This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate.
- This blog is e-patients.net. Subscribe via RSS or email, tweets etc.
- Our open-access journal is the Journal of Participatory Medicine (Twitter: @JourPM)
“Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.”
- Our manifesto: the e-Patient White Paper (PDF), in English and Spanish
- The Society’s member list, board and officers, and member listserv archives (open access)
- Our founders
- Guidelines for submitting guest posts about participatory medicine, for this blog
- Author guidelines for submissions to the Journal of Participatory Medicine
- Wikipedia pages for participatory medicine and e-patient
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I am a Family Physician and am a babe in the woods about this e-patient stuff although what Dave has done is inspiring for both patients and Doctors. A friend of mine from church had a newborn with a very rare condition called chylothorax where the space between the lungs and chest wall fills with lymph fluid and starts to collapse the babies lungs. Does anyone know anything about this.
Chet, I tweeted a link to your question.
Thanks for your kind words but I didn’t start this society and certainly didn’t start the movement, though I do tend to be one of the noisier ones.
For pediatric conditions I’d suggest trying http://www.DrGreene.com, hosted by SPM founders Alan Greene MD and wife Cheryl.
there is a fairly recent review here:
I think it’s certainly worth contacting the authors to see what other resources they would recommend.