The following post was written by Alexandra Drane and the Engage With Grace Team. Here’s an image of the slide, and below is the post that many are sharing today. (The original PowerPoint slide is linked within the post.) Please see comments at end.
We make choices throughout our lives – where we want to live, what types of activities will fill our days, with whom we spend our time. These choices are often a balance between our desires and our means, but at the end of the day, they are decisions made with intent. But when it comes to how we want to be treated at the end our lives, often we don’t express our intent or tell our loved ones about it.
This has real consequences. 73% of Americans would prefer to die at home, but up to 50% die in hospital. More than 80% of Californians say their loved ones “know exactly” or have a “good idea” of what their wishes would be if they were in a persistent coma, but only 50% say they’ve talked to them about their preferences. But our end of life experiences are about a lot more than statistics. They’re about all of us.
So the first thing we need to do is start talking. Engage With Grace: The One Slide Project was designed with one simple goal: to help get the conversation about end of life experience started. The idea is simple: Create a tool to help get people talking. One Slide, with just five questions on it. Five questions designed to help get us talking with each other, with our loved ones, about our preferences.
And we’re asking people to share this One Slide – wherever and whenever they can, at a presentation, at dinner, at their book club. Just One Slide, just five questions. Let’s start a global discussion that, until now, most of us haven’t had. Here is what we are asking you: Download The One Slide (PPT)and share it at any opportunity – with colleagues, family, friends. Think of the slide as currency and donate just two minutes whenever you can. Commit to being able to answer these five questions about end of life experience for yourself, and for your loved ones. Then commit to helping others do the same. Get this conversation started.
Let’s start a viral movement driven by the change we as individuals can effect…and the incredibly positive impact we could have collectively. Help ensure that all of us – and the people we care for – can end our lives in the same purposeful way we live them. Just One Slide, just one goal. Think of the enormous difference we can make together.
To learn more please go to www.engagewithgrace.org
Please watch the video of the story behind Engage with Grace:
Alexandra Drane, CEO of Eliza Corp. at Health 2.0
Susannah — Thank you for this post.
Over the holiday I visited my mother — 85, with advanced Alzheimer’s, and in a nursing facility that provides 24-hour care. You can imagine how difficult this is for the entire family. There is one small concession that helps us all.
When my mother was still very sharp she planned her own end of life care. She was very detailed in her plans for everything from her funeral to buying expensive (at the time) nursing home insurance in case she should come to the point that she could not take care of herself.
This is not the way I want to spend my final days, but knowing she planned for this makes it easier for all of us to face and I thank her for that gift.
Thank you, Cheryl. My heart goes out to you and your family.
Susannah – I have put this on my facebook page – hope it gets some attention. This is a great idea.
Thanks, Deborah! I was in a meeting yesterday with a working group of the Patient Centered Primary Care Collaborative talking about how this model — a one-slide blog rally — could be used for other ideas and campaigns. For example, getting patient input when they are writing up PCPCC principles.
Talk about engaging with grace: The Washington Post published a wonderful story about a local hospice, Inside Joseph’s House.