Board of Directors
- Founder's Circle
The Society's founders.
The Society’s Executive Committee sets the overall agenda of the Society and leads the organization in its day-to-day activities. It is made up of Board Members and two members-at-large selected from the general membership of the organization. The current executive committee is:
- President – Josh Seidman
- President-Elect – Nick Dawson (President term beginning 9/2014)
- Past President – Sarah Krug (until 9/2014)
- Treasurer – John Grohol (until 7/2015)
- Secretary – Nancy Finn (until 7/2014)
- Member-at-Large – Ileana Balcu
- Member-at-Large – Carla Berg
- Board Chairs – Danny Sands & Dave deBronkart
I’ve dedicated most of my professional life to healthcare. Currently, I serve as the patient experience officer and the lead strategist for a venture capital funded firm in Richmond Virginia. My previous roles span an interesting swath of senior hospital management functions from innovation and strategy to operations and finance. What those roles have in common is my focus on bringing more humanity to the areas I served.
Whether focused on financial, strategic, or operational leadership, my aim is to engage with smart, fun people who want to make working in, or receiving healthcare constantly better. While working in patient finance role, it was about creating a radical approach to approving charity care which removed stress and discomfort for staff and patients. In my strategy roles, I focused on spotting patients’ sticking points, then brainstorming solutions with other stockholders. As an operational leader of several departments, I challenged my staff and myself to try and make our units the best work environment possible.
Every role I’ve held has required working with and coaching senior management teams, executives and boards. This is as engaging as collaborating on problem solving. My proficiency in public speaking leads to being asked to present on national and international stages. I’m active online, particularly in circles excited about healthcare, patient-centeredness and participatory healthcare. Today, I serve on both the Advisory Board and the ePatient board for Stanford’s Medicine X program, positions I have held for two consecutive years. I also serve on Mayo Clinic’s Center for Social media, for the 3rd consecutive year. I hold a Masters in Hospital Administration from the University of Minnesota. I would also enjoy an opportunity to help strengthen the Society’s ties with these organizations and others.
“e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one website said.
He received great treatment at Boston’s Beth Israel Deaconess Medical Center. His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions have continued to shrink.
An accomplished speaker and writer in his professional life before his illness, today Dave is
actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient.
Alan Greene, M.D.
Dr. Alan Greene is a Clinical Professor of Pediatrics at Stanford University School of Medicine, the Founding President and the Co-Chairman of the Society for Participatory Medicine. He is on the board of directors of Healthy Child Healthy World and the Organic Center. He is the author of many popular health and parenting books including Raising Baby Green and Feeding Baby Green.
He has been featured in the New York Times and has appeared on CNN, The TODAY Show, Good Morning America – NOW, and NBC Evening News. Dr. Greene was honored as one of “the 100 most creative and influential innovators working in health care today” and was named the Children’s Health Hero of the Internet by Intel. He is the Founder of the pioneering consumer health website DrGreene.com that has touched millions of lives since its inception in 1995.
John M. Grohol, Psy.D.
John M. Grohol, Psy.D. is the CEO and founder of one of the leading mental health networks, Psych Central. He founded Psych Central in 1995 as one of the first mental health sites available that offered information about the symptoms and treatments of mental disorders, including interactive screening quizzes and self-help tools. Psych Central was recognized by TIME.com as one of the 50 Best Websites of 2008.
Before focusing full-time on Psych Central in 2006, he worked for a number of e-Health firms, including drkoop.com, HelpHorizons.com and Steve Case’s Revolution Health, helping them with their own mental health centers and understanding the power and usefulness of online self-help support groups.
Dr. Grohol sits on the editorial board for the journal CyberPsychology, Behavior and Social Networking and is an active researcher in the area of online behavior and technology’s effects on human behavior. He won the Distinguished Professional Contribution to Media Psychology award from the American Psychological Association’s Division 46 in 2011, and is a member of the Association of Health Care Journalists. He is also a founding board member of the Society for Participatory Medicine and is its current treasurer. He is the author of The Insider’s Guide to Mental Health Resources Online (Guilford) and blogs regularly at PsychCentral.com.
John received his doctorate in clinical psychology from Nova Southeastern University in 1995 and his undergraduate degree from the University of Delaware. He lives with his wife and six cats north of Boston.
Sarah Krug is CEO/Executive Director of CANCER101, a patient advocacy organization she has been on the board of for two years, in a quest to help patients and caregivers navigate their cancer journey. Driven by the passion to make an impact in patient care and engagement, Sarah has held a variety of roles within healthcare.
She previously held the position of Global Education Director in the Medical Education Group at Pfizer, focused on establishing global health care improvement strategies and medical education standards worldwide. She also established the Global Investigator Initiated Research Program at Pfizer. Prior to joining Pfizer in 2001, Sarah spearheaded the development of the Pediatric disease management clinical pathways and conducted clinical research at Memorial Sloan- Kettering Cancer Center. She is also on the board of the Cancer Patient Education Network, and serves as Research Chair.
Danny Sands, M.D.
Danny Z. Sands, M.D. is senior medical informatics director for Cisco, where he provides both internal and external health IT leadership and helps key customers with business and clinical transformation using IT. His prior position was chief medical officer for Zix Corporation, a leader in secure e-mail and e-prescribing, and before that he spent 13 years at Beth Israel Deaconess Medical Center in Boston, where he developed and implemented numerous systems to improve clinical care delivery and patient engagement.
Sands earned his baccalaureate at Brown University, a medical degree at Ohio State University, and a master’s degree at Harvard School of Public Health. He did residency training at Boston City Hospital and an informatics fellowship at Beth Israel Deaconess Medical Center. He is an assistant clinical professor of medicine at Harvard Medical School and maintains a primary care practice in which he makes extensive use of health information technology.
Sands is the recipient of numerous health IT awards, sits on the board of the American Medical Informatics Association, and has been elected to fellowship in both the American College of Physicians and the American College of Medical Informatics.
Josh Seidman, Ph.D.
Over the 23 years in health care, Joshua J. Seidman, Ph.D. has focused on: quality measurement and improvement; the intersection of e-health and health services research; and structuring consumer e-health interventions to support improved health behaviors and informed decision making. Dr. Seidman now oversees quality and performance improvement at Evolent Health, which supports the nation’s leading providers in their population health and care transformation efforts through long-term operating partnerships.
Dr. Seidman was the first Director of Meaningful Use at the U.S. Department of Health & Human Services (in the Office of the National Coordinator for Health Information Technology), where he oversaw three areas: helping to evolve meaningful use practice and policy; supporting providers through ONC’s regional extension program to become meaningful users of health IT; and oversight of ONC’s e-Quality Measurement agenda.
Previously, Seidman was the founding President of the Center for Information Therapy, which advanced the practice and science of delivering tailored information to consumers to help them make better health decisions and lead healthier lives. At the IxCenter, Seidman focused on stimulating innovation, diffusing best practices, and evangelizing for a patient-centered orientation to implementation of HIT applications.
Before launching the IxCenter, Dr. Seidman served as Senior Editor and Director of Quality Initiatives for the Advisory Board Company’s Consumer Health Initiative. In that capacity, he played a leading role in strategic planning and product development and provided leadership in the development of quality-of-care information for consumers.
Dr. Seidman has worked for the National Committee for Quality Assurance (NCQA) as the Director of Measure Development, overseeing development of HEDIS. He has also worked at the Advisory Board Company as Consultant and at the American College of Cardiology as Assistant Director of Private Sector Relations, conducting extensive research and analysis in managed care and quality-of-care issues.
Dr. Seidman holds a PhD in health services research and a master of health science degree in health policy and management, both from the Johns Hopkins Bloomberg School of Public Health. His doctoral research involved the development of a tool to evaluate the quality of health information on the Internet and an assessment of what Web site characteristics influenced health information quality. He earned a bachelor of arts in political science from Brown University.
For five years, Dr. Seidman volunteered as President of the board of directors for Micah House, a transitional house in Washington, D.C., for homeless women recovering from substance abuse. When he’s not chasing after his four children, Seidman uses distance running as his own therapy of sorts, and has completed 39 marathons with a best time of 2:56.
Charles W. Smith, M.D.
Charles W. Smith, M.D. is the Founder, Chairman, and Medical Director of eDocAmerica, and is a board certified family physician with over 25 years of experience in practice.
He is the executive associate dean for clinical affairs at the University of Arkansas for Medical Sciences (UAMS) and is professor in the Department of Family and Community Medicine where he has been serving since 1989. In his role at UAMS, he also serves as the medical director for UAMS Medical Center and the physician director of medical informatics at the University. In this role, he is responsible for initiating and implementing software programs to assist physicians in the provision of care at UAMS. He is also responsible for the oversight of the quality of medical care provided at UAMS.
He has served as a national leader in family medicine, as editor of the American Family Physician, a national journal for family physicians, and has also served as the president of the American Board of Family Practice, which is the national certifying body for family physicians.
He recently served as the chair of the Group on Faculty Practice, a national organization of medical school faculty practice plans within the American Association of Medical Colleges. He is author of numerous medical journal articles and is co-author of a medical textbook, ‘The Handbook of Family Practice.’ He continues to conduct an active practice and holds regular office hours in the Outpatient Center of the University of Arkansas. His areas of special interest and expertise include sports medicine and fitness, skin disorders and stress-induced disorders.
Smith did his medical training at the University of North Carolina and, after practicing in Muscatine, Iowa, became director of resident physician training in Dayton, Ohio at Wright State University. In 1986, he relocated to Huntsville, Alabama, where he served as the chair of family medicine and dean of the School of Primary Medical Care at the University of Alabama in Huntsville a branch of the University of Alabama at Birmingham. He came to Little Rock in 1989 to assume his current position at UAMS.
Indu Subaiya, M.D.
Indu Subaiya, MD, MBA is co-founder of Health 2.0: User Generated Healthcare, a
first-of-its-kind forum showcasing emerging companies in vertical search, social networking applications and web-based tools for consumer healthcare. Most recently she was Entrepreneur-in-Residence at Physic Ventures, a consumer health and wellness investment fund. Prior to that she served as President of Etude Scientific, a consulting firm providing strategy, market assessment, and due diligence services to biotechnology and consumer healthcare companies. Indu also was Vice President of Healthcare and Biomedical Research at Gerson Lehrman Group where she facilitated due diligence research in the life sciences sector for investment fund managers. Earlier in her career she served as Director of Outcomes Research at Quorum Consulting, Inc. where she conducted Phase III-IV quality of life and pharmacoeconomic studies and advised life science clients on commercialization and reimbursement strategies. Indu received her MD from Stony Brook University School of Medicine at the State University of New York, an MBA from the Haas School of Business at the University of California, Berkeley, and a BS in Science and Technology Studies from Cornell University.
Nancy B. Finn is a health care journalist and thought leader on the impact of digital communication on organizational behavior in healthcare and patient care. She is the author of e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology, which targets baby boomers, senior citizens and individuals who suffer from chronic conditions to help them become empowered, engaged e-Patients.
Ms. Finn has also authored Digital Communication in Medical Practice targeted at a physician audience, and two books on business and digital communication: The Electronic Office and Writing Dynamics. She also writes a health care blog www.healthcarebasicsinfo.com.
Ms Finn is the Founder and President of Communication Resources, a consulting organization that offers advice and training workshops on the management of patient information and the transition to patient-centered care. She has been on the faculty of several universities in the Greater Boston area including: Boston University, Bentley College, Suffolk University and Leslie University.
Ms Finn is on the Board of Overseers at Mount Auburn Hospital in Cambridge, MA, the Executive Board of Society of Participatory Medicine, and the Health Advisory Board of the Massachusetts Technology Leadership Council and a member of the Massachusetts Health Data Consortium. She holds a Master’s degree in Education and a Bachelor’s degree in Journalism from Boston University.
Ileana Balcu has been actively involved with the Society for Participatory Medicine since January 2012. She manages the member community and social media efforts. She is also the co-chair of the HIMSS Patient Experience Task Force and part of the Social Media Task Force within the eConnecting to Consumers Committee. She was an IT Director and Community Forum Administrator for the Preeclampsia Foundation.
Professionally, Ileana is a Program Manager for Dulcian, Inc. (an Oracle database consulting company). She specializes in the development of patient facing software. She led the team of developers building the Budgeting and Reporting system for the NY State Office of Alcohol and Substance Abuse and an international team (Ethiopians, Turks, Americans) building the Budgeting System for the Ethiopian Ministry of Finance.
Ileana was trained to be a yoga teacher and she uses some of the techniques of yoga leading into her leadership style. You can find her on Twitter as @yogileana
If one theme unites the roles Carla Berg has played, it is about improving communication to help people find common ground. Over three decades in business, that theme played out in many ways, from community organizing to C-suite consulting and recurring leadership posts, from PIO to president.
In her first years out of UC Berkeley, she launched a PR firm doing marketing and advocacy and served on many boards and commissions. Next offered a post as a page two columnist for a regional daily, she explored the impacts of new edge science and tech and the emerging Internet. Many years as an “e-patient” began during this time, as she learned how to use tools such as Medline to avoid mis-diagnosing. By the early 1990s (when she and Dave deB first became online allies), Carla was increasingly focused on science and health both as a journalist and as a speaker. This later led to hosting the Mind-Brain Sciences Forum, an international venue for doctors, scientists, therapists and theorists on CompuServe.
After moving to Tucson in 2006, she held fellowships at the University of Arizona in the School of Medicine (telehealth), the Dept. of Psychology (social media for health) and the School of Business (organizing). Since joining SPM in 2011, she has been a grant reviewer for PCORI, a key contributor on the communications team, a mainstay building community on the list-serve, and principal innovator for new ventures such as the @s4pm forum. In all these roles, Carla has worked at the junction where people had to step out of their silos to build something new together. Now she hopes to blend communications with organization development again to help SPM move ahead with an increasing sense of momentum.
Michael L. Millenson
- Let’s crowdsource what a “good” medical record tool for patients is (and products)--e-Patient Dave
- Recently in JoPM: Jessie Gruman tribute, book review on asthma--e-Patient Dave
- Communicating the experience of illness in the digital age--Susannah Fox
- Susannah Fox is leaving Pew Research--e-Patient Dave
- A Tribute to Jessie Gruman, Founding JoPM Co-Editor
- Book Review: A Cure for Asthma? What Your Doctor Isn’t Telling You — And Why
- The Challenges of Conceptualizing Patient Engagement in Health Care: A Lexicographic Literature Review
- Lessons Learned from Implementing a Multi-Year, Multi-Project Public Engagement Initiative to Better Inform Governmental Public Health Policy Decisions