My research findings and their connection with real-life health care were given new life when I discussed them with Lisa Gualtieri, Josh Bernoff, Tim Edgar, and the audience at the Connected Health symposium. If you’re intrigued, watch a video of the panel and look for these highlights:
- Minute 2: Josh Bernoff’s opening remarks included advice about how to create a social application for life sciences without getting fired and pharmaceutical companies’ ever-decreasing appetite for risk.
- Minute 7: I talked about our increasingly mobile-enabled population (that is also increasingly being diagnosed with chronic diseases). Imagine a future designed by BJ Fogg and Roni Zeiger: a patient won’t get a new prescription without also being given an immediate, easy-to-execute opportunity to join an online patient network. (Read more: Patient Communities… at Walgreens? and No social network Rx? Malpractice!)
- Minute 10: Lisa describes her research into patient blogging, where people share intimate details and remain dedicated to the project even if they have very few readers. Measuring health outcomes is her ultimate goal.
- Minute 18: Tim asks the panel to describe lessons learned and Josh admonishes clinicians to know what resources are available to patients these days, singling out CaringBridge as an example.
- Minute 20: I talk about how some online communities are about making you feel loved at 2am – and that’s great – but then there are the patient networks that focus on science, on outcomes, on drug discovery. (Read more: Patient Communities: Which Way Forward?)
- Minute 23: Lisa talks about how social media and health education are not part of medical school curricula. She points to intermediaries, such as medical librarians, to bridge the gap between patients and providers.
- Minute 25: I talk about what can’t scale (health professionals, medical librarians) and what can scale (online searches, peer advice). Josh Bernoff then describes his ideal model for providing information and asks for audience participation (thank goodness, because they were an incredibly well-qualified group to respond). If you’ve made it this far in the video, just keep watching to the end and take notes on the resources recommended by audience members — truly, I got as much out of listening to them than listening to my colleagues on the panel.
Thanks again to Joe Kvedar, Joe Ternullo, and Michael Barrett, who invited us to speak at the Connected Health symposium. I’d welcome anyone’s questions or comments about the panel (or overall event).