by e-Patient Dave | Sep 16, 2014
On my own site I have a (loose, rough, poorly managed) list of patient communities, gathered ad hoc, as time allows. Today I posted a new contribution of a different sort – the experiences of a prostate cancer patient I met at a speaking event last week in...
by e-Patient Dave | Sep 7, 2014
Regular readers may recall SPM member Zack Berger MD PhD’s July post here The pledge of the patient-centered physician. Zack is one of the many SPM members attending the Stanford Medicine X conference this weekend and sends this Saturday night report,...
by e-Patient Dave | Jul 27, 2014
Ah, social media. On Facebook a couple of hours ago, Swedish SPM member Sara Riggare posted: Responses were quick and robust: “Web MD has an app that you can download that I use. I find it pretty useful.” –Â Mark Burek “That’s a sticky...
by Susannah Fox | Jul 23, 2014
At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing...
by Ileana Balcu | Jun 10, 2014
Interesting blog at HIMSS by Pete Rivera: use the patient to redesign the workflow: Thought Leadership – the Patient Perspective For years, I advocated that health IT does not drive business. I still do. Rethinking your processes to leverage technology is just...
by Marge Benham-Hutchins | May 21, 2014
An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen Hawking’s statement, “we learned to talk, we learned to listen, we...
by Ileana Balcu | May 15, 2014
Uri Goren is the General Manager of e-Pochonderiac a blog about healthcare and digital technology and also a digital health consultancy and agency working in Israel to support digital health in the local health and pharmaceutical industry and to promote the roll of...
by Ileana Balcu | May 13, 2014
A handy one page chart from our Past President Sarah Krug through Cancer101 summarizes the best way to become an e-patient: Click to access top-10.pdf Here are a few points: You have a story to tell. Don’t be afraid to tell it. Make sure to write down and ask...
by e-Patient Dave | May 4, 2014
Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from...
by e-Patient Dave | Mar 27, 2014
The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering...
by e-Patient Dave | Mar 5, 2014
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
by Susannah Fox | Feb 28, 2014
A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...
by e-Patient Dave | Feb 25, 2014
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University’s Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post...
by Nick Dawson | Jan 23, 2014
This post originally appeared on NickDawson.net here. Spoiler alert: I’m not dying and there doesn’t appear to be anything major wrong with me. I know, you hate spoilers. But I thought I’d get that one out of there way. It makes the rest of this considerably...
by Ileana Balcu | Jan 14, 2014
Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records:...
by Ileana Balcu | Oct 10, 2013
We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care...
by David Harlow | Sep 23, 2013
[Note added by e-Patient Dave: this is such a big deal that I’m taking the rude step of adding highlights [bold] to Attorney Harlow’s post!] We’re inching closer to promulgation of final regulations that will likely make all lab test results more...
by Ileana Balcu | Sep 11, 2013
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
by David Harlow | Aug 28, 2013
There’s a new index in town. This week’s entrant is the EveryMove 100, a ranking of health plans across the US “based on how they engage with and empower consumers to manage their own health.” according to the presser. (EveryMove is a health...
by e-Patient Dave | Aug 16, 2013
SPM member Kelly Young is one of the most spectacular, potent, world-changing e-patients I’ve ever seen. (See our many posts here about her activism.) Aside from all her work on RAWarrior.com and her Foundation, see how she uses this case to teach. Peer-to-peer...
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