Board of Directors
The Society’s Executive Committee sets the overall agenda of the Society and leads the organization in its day-to-day activities. It is made up of Board Members and two members-at-large selected from the general membership of the organization. The current executive committee is:
- President – Jonathan Wald, MD, MPH
- President-Elect – Joseph Ternullo, JD, MPH (President term beginning 12/2016)
- Past President – Nick Dawson
- Treasurer – John Grohol, Psy.D.
- Secretary – Nancy Finn
- Member-at-Large – Peter Elias
- Member-at-Large – Peggy Zuckerman
- Board Chair – Danny Sands, MD
- Acting Executive Director – Sarah Krüg
Additional Board Members
- Kyra Bobinet, MD, MPH
- Donna Cryer, JD (on leave)
- Dave deBronkart
- Eric Glazer, MBA
- Joe and Terry Graedon, Co-Editors of JoPM (ex-officio)
- John Hoben
- Mark W. Reifsteck, MHA
- Jane Sarasohn-Kahn (on leave)
- Charlie Smith, MD, Editor of JoPM (ex-officio)
Kyra Bobinet, MD, MPH
When is comes to health engagement, Dr. Bobinet has 5 words of advice: be caring, authentic, and useful. As the CEO-founder of engagedIN, a behavior design firm sprouted out of Stanford, Kyra is devoting her life to helping people crack the code of how, what, and especially, WHY we engage in things.
Kyra has founded several healthcare start-ups, spanning behavior health, population health, and mobile health. She has designed behavior change programs, big data algorithms, billion dollar products, mobile health apps, and evidence-based studies in mind-body and metabolic medicine. All of her designs, whether for at-risk teens or seniors, are rooted in the belief that true caring is our greatest salve.
Dr. Bobinet currently co-teaches courses at Stanford School of Medicine on patient engagement and empowerment, and health design with Dr. Larry Chu, founder of MedicineX. She also studies in Dr. BJ Fogg’s Persuasive Tech Lab at Stanford.
Dr. Bobinet received her Masters in Public Health at Harvard University, specializing in Healthcare Management, Technology-enabled Behavior Change, and Population Health Management. She received her medical degree from the UCSF School of Medicine.
When she’s not geeking out on neuroscience literature, you can find her engaged in her kids, minimalist eco design, and surfing.
Donna R. Cryer, JD
Donna R. Cryer, JD, has channeled her personal experience as an IBD and liver transplant patient into professional advocacy as president and chief executive officer of the Global Liver Institute, the innovation and collaboration platform for the liver community. Ms. Cryer most recently served as Chair, President & Chief Executive Officer of the American Liver Foundation, the largest and oldest national non-profit organization serving liver disease patients and their families. She was the first patient to lead the organization in its thirty-six year history.
For eight years, Ms. Cryer led CryerHealth, a healthcare consulting firm providing strategic counsel to top biopharmaceutical companies, patient advocacy organizations, and emerging technology firms on patient engagement in health information technology, drug discovery, and clinical decision making.
Her e-health experience includes serving on the Office of the National Coordinator for Health Information Technology Policy Committee’s Privacy and Security Workgroup, technical expert panel on patient-generated health data, the launch of the Office of National Coordinator for HIT (ONC) consumer engagement campaign, as a member of the White House e-health equity taskforce and the executive committee of the Patient Experience Council of the Louis W. Sullivan Institute for Healthcare Innovation. She is a frequent speaker at top health and HIT conferences, including Health 2.0, the mhealth summit, the Digital Health summit, and epatient Connections. Her blog, DCpatient – An Impatient Patient’s Perspective from Washington, DC, and twitter feed @DCpatient are listed as top resources for insights into emerging e-patients and patient advocates.
Ms. Cryer is a patient representative to the U.S. Food and Drug Administration, a merit reviewer for the Patient Centered Outcomes Research Institute (PCORI), and a member of Stakeholder Advisory Group to the NIH Learning Health System Research Collaboratory. Additionally, Ms. Cryer serves on the Gastroenterology Board of the American Board of Internal Medicine, the American Society of Clinical Oncology Guidelines Committee; Hepatitis B Infection Screening in Patients Receiving Chemotherapy for Treatment of Malignant Diseases, the Board of the Personalized Medicine Coalition, a member of the Patient and Consumer Advisory Council for the Center for Medical Technology Policy.
Ms. Cryer received an undergraduate degree from Harvard/Radcliffe Colleges and received a Juris Doctorate from the Georgetown University Law Center.
She resides in Washington, DC, with her husband, Dennis R. Cryer, MD, FAHA.
I’ve dedicated most of my professional life to healthcare. Currently, I serve as the patient experience officer and the lead strategist for a venture capital funded firm in Richmond Virginia. My previous roles span an interesting swath of senior hospital management functions from innovation and strategy to operations and finance. What those roles have in common is my focus on bringing more humanity to the areas I served.
Whether focused on financial, strategic, or operational leadership, my aim is to engage with smart, fun people who want to make working in, or receiving healthcare constantly better. While working in patient finance role, it was about creating a radical approach to approving charity care which removed stress and discomfort for staff and patients. In my strategy roles, I focused on spotting patients’ sticking points, then brainstorming solutions with other stockholders. As an operational leader of several departments, I challenged my staff and myself to try and make our units the best work environment possible.
Every role I’ve held has required working with and coaching senior management teams, executives and boards. This is as engaging as collaborating on problem solving. My proficiency in public speaking leads to being asked to present on national and international stages. I’m active online, particularly in circles excited about healthcare, patient-centeredness and participatory healthcare. Today, I serve on both the Advisory Board and the ePatient board for Stanford’s Medicine X program, positions I have held for two consecutive years. I also serve on Mayo Clinic’s Center for Social media, for the 3rd consecutive year. I hold a Masters in Hospital Administration from the University of Minnesota. I would also enjoy an opportunity to help strengthen the Society’s ties with these organizations and others.
“e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one website said.
He received great treatment at Boston’s Beth Israel Deaconess Medical Center. His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions have continued to shrink.
An accomplished speaker and writer in his professional life before his illness, today Dave is
actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient.
Peter Elias, MD
I am a family physician, practicing in central Maine, with a bit over 30 years of active practice on my odometer. I am happily and solidly married to a woman who knows me well enough to be skeptical and loves me enough to be willing to keep me honest. We have two grown (wonderful) kids and three magical grandchildren, two in Vermont and one in Montana. My interests include medicine (which has also been my career), genealogy, photography, cognitive and behavioral neuroscience, medical informatics, and acoustic folk guitar. I love to be outdoors, hiking, canoeing and swimming in summer and nordic skiing in winter.
Nancy B. Finn is a health care journalist, speaker, and thought leader on the impact of digital communication on organizational behavior in healthcare and patient care. She is the author of e-Patients Live Longer, the Complete Guide to Managing Health Care Using Technology, and Digital Communication in Medical Practice. She also writes a health care blog www.healthcarebasicsinfo.com, and is a frequent contributor to e-Patients.net and the Journal of Participatory Medicine.
Nancy is a member and a spokesperson for the Global Alliance for Women’s Health, an NGO organization affiliated with the United Nations Economic and Social Council, where she frequently speaks on digital technology to improve women’s health. She is a member of the Massachusetts Quality Health Partners, Consumer Health Council and is on the Board of Overseers at Mount Auburn Hospital in Cambridge, MA, She is also the patient advocate representative to the BIDCO Board of the Beth Israel Deaconess Hospital in Boston and a member of the Health Advisory Board of the Massachusetts Technology Leadership Council.
Eric Glazer, MBA
Eric Glazer leads Best Doctors leads physician engagement and product management strategies for providers, combining traditional tactics with digital media to build brand awareness among the global medical community. He is committed to helping people when they need help the most … when they are sick. Complex medical challenges are best solved by bringing together the best medical minds in the world. His team produces the most clinically relevant and easytouse collaborative tools available to physicians anywhere. Eric holds a BS and MBA in Health Care from Union College in Schenectady, New York. You can connect with him via twitter (@EricGlazer) or LinkedIn.
Joe and Terry Graedon
Joe and Terry Graedon co-host the popular radio program, The People’s Pharmacy, as well as the syndicated newspaper column (King Features Syndicate) of the same name. Joe has an MS degree in pharmacology from the University of Michigan, 1971 and Terry has a PhD in Anthropology from the University of Michigan, 1976. They are both founding members of the Society for Participatory Medicine.
Joe Graedon is also a Fellow in Pharmaceutical Sciences of the American Association for the Advancement of Science (AAAS) for “exceptional contribution to the communication of the rational use of pharmaceutical products and an understanding of health issues to the public” in 2005 and sits on Dr. Oz’s Medical Advisory Board since 2012.
John M. Grohol, Psy.D.
John M. Grohol, Psy.D. is the CEO and founder of one of the leading mental health networks, Psych Central. He founded Psych Central in 1995 as one of the first mental health sites available that offered information about the symptoms and treatments of mental disorders, including interactive screening quizzes and self-help tools. Psych Central was recognized by TIME.com as one of the 50 Best Websites of 2008.
Dr. Grohol sits on the editorial board for the journal Computers in Human Behavior and is an active researcher in the area of online behavior and technology’s effects on human behavior. He won the Distinguished Professional Contribution to Media Psychology award from the American Psychological Association’s Division 46 in 2011, and is a member of the Association of Health Care Journalists. He is the co-author of Self-Help That Works and author of The Insider’s Guide to Mental Health Resources Online.
In addition to being a founding board member of the Society for Participatory Medicine and its current treasurer, he also sits on the boards of the International Foundation for Research and Education on Depression (iFred) and the non-profit Psych Central Community Connection.
John Hoben is Managing Member, Energy Benefit Group LLC (EBG). EBG serves business development (BD) specialized needs of several small to medium size (less than 5,000 staff) client firms with respective complex client bases. In this role, he provides acquisition candidate research, continuity planning, sales support and other BD services. Most recently, Hoben previously focused on national sales with health payer vertical for CTG (NASDAQ:CTG), a leading information technology services firm with nearly 4,000 staff worldwide.
Hoben developed other business by serving several Fortune 500 companies throughout the world with information security and other governance, risk and compliance services. He managed HIPAA consulting practices for several technology consulting firms and provided data administration and health system integration services to leading health corporations throughout North America. In it’s first printing, Hoben edited and co-authored a series of annual books published by Faulkner & Gray on health care and the Internet from 1996 to 2000. Previous clients include: US Department of Defense, Raytheon, The World Bank, Constellation Energy and several other multi-national public and private organizations, both for profit and not for profit.
Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing improved health status for populations through unique, individualized approaches. He is a life time member of the Society for Participatory Medicine and has served on several 501c3 boards.
Sarah Krug is CEO/Executive Director of CANCER101, a patient advocacy organization she has been on the board of for two years, in a quest to help patients and caregivers navigate their cancer journey. Driven by the passion to make an impact in patient care and engagement, Sarah has held a variety of roles within healthcare.
She previously held the position of Global Education Director in the Medical Education Group at Pfizer, focused on establishing global health care improvement strategies and medical education standards worldwide. She also established the Global Investigator Initiated Research Program at Pfizer. Prior to joining Pfizer in 2001, Sarah spearheaded the development of the Pediatric disease management clinical pathways and conducted clinical research at Memorial Sloan- Kettering Cancer Center. She is also on the board of the Cancer Patient Education Network, and serves as Research Chair.
Mark W. Reifsteck, MHA
Mark Reifsteck began his career in healthcare administration while attending Washington University’s Health Administration Program in St. Louis. Upon graduation in 1983, for the next 30 years he worked in senior executive roles in various size hospitals across 5 health systems in 4 states. He is currently engaged with a healthcare IT consultancy that helps hospitals and health systems adopt clinical information technology to better care for patients. Mark has studied and adopted the Malcolm Baldrige criteria for a large health system and is trained in Lean process improvement techniques. He has published an article in the Journal of Health Information Management regarding automating medication management in the acute care setting.
Mark serves on various not for profit boards including The Bethesda Group a leading provider of long term care in the St. Louis area, The Society for Participatory Medicine and the Washington University Olin School of Business Alumni Board.
Danny Sands, M.D.
Dr. Danny Sands is passionate about healthcare transformation. A practicing physician with training and experience in clinical informatics, Dr. Sands has worked in a variety of capacities in the health care IT industry since 2004. Prior to that he spent almost 14 years at Beth Israel Deaconess Medical Center, where he developed and implemented innovative systems to improve clinical care delivery and patient engagement, including clinical decision support systems, an electronic health record, and one of the nation’s first patient portals.
Dr. Sands is the recipient of numerous healthcare honors, including recognition in 2009 by HealthLeaders Magazine as one of “20 People Who Make Healthcare Better.” He is the co-author, with e-Patient Dave deBronkart, of Let Patients Help.
Dr. Sands holds an academic appointment at Harvard Medical School and for twenty years has maintained a primary care practice in which he makes extensive use of health IT—much of which he helped to introduce during his tenure at Beth Israel Deaconess Medical Center. In addition to practicing, Dr. Sands is a speaker and works with a number of innovative companies.
Dr. Sands is a popular speaker and consultant, who blogs at DrDannySands.com and is active on Twitter as @DrDannySands.
Jane Sarasohn-Kahn, MA
Jane Sarasohn-Kahn is a health economist, advisor and trend-weaver to organizations at the intersection of health, technology and people. Jane founded THINK-Health after spending a decade as a health care consultant in firms in the U.S. and Europe. Jane’s clients are all stakeholders in health, including technology, bio/life sciences, providers, plans, financial services, consumer products, public sector and not-for-profit organizations. Jane founded the Health Populi blog in 2007, covering health policy, technology, and consumers.
Jane advises clients on strategy and new product development at the nexus of health+tech+people via environmental analysis, scenario and strategic planning, and health policy analysis. She is on the advisory boards of CanSurround, CAQH’s U.S. Health Efficiency Index, the Center for Connected Health Symposium, the Health 2.0 Conference, the HIMSS mHealth Committee, Intuit’s American Tax & Financial Center, and WEGO Health. A frequent public speaker on health economics, consumers and technology, Jane also writes for the Huffington Post Healthy Living section and for California HealthCare Foundation’s iHealthBeat.
Jane holds an MA (Economics) and MHSA (Health Policy) from University of Michigan. While Jane loves her work, she is even more passionate about family and home, Slow Food and her local CSA, art, playing with LEGOs, and living a full and balanced life. Follow Jane along with 17,000+ others on Twitter @healthythinker. See more on Jane at www.janesarasohnkahn.com
Charles W. Smith, M.D.
Charles W. Smith, M.D. is the Founder, Chairman, and Medical Director of eDocAmerica, and is a board certified family physician with over 25 years of experience in practice.
He is the executive associate dean for clinical affairs at the University of Arkansas for Medical Sciences (UAMS) and is professor in the Department of Family and Community Medicine where he has been serving since 1989. In his role at UAMS, he also serves as the medical director for UAMS Medical Center and the physician director of medical informatics at the University. In this role, he is responsible for initiating and implementing software programs to assist physicians in the provision of care at UAMS. He is also responsible for the oversight of the quality of medical care provided at UAMS.
He has served as a national leader in family medicine, as editor of the American Family Physician, a national journal for family physicians, and has also served as the president of the American Board of Family Practice, which is the national certifying body for family physicians.
He recently served as the chair of the Group on Faculty Practice, a national organization of medical school faculty practice plans within the American Association of Medical Colleges. He is author of numerous medical journal articles and is co-author of a medical textbook, ‘The Handbook of Family Practice.’ He continues to conduct an active practice and holds regular office hours in the Outpatient Center of the University of Arkansas. His areas of special interest and expertise include sports medicine and fitness, skin disorders and stress-induced disorders.
Smith did his medical training at the University of North Carolina and, after practicing in Muscatine, Iowa, became director of resident physician training in Dayton, Ohio at Wright State University. In 1986, he relocated to Huntsville, Alabama, where he served as the chair of family medicine and dean of the School of Primary Medical Care at the University of Alabama in Huntsville a branch of the University of Alabama at Birmingham. He came to Little Rock in 1989 to assume his current position at UAMS.
Joseph Ternullo, JD, MPH
Joseph Ternullo, JD, MPH has focused the past 20 years of his career on healthcare. Joe is well known for his 17 years as the associate director of Partners HealthCare’s Center for Connected Health. He founded and chaired for 10 years the Connected Health Symposium, a two-day international conference with a prominent patient engagement focus. He was a co-founder of the Continua Health Alliance, a standards and interoperability organization. Joe has served on two federal advisory committees, including the US Department of Health & Human Service’s American Health Information Communities Chronic Care Workgroup. Joe has authored several publications focused on healthcare technology and served on several international and domestic boards. Most recently, he led a health technology start-up that established an exploratory US presence. Joe holds degrees from Boston College, Bentley University, Boston University School of Law and Harvard T.H. Chan School of Public Health.
Jonathan Wald, MD, MPH
Jonathan Wald, MD, MPH, FACMI, is the Director of Patient-Centered Technologies in the Center for the Advancement of Health Information Technology (IT) at RTI with over 18 years of experience in medical informatics. His work in academic and corporate settings includes clinical systems design, development, implementation, usability, policy, and research. His research and publications have focused on patient computing, electronic medical records, confidentiality, personalized medicine, and other topics. His main interest is understanding how advanced information technology used by patients and providers can improve communication, clinical decision support, clinical outcomes, and the patient care experience. He has presented nationally on the integration of electronic medical records, consumer informatics, and patient–physician electronic communication. For ten years he led the patient portal team at Partners HealthCare, Boston, where Patient Gateway connected 200,000 patients with over 3000 physicians. Dr. Wald is an instructor at Harvard Medical School, received his MD from Brown University School of Medicine and his MPH from the Harvard School of Public Health. In 2007 he was elected a Fellow in the American College of Medical Informatics.
As with so many patient advocates, Peggy has not had a formal role in health care until she was diagnosed with Stage IV kidney cancer, following months of misdiagnosis. Today, she is considered an “expert patient,” about kidney cancer and empowerment of patients and volunteers with multiple patient groups
Her kidney cancer blog, http://www.peggyRCC.com emphasizes treatment options by translating important studies into patient-friendly terms, empowering the patient to make better treatment decisions. Her recent article in the National Patient Safety Foundation journal demonstrated the value of patients’ access to their own health records.
Peggy has been a reviewer of grant applications for the US Department of Defense and the Patient Centered Outcomes Research Institute. Currently she is a patient consultant with Prometheus Labs where she trains the sales force about the patient experience, reaching doctors, nurses, and patients. In 2014, Peggy joined an external advisory board with Roche/Genentech as they created patient-centric clinical trials. In the greater LA area, she is active contributor and speaker to support groups at the City of Hope and Cedars-Sinai through the Kidney Cancer Association and the Action to Cure Kidney Cancer.
Alan Greene (2009-2010)
Gilles Frydman (2010 partial)
Danny Sands (2010-2012)
Sarah Krug (2012-2013)
Josh Seidman (2013-2014)
Nick Dawson (2014-2015)
- From Regina Holliday’s blog: on Patient Advocacy--Ileana Balcu
- Last call: Vote for patient activists (and more) at Health 2.0 next week--e-Patient Dave
- e-Patient alert: “Are sites like WebMD healthful?” Dive in on NYTimes debate--e-Patient Dave
- Sips with the Society: SPM Receptions at Health 2.0 and Connected Health Summit--Susan Woods
- Adolescents’ Perspectives on Having Type I Diabetes, on Current Outpatient Diabetes Care, and on Improvement of Care by Using the Internet
- Patient Engagement: A Skill Cultivated Through Deliberate Practice? How the Evolution of Lean May Reveal a New Frontier in Person- and Family-Centered Care
- The Value of a Therapeutic Gardening Intervention for Post-Stroke Patients’ Engagement During Rehabilitation: An Exploratory Qualitative Study
- Alternative Sources of Health Care On Every Corner and in Cyberspace