This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below!
First, a bit of background, then the request.
Regular readers know that the BMJ (formerly the British Medical Journal) is far and away the most participatory of all medical journals; it’s the global-level journal that has made important declarations about its patient partnership, and is genuinely doing the work. Click the image at left to visit their page, but in short, here are some of the remarkable things they’re doing to make healthcare – and their journal – truly see things from the patient’s perspective.
- A patient advisory panel (I’m on it)… and the editors actually ask us about policies and listen, like real peers(!)
- Other SPM members on the panel include Glyn Elwyn, Sara Riggare, and former board member Larry Chu (head of MedicineX)
- When authors of research papers upload an article, to ask for publication, they’re asked how they involved patients in selecting the research question, what outcomes to measure, even the design of the study(!)
- The answers are published along with the article. Isn’t that amazing?
- Here’s the juicy part: patients (with no medical degree) can act as peer reviewers for articles about their disease! Yes, selected patients can be among the reviewers of a submitted article, saying “This is great!” or “Wait, what about this??”, exactly like the other docs and researchers who review the paper. [Edit: If you think “what could I have to offer, a mere patient??” see this comment below by SPM member Carolyn Thomas, who not only jumped in, she’s even blogged about the experience on the BMJ website!]
The BMJ has asked us (the patient advisors) to help find patients with any condition, but especially these conditions, who want to become patient reviewers. Here’s the list:
chronic kidney disease
non osteoporotic bone fractures
cervical cancer screening
coronary stents or other cardiac procedures such as cardioversion
urinary tract infections
could use more reviewers for type 2 diabetes. Existing reviewers have been asked a lot.
pelvic organ prolapse
exercise programs for weight loss, etc.
ear nose throat
heart attack prediction – especially women
To learn more and register if you want:
See their requirements page to understand what’s involved. Unless you’re already an experienced journal reviewer there will be things to learn, but the editors are truly eager to help, so you’re not alone.
Once you’ve done that, you can follow that page’s instructions for registering as a reviewer.
Help the BMJ make medical journals more patient-centered and participatory – spread the word!