by e-Patient Dave | Jun 22, 2016 |
Regular followers of this blog know for years we’ve been hot on the trail of the never-ending search for truth, justice, and please some reliable advice on medical matters. Tonight a google alert alerted us to the next round, the next attempt: a column by the... by e-Patient Dave | May 24, 2016 |
As regular readers know, we’ve written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new... by Casey Quinlan | Mar 23, 2016 |
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their... by e-Patient Dave | Mar 22, 2016 |
We’ve often written here about open access medical literature (freely available) vs “paywalled” journals. It’s a controversial subject, and this guest post is about an idea I’ve never heard of: a hackathon to explore the subject. (In the... by e-Patient Dave | Dec 17, 2015 |
Big news: a multi-foundation $10 million grant will spread OpenNotes access to fifty million more patients! Nearly 20% of America will have full access to their providers’ visit notes, so they can review them from anywhere! Regular readers know we’ve... by Ileana Balcu | Nov 10, 2015 |
The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic condition: Am I disabled? It discusses the Americans with... by Ileana Balcu | Sep 15, 2015 |
This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy... by Ileana Balcu | Sep 8, 2015 |
To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of... by e-Patient Dave | Jul 10, 2015 |
A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are... 
by Casey Quinlan | Jul 3, 2015 |
SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund...
#HCLDR chat on the 100th anniversary of women’s suffrage: 8:30 ET TuesdayJune 1, 2019
Fast-Paced Compelling Topics at Atlantic Pulse: The Atlantic Summit on Health Care, BostonMay 2, 2019
Manage your health data, or trust blindly? Setting the stage for a data disaster, part 2April 11, 2019
It’s the 10th anniversary of trying to get our health data: “I’m putting my data in Google and HealthVault”April 10, 2019
A million views in 44 days! ClearHealthCosts price transparency TED Talk goes viralApril 5, 2019
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