetes educator who has long believed in patient empowerment and participatory medicine. SPM welcomes posts authored by our members – see the guidelines. November is Diabetes Awareness Month. And November 14, 2018 is...
by e-Patient Dave | Oct 9, 2018
[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....
by e-Patient Dave | Sep 17, 2018
For updates, follow Casey’s tweets on the #CochraneForAll hashtag – tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog – “Thoughts and provocations on...
by e-Patient Dave | Aug 3, 2018
It’s here: our Society’s new Doc Tom Awards are open for nominations! Spread the word, and join us at our second annual conference on October 17 for the award! If you don’t yet know about Doc Tom Ferguson, founder of the e-patient movement, read our...
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
The Killing of Brian Thompson was AwfulDecember 30, 2024
Recent Comments