by Casey Quinlan | Mar 23, 2016 |
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their...
by Casey Quinlan | Mar 8, 2016 |
SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, “Patient Leaders Want To Kill Pharma TV Ads, Right Now,” at the 2016 ePharma Summit in New York last week (February 29 through...
by Casey Quinlan | Sep 9, 2015 |
A guest post from member Jeffrey Halbstein-Harris – this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout...
by Casey Quinlan | Jul 3, 2015 |
SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund...
by Casey Quinlan | Jun 30, 2015 |
Our fearless leader, Nick Dawson, has a terrific piece up on RVANews.com about the issues around building a children’s hospital in Richmond, Virginia. An excerpt: 100% of healthcare costs are passed onto the public. Most costs seem to be borne by insurance...
by Casey Quinlan | Jun 26, 2015 |
The Society for Participatory Medicine believes that an effective healthcare system is a collaborative one, where care providers and the patients and families they care for work together toward the best possible health outcomes. The importance of this partnership...
by Casey Quinlan | May 8, 2015 |
This came over my transom from a friend who works with a major medical school’s digital publishing group. Seems both relevant, and high impact. – Casey Seasons Change by Candace Barnes i. When I left for the hospital The night was bitter cold, And snow...
by Casey Quinlan | Apr 18, 2015 |
Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your...
by Casey Quinlan | Mar 27, 2015 |
Participatory medicine and healthcare system transparency warrior Cyndy Nayer put this up on her blog this week, and we’re re-posting it here because it’s a message that’s got to spread. A personal account of a transaction that went very badly, and...
by Casey Quinlan | Mar 2, 2015 |
In a study report hitting the digital wires on Health Affairs at 4pm Eastern time today (March 2, 2015), a group of researchers are reporting the results of a longitudinal study of Patient Activation Measure (PAM) impact on cost and outcome metrics from a large study...
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Lived Experience + Expertise = ValueJuly 22, 2017
#BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ETJuly 12, 2017
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