Board of Directors
The Society’s Executive Committee sets the overall agenda of the Society and leads the organization in its day-to-day activities. It is made up of Board Members and two members-at-large selected from the general membership of the organization. The current executive committee is:
- President – Joseph Ternullo, JD, MPH
- President-Elect – Susan Woods, MD, MPH (President term beginning 12/2017)
- Past President – Jonathan Wald, MD, MPH
- Treasurer – John Grohol, Psy.D.
- Secretary – Nancy Finn
- Member-at-Large – Peter Elias
- Member-at-Large – Tracy Zervakis
- Board Chair – Danny Sands, MD
- Acting Executive Director – Sarah Krüg
Additional Board Members
- Mandi Bishop
- Kyra Bobinet, MD, MPH
- Donna Cryer, JD (on leave)
- Judy Danielson
- Dave deBronkart
- Joe and Terry Graedon, Co-Editors of JoPM (ex-officio)
- John Hoben
- Bruno Nardone, MHSA, FACHE
- Jane Sarasohn-Kahn (on leave)
- Charlie Smith, MD, Editor of JoPM (ex-officio)
- Kenneth P. Yale, DDS, JD
As the chief evangelist and co-founder of Aloha Health, Mandi Bishop is disrupting healthcare by making life actionable, helping healthcare systems put the “me” back in “medicine”. She believes that patients must be partners in healthcare design, and that there is no value-based care without recognizable value delivered to the very people healthcare exists to serve. Prior to Aloha, Mandi led Dell Healthcare and Life Science’s Global Analytics Innovation and Consulting practice, developing solutions that touched the lives of over 100 million patients. During her career, she was part of groundbreaking initiatives such as the design and delivery of the Blue Cross and Blue Shield Association’s Blue Health Intelligence and Inter-Plan Performance Data Warehouse solutions, establishing clinical encounter data interoperability standards for private health information exchange platforms and patient portals, and developing a research methodology to identify healthcare disparities at a household level. In 2016, she was recognized as one of the “Most Powerful Women in Healthcare IT” by Health Data Management magazine. She was #1 on 2016’s #HIT100 list of top healthcare IT industry influencers. In 2015, she was included in Rock Health’s “State of Women in Healthcare” report as a “Role Model”. She is @MandiBPro on Twitter, an ambassador and co-emcee for nationwide HealthIMPACT Forum events, an advisory board member for #STEMPrincess, a startup mentor for the Global Insurance Accelerator program, and a contributor to the American Journal of Accountable Care, among other publications.
Kyra Bobinet, MD, MPH
When is comes to health engagement, Dr. Bobinet has 5 words of advice: be caring, authentic, and useful. As the CEO-founder of engagedIN, a behavior design firm sprouted out of Stanford, Kyra is devoting her life to helping people crack the code of how, what, and especially, WHY we engage in things.
Kyra has founded several healthcare start-ups, spanning behavior health, population health, and mobile health. She has designed behavior change programs, big data algorithms, billion dollar products, mobile health apps, and evidence-based studies in mind-body and metabolic medicine. All of her designs, whether for at-risk teens or seniors, are rooted in the belief that true caring is our greatest salve.
Dr. Bobinet currently co-teaches courses at Stanford School of Medicine on patient engagement and empowerment, and health design with Dr. Larry Chu, founder of MedicineX. She also studies in Dr. BJ Fogg’s Persuasive Tech Lab at Stanford.
Dr. Bobinet received her Masters in Public Health at Harvard University, specializing in Healthcare Management, Technology-enabled Behavior Change, and Population Health Management. She received her medical degree from the UCSF School of Medicine.
When she’s not geeking out on neuroscience literature, you can find her engaged in her kids, minimalist eco design, and surfing.
Donna R. Cryer, JD
Donna R. Cryer, JD, has channeled her personal experience as an IBD and liver transplant patient into professional advocacy as president and chief executive officer of the Global Liver Institute, the innovation and collaboration platform for the liver community. Ms. Cryer most recently served as Chair, President & Chief Executive Officer of the American Liver Foundation, the largest and oldest national non-profit organization serving liver disease patients and their families. She was the first patient to lead the organization in its thirty-six year history.
For eight years, Ms. Cryer led CryerHealth, a healthcare consulting firm providing strategic counsel to top biopharmaceutical companies, patient advocacy organizations, and emerging technology firms on patient engagement in health information technology, drug discovery, and clinical decision making.
Her e-health experience includes serving on the Office of the National Coordinator for Health Information Technology Policy Committee’s Privacy and Security Workgroup, technical expert panel on patient-generated health data, the launch of the Office of National Coordinator for HIT (ONC) consumer engagement campaign, as a member of the White House e-health equity taskforce and the executive committee of the Patient Experience Council of the Louis W. Sullivan Institute for Healthcare Innovation. She is a frequent speaker at top health and HIT conferences, including Health 2.0, the mhealth summit, the Digital Health summit, and epatient Connections. Her blog, DCpatient – An Impatient Patient’s Perspective from Washington, DC, and twitter feed @DCpatient are listed as top resources for insights into emerging e-patients and patient advocates.
Ms. Cryer is a patient representative to the U.S. Food and Drug Administration, a merit reviewer for the Patient Centered Outcomes Research Institute (PCORI), and a member of Stakeholder Advisory Group to the NIH Learning Health System Research Collaboratory. Additionally, Ms. Cryer serves on the Gastroenterology Board of the American Board of Internal Medicine, the American Society of Clinical Oncology Guidelines Committee; Hepatitis B Infection Screening in Patients Receiving Chemotherapy for Treatment of Malignant Diseases, the Board of the Personalized Medicine Coalition, a member of the Patient and Consumer Advisory Council for the Center for Medical Technology Policy.
Ms. Cryer received an undergraduate degree from Harvard/Radcliffe Colleges and received a Juris Doctorate from the Georgetown University Law Center.
She resides in Washington, DC, with her husband, Dennis R. Cryer, MD, FAHA.
Judy Danielson is a seasoned marketing and strategy executive with more than 18 years experience building innovative marketing and consumer engagement solutions. As a member of leadership teams in health and financial services, Judy’s work has been at the intersection of marketing and consumer engagement, using the principles and practices of marketing to understand the choices people make and what motivates them to make those choices.
Judy has a passion for developing insight driven strategies to help organizations grow in competitive and transformative markets. She does her part trying to understand where this transformation will take the health market and all its stakeholders — consumers, patients, employers, providers, and health organizations — all of which have a huge stake in the future of healthcare.
Judy’s career has been built on interpreting research and analytics to develop market, brand and customer engagement innovations and strategies. Judy built and led the Market Strategy Group at BCBSMA from 2011 to 2016, where she created a foundation for analytically and insight driven market and consumer engagement strategies. Before joining BCBSMA she was VP of Market Strategy at Aetna for 8 years, where she introduced a market planning approach adopted across the organization and was part of both the consumer engagement and innovation strategy teams. Prior to Aetna Judy held leadership positions in marketing and market research for Fleet and BankBoston. She has experience in consulting, including International Data Corporation and Venture Economics. Her love of analytics and market strategy came from working in political polling and consulting while in college.
Judy is a trustee and pro bono advisor to the Marketing Science Institute, a member and pro bono advisor to the Society of Participatory Medicine, a member of the Women’s Business Leaders in Healthcare, the American Marketing Association and the New England Health Care Executive Network.
Judy and her husband, Tom are outdoor enthusiasts and enjoy kayaking the rivers of Massachusetts and the coast of Maine. They can often be found outdoors hiking, but rarely without one of their dogs. They share passions for travel, cooking and music. They live in North Framingham, Massachusetts across the street from an endlessly entertaining field of cows.
Judy holds a Liberal Arts Bachelor’s Degree with a concentration in political science and attended the University of Maine at Portland/Gorham.
“e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one website said.
He received great treatment at Boston’s Beth Israel Deaconess Medical Center. His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions have continued to shrink.
An accomplished speaker and writer in his professional life before his illness, today Dave is
actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient.
Peter Elias, MD
I am a family physician, practicing in central Maine, with a bit over 30 years of active practice on my odometer. I am happily and solidly married to a woman who knows me well enough to be skeptical and loves me enough to be willing to keep me honest. We have two grown (wonderful) kids and three magical grandchildren, two in Vermont and one in Montana. My interests include medicine (which has also been my career), genealogy, photography, cognitive and behavioral neuroscience, medical informatics, and acoustic folk guitar. I love to be outdoors, hiking, canoeing and swimming in summer and nordic skiing in winter.
Nancy B. Finn is a health care journalist, speaker, and thought leader on the impact of digital communication on organizational behavior in healthcare and patient care. She is the author of e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology, and Digital Communication in Medical Practice. She also writes a health care blog www.healthcarebasicsinfo.com, and is a frequent contributor to e-Patients.net and the Journal of Participatory Medicine.
Nancy is a member and a spokesperson for the Global Alliance for Women’s Health, an NGO organization affiliated with the United Nations Economic and Social Council, where she frequently speaks on digital technology to improve women’s health. She is a member of the Massachusetts Quality Health Partners, Consumer Health Council and is on the Board of Overseers at Mount Auburn Hospital in Cambridge, MA, She is also the patient advocate representative to the BIDCO Board of the Beth Israel Deaconess Hospital in Boston and a member of the Health Advisory Board of the Massachusetts Technology Leadership Council.
Joe and Terry Graedon
Joe and Terry Graedon co-host the popular radio program, The People’s Pharmacy, as well as the syndicated newspaper column (King Features Syndicate) of the same name. Joe has an MS degree in pharmacology from the University of Michigan, 1971 and Terry has a PhD in Anthropology from the University of Michigan, 1976. They are both founding members of the Society for Participatory Medicine.
Joe Graedon is also a Fellow in Pharmaceutical Sciences of the American Association for the Advancement of Science (AAAS) for “exceptional contribution to the communication of the rational use of pharmaceutical products and an understanding of health issues to the public” in 2005 and sits on Dr. Oz’s Medical Advisory Board since 2012.
John M. Grohol, Psy.D.
John M. Grohol, Psy.D. is the CEO and founder of one of the leading mental health networks, Psych Central. He founded Psych Central in 1995 as one of the first mental health sites available that offered information about the symptoms and treatments of mental disorders, including interactive screening quizzes and self-help tools. Psych Central was recognized by TIME.com as one of the 50 Best Websites of 2008.
Dr. Grohol sits on the editorial board for the journal Computers in Human Behavior and is an active researcher in the area of online behavior and technology’s effects on human behavior. He won the Distinguished Professional Contribution to Media Psychology award from the American Psychological Association’s Division 46 in 2011, and is a member of the Association of Health Care Journalists. He is the co-author of Self-Help That Works and author of The Insider’s Guide to Mental Health Resources Online.
In addition to being a founding board member of the Society for Participatory Medicine and its current treasurer, he also sits on the boards of the International Foundation for Research and Education on Depression (iFred) and the non-profit Psych Central Community Connection.
John Hoben is Managing Member, Energy Benefit Group LLC (EBG). EBG serves business development (BD) specialized needs of several small to medium size (less than 5,000 staff) client firms with respective complex client bases. In this role, he provides acquisition candidate research, continuity planning, sales support and other BD services. Most recently, Hoben previously focused on national sales with health payer vertical for CTG (NASDAQ:CTG), a leading information technology services firm with nearly 4,000 staff worldwide.
Hoben developed other business by serving several Fortune 500 companies throughout the world with information security and other governance, risk and compliance services. He managed HIPAA consulting practices for several technology consulting firms and provided data administration and health system integration services to leading health corporations throughout North America. In it’s first printing, Hoben edited and co-authored a series of annual books published by Faulkner & Gray on health care and the Internet from 1996 to 2000. Previous clients include: US Department of Defense, Raytheon, The World Bank, Constellation Energy and several other multi-national public and private organizations, both for profit and not for profit.
Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing improved health status for populations through unique, individualized approaches. He is a life time member of the Society for Participatory Medicine and has served on several 501c3 boards.
Sarah Krug is CEO/Executive Director of CANCER101, a patient advocacy organization she has been on the board of for two years, in a quest to help patients and caregivers navigate their cancer journey. Driven by the passion to make an impact in patient care and engagement, Sarah has held a variety of roles within healthcare.
She previously held the position of Global Education Director in the Medical Education Group at Pfizer, focused on establishing global health care improvement strategies and medical education standards worldwide. She also established the Global Investigator Initiated Research Program at Pfizer. Prior to joining Pfizer in 2001, Sarah spearheaded the development of the Pediatric disease management clinical pathways and conducted clinical research at Memorial Sloan- Kettering Cancer Center. She is also on the board of the Cancer Patient Education Network, and serves as Research Chair.
Bruno Nardone, MHSA, FACHE
Bruno Nardone is a senior healthcare strategy, operations and business development executive with a proven track record of leading high performance teams that open new markets and deliver increased revenue. He has a keen focus on the development and execution of healthcare business strategies for improved quality, outcomes, and efficiency.
Bruno joined NextGen Healthcare with over 25 years of experience in the healthcare industry, largely focused on Health IT strategic planning, business development, and leading teams in the development and integration of health-related solutions. In his current role he leads all aspects of solution strategy for NextGen’s population health management offerings for both provider site and communities, including solutions being used by some of the country’s largest health information exchanges.
Prior to NextGen, Bruno was HIT Practice Leader at Health Advances, a business strategy consulting firm specializing in commercialization and growth strategy for healthcare product companies across all industry segments.
In previous roles Bruno has led strategy development and initiatives in numerous health industry segments. At Allscripts, he served as VP of Connected Health Solutions, where he led several cross-organizational initiatives to develop new profit centers for Value Based Care/Population Health Management, integrate mobile platforms, and identify and integrate key acquisitions. While at SAIC, serving as first Vice President for Healthcare Transformation, he led the development and execution of new solutions focused on Patient Centered Care models. Earlier, at IBM Global Business Services, he served in a variety of roles across private sector and government healthcare, honing expertise in enterprise strategic planning and business development, as well as a wide range of health-related solutions, such as electronic health records, public health, and health information exchanges.
Bruno started his career as a Hospital Administrator in the New York metropolitan area where he managed clinical and non-clinical departments, as well as strategic projects ranging from Joint Commission Survey coordination to facilities redesign and satellite care-site development.
Bruno earned his BS at Cornell University and Master of Health Services Administration and Policy at George Washington University. He is a Fellow of the American College of Healthcare Executives.
Danny Sands, M.D.
Dr. Danny Sands is passionate about healthcare transformation. A practicing physician with training and experience in clinical informatics, Dr. Sands has worked in a variety of capacities in the health care IT industry since 2004. Prior to that he spent almost 14 years at Beth Israel Deaconess Medical Center, where he developed and implemented innovative systems to improve clinical care delivery and patient engagement, including clinical decision support systems, an electronic health record, and one of the nation’s first patient portals.
Dr. Sands is the recipient of numerous healthcare honors, including recognition in 2009 by HealthLeaders Magazine as one of “20 People Who Make Healthcare Better.” He is the co-author, with e-Patient Dave deBronkart, of Let Patients Help.
Dr. Sands holds an academic appointment at Harvard Medical School and for twenty years has maintained a primary care practice in which he makes extensive use of health IT—much of which he helped to introduce during his tenure at Beth Israel Deaconess Medical Center. In addition to practicing, Dr. Sands is a speaker and works with a number of innovative companies.
Dr. Sands is a popular speaker and consultant, who blogs at DrDannySands.com and is active on Twitter as @DrDannySands.
Jane Sarasohn-Kahn, MA
Jane Sarasohn-Kahn is a health economist, advisor and trend-weaver to organizations at the intersection of health, technology and people. Jane founded THINK-Health after spending a decade as a health care consultant in firms in the U.S. and Europe. Jane’s clients are all stakeholders in health, including technology, bio/life sciences, providers, plans, financial services, consumer products, public sector and not-for-profit organizations. Jane founded the Health Populi blog in 2007, covering health policy, technology, and consumers.
Jane advises clients on strategy and new product development at the nexus of health+tech+people via environmental analysis, scenario and strategic planning, and health policy analysis. She is on the advisory boards of CanSurround, CAQH’s U.S. Health Efficiency Index, the Center for Connected Health Symposium, the Health 2.0 Conference, the HIMSS mHealth Committee, Intuit’s American Tax & Financial Center, and WEGO Health. A frequent public speaker on health economics, consumers and technology, Jane also writes for the Huffington Post Healthy Living section and for California HealthCare Foundation’s iHealthBeat.
Jane holds an MA (Economics) and MHSA (Health Policy) from University of Michigan. While Jane loves her work, she is even more passionate about family and home, Slow Food and her local CSA, art, playing with LEGOs, and living a full and balanced life. Follow Jane along with 17,000+ others on Twitter @healthythinker. See more on Jane at www.janesarasohnkahn.com
Charles W. Smith, M.D.
Charles W. Smith, M.D. is the Founder, Chairman, and Medical Director of eDocAmerica, and is a board certified family physician with over 25 years of experience in practice.
He is the executive associate dean for clinical affairs at the University of Arkansas for Medical Sciences (UAMS) and is professor in the Department of Family and Community Medicine where he has been serving since 1989. In his role at UAMS, he also serves as the medical director for UAMS Medical Center and the physician director of medical informatics at the University. In this role, he is responsible for initiating and implementing software programs to assist physicians in the provision of care at UAMS. He is also responsible for the oversight of the quality of medical care provided at UAMS.
He has served as a national leader in family medicine, as editor of the American Family Physician, a national journal for family physicians, and has also served as the president of the American Board of Family Practice, which is the national certifying body for family physicians.
He recently served as the chair of the Group on Faculty Practice, a national organization of medical school faculty practice plans within the American Association of Medical Colleges. He is author of numerous medical journal articles and is co-author of a medical textbook, ‘The Handbook of Family Practice.’ He continues to conduct an active practice and holds regular office hours in the Outpatient Center of the University of Arkansas. His areas of special interest and expertise include sports medicine and fitness, skin disorders and stress-induced disorders.
Smith did his medical training at the University of North Carolina and, after practicing in Muscatine, Iowa, became director of resident physician training in Dayton, Ohio at Wright State University. In 1986, he relocated to Huntsville, Alabama, where he served as the chair of family medicine and dean of the School of Primary Medical Care at the University of Alabama in Huntsville a branch of the University of Alabama at Birmingham. He came to Little Rock in 1989 to assume his current position at UAMS.
Joseph Ternullo, JD, MPH
Joseph Ternullo, JD, MPH has focused the past 20 years of his career on healthcare. Joe is well known for his 17 years as the associate director of Partners HealthCare’s Center for Connected Health. He founded and chaired for 10 years the Connected Health Symposium, a two-day international conference with a prominent patient engagement focus. He was a co-founder of the Continua Health Alliance, a standards and interoperability organization. Joe has served on two federal advisory committees, including the US Department of Health & Human Service’s American Health Information Communities Chronic Care Workgroup. Joe has authored several publications focused on healthcare technology and served on several international and domestic boards. Most recently, he led a health technology start-up that established an exploratory US presence. Joe holds degrees from Boston College, Bentley University, Boston University School of Law and Harvard T.H. Chan School of Public Health.
Jonathan Wald, MD, MPH
Jonathan Wald, MD, MPH, FACMI, is the Director of Patient-Centered Technologies in the Center for the Advancement of Health Information Technology (IT) at RTI with over 18 years of experience in medical informatics. His work in academic and corporate settings includes clinical systems design, development, implementation, usability, policy, and research. His research and publications have focused on patient computing, electronic medical records, confidentiality, personalized medicine, and other topics. His main interest is understanding how advanced information technology used by patients and providers can improve communication, clinical decision support, clinical outcomes, and the patient care experience. He has presented nationally on the integration of electronic medical records, consumer informatics, and patient–physician electronic communication. For ten years he led the patient portal team at Partners HealthCare, Boston, where Patient Gateway connected 200,000 patients with over 3000 physicians. Dr. Wald is an instructor at Harvard Medical School, received his MD from Brown University School of Medicine and his MPH from the Harvard School of Public Health. In 2007 he was elected a Fellow in the American College of Medical Informatics.
Susan Woods, MD, MPH
Susan Woods, MD, MPH has broad healthcare experience spanning private and public sectors. Board certified in general internal medicine and health informatics. Sue is a design thinker who is passionate about effective health care communication, clinician-patient partnership and using innovative digital tools that improve care and the patient experience. She served as Director of Patient Experience for the Connected Care Office at the Veterans Health Administration, developing web and mobile apps for patients and clinicians and leading a national effort on patient generated data. Sue received her MD at Oregon Health Sciences University and public health degree at the University of Washington. Her research focuses on consumer use of health technology, health information transparency and promoting virtual care delivery. She has served on Boards at the Society for Behavioral Medicine and the Society for Participatory Medicine. Sue promotes participatory care and services that engage people and families in their health and their health care. As the founder of HiTech HiTouch, LLC, she advocates for full patient access to health records (OpenNotes), telehealth and eHealth adoption, universal broadband access and digital inclusion.
Kenneth P. Yale, DDS, JD
Dr. Ken Yale has a track record of Business Development, Product Innovation, and Strategy in both entrepreneurial and large companies across healthcare industry verticals, including Health Payers, Life Sciences, and Government Programs. He is an agile executive who identifies future industry trends and seizes opportunities to build sustainable businesses. His accomplishments include innovations in Health Insurance, Care Management, Big Data Healthcare Analytics, Clinical Decision Support, Personalized and Precision Medicine, and Precision Health.
His prior experience includes: chief executive of the innovation incubator business unit for UnitedHealth Group Community & State, strategic counsel at Johnson & Johnson, corporate vice president of CorSolutions and Matria Healthcare, senior vice president and general counsel at EduNeering, and founder and CEO of Advanced Health Solutions. Dr. Yale previously worked in the federal government as a Commissioned Officer in the US Public Health Service, Legislative Counsel in the US Senate, Special Assistant to the President and Executive Director of the White House Domestic Policy Council, and Chief of Staff of the White House Office of Science and Technology.
Dr. Yale provides leadership and actively participates with industry organizations, including the American Medical Informatics Association, Workgroup on Genomics and Translational Bioinformatics; Bloomberg/BNA Health Insurance Advisory Board; Healthcare Information and Management Systems Society; International Society of Pharmaceutical Outcomes Research; and the URAC Accreditation Organization. He is an instructor in healthcare predictive analytics at the University of California Irvine Online, and a frequent speaker and author on health and technology topics, including the book “Clinical Integration: Population Health and Accountable Care,” and co-author of “Practical Predictive Analytics and Decisioning Systems for Medicine.”
My calling is to educate and assist patients while navigating their illness and Healthcare, and to improve Healthcare nationally and internationally. I am a multiple rare disease EPatient, Rare Disease Patient Advocate, and Healthcare Legislative Activist.
I have a unique skillset that allows me to bring knowledge and enthusiasm to projects that I undertake. I was a Senior Appeals Specialist for a National Health Insurer. While employed I was fortunate to participate in a professional program that lead to my receipt of a Master’s Degree in Managed Healthcare through Montana State University, and access to 2,000 online Harvard Business Courses. It was during this time that I became ill and started my search for a diagnosis and treatment for an illness that one specialist out of 52 in 4+ years could diagnose and treat. After my main rare diseases were diagnosed and emergency surgeries complete; I could no longer work a regular 8 hour 5 day a week job. My life did fall apart. Everything was gone as I had planned and worked so hard to obtain.
It took me several years to heal physically and mentally from the events that stole my life. Slowly I began to find my footing and gain confidence. I realized I still had a lot to offer others when they were in a comparable situation or with health insurance issues. I became a Moderator of an online patient group. In a years’ time I became the Director of Members Services for the whole Online Community with 35,000+ international members when I accepted my position at Ben’s Friends. I then reached a point I could see past my own health circumstances and knew I was ready to work not just helping other patients but to improve Healthcare. I joined “Rare Disease Legislative Advocacy” and became a Lobbyist for Healthcare Legislation on a Federal and State level. I have been a panelist and speaker at Patient Centricity Conferences and Meetings, assisted in an app development by Lily COI, was named a Stanford MedX Scholar in 2013, worked with the Social Security Administration to improve their Ticket to Work Program, co-developed Patients for Clinical Research, am an Advisor and Ambassador for CureClick, nominated as a Health Activist Hero for WEGO Health and still work with WEGO when possible, and am a Clinical Research proponent, and I have been known to write and speak for organizations on varied health subjects.
In December 2013 I joined SPM, and became involved in the Listserv from an EPatient and when needed a payer perspective. On a SPM Hangout I offered to be a project manager for SPM. The SPM Board then came back with the 2016 Initiatives, as the lead project manager I set up Freedcamp Projects for each of the 13 + projects. I manage those Initiatives that began on 4/1/2016 and will continue until 4/1/2017 and several will extend to 8/1/2017 and beyond. I was asked to take over the Membership Committee and to become John Hoben’s assistant on the Internal Communication Committee and Co Editor of SPM’s monthly Newsletter- that I am still learning the ropes. In November 2016 I was asked to join John Hoben, Peter Elias, and Dave deBronkart to develop the new SPM Forums.
I am very proud of my accomplishments. Things are much sweeter when all the odds are against you and you find your place in life even if it wasn’t the destination you first mapped out.
Alan Greene (2009-2010)
Gilles Frydman (2010 partial)
Danny Sands (2010-2012)
Sarah Krug (2012-2013)
Josh Seidman (2013-2014)
Nick Dawson (2014-2015)
- Dell Medical School and the Future of Care--Jon Lebkowsky
- Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care--Ileana Balcu
- Diabetes patient leaders: apply by 2/15 for fully funded #MasterLab Leadership Institute--e-Patient Dave
- Precision Medicine For Me (a new open collaboration) launches at #PMWC17--e-Patient Dave
- A Framework for Designing Digital Health Tools with Empathy
- Electronic Screening to Increase Identification of Risk: Lessons Learned in the Implementation of an mHealth Risk Assessment Strategy in an Urban Primary Care Environment
- Use of Conjoint Analysis to Determine Patient Preferences for Surgical Treatment of Urethral Stricture Disease
- Exploring Self-Tracking as a Participatory Research Activity Among Women with Endometriosis