We are each individually advancing the participatory medicine movement in our day-to-day lives and interfaces with healthcare and/or our work. Understanding the work we are conducting within our individual silos can help us learn from one another, allow us to build upon ideas, forge collaborations, provide a forum for feedback and suggestions, and ideally avoid duplication of efforts. Helpful tips and best practices we’ve adopted as we navigate the healthcare system can also be beneficial to others.

Join us for our Inaugural Learning Exchange on Thursday, November 10th, 3:00 – 4:00pm EST. Pre-registration is required and you can sign up here. Please also spread the word, as this is open to everyone (not just SPM members)!

Agenda

Introduction & Origin of Learning Exchange- Sarah Krüg
Amplifying the ROAR of the Patient & Caregiver in Innovation, Sarah Krüg
How a Patient Became a Participatory Medicine Junkie, Nancy Finn
Research in Technology Enabled Care, Jonathan Wald, MD, MPH
Collaborating by Sharing Notes, Peter Elias, MD
Q&A

Call to Action!

Are you interested in presenting your work, best practices or tips during a future learning exchange? Not sure you want to present, but interested in sharing your work anyway so that it’s captured under the participatory medicine umbrella? Please submit here!

Sarah Krüg

Sarah Krüg is a researcher, innovator, and patient advocate, whose mission is to alleviate health disparities and amplify the voices of patients and caregivers across healthcare. She is CEO of CANCER101, a patient advocacy organization whose mission is to help patients and caregivers navigate the cancer journey and partner with their healthcare team to make informed decisions. Sarah is also the founder of the Health Collaboratory, an innovation hub focused on amplifying the voice of the patient and caregiver, and bridging the gaps in healthcare. She is the acting Executive Director and Past President of the Society for Participatory Medicine, and serves on the board of the National Organization of Rare Diseases. She previously held the position of Global Education Director at Pfizer, as well as patient advocacy relations, where she also established the Global Investigator Initiated Research Program. Prior to joining Pfizer, Sarah spearheaded the development of the Pediatric Disease Management clinical pathways and conducted clinical research at Memorial Sloan- Kettering Cancer Center.