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Pledge your Commitment to the Participatory Medicine Manifesto

Having an amazing community is what led to creating a manifesto, a statement of what we at the Society for Participatory Medicine (SPM) believe, and how to put those beliefs into practice and transform the culture of healthcare!

We had input from dozens of people in co-creating the manifesto: conference attendees at the Society’s annual conference in 2018, the board, members on Connect, and many more people. We couldn’t have gotten where we did without everyone’s involvement.

Pledge your commitment to the Manifesto, and share it widely on social media, with your friends and family and with your organization.

There are three parts to the Manifesto.

  1. The manifesto itself, what we believe in one paragraph
  2. The highest level areas that we agree to focus on.
  3. Most importantly, are the “I Will” statements that we created based on everyone’s input. These are the key, they are what makes this more than a piece of paper. These are the things that we hope everyone agrees to take on. For example, As a Patient, I will be prepared to share my story and experiences completely, accurately, and honestly.

Thinking about pledging?

 

SPM Manifesto

Whether you’re a patient, clinician, caregiver or other health citizen – sign the pledge today!
Please let us know if you have any questions or suggestions and let us know how we can help you helps us spread the word!

 

Easy ways to share the Manifesto

The Participatory Medicine Manifesto is a document that you can share, you can post on social media, and you can use to explaining how we think and why we exist. And maybe you’ve thought of something we haven’t. In that case please email us at manifesto@participatorymedicine.org.

Pay Attention to the Symptoms, but Don't Ignore the Patient
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog post, however, let’s step into the wayback machine and venture nearly 25 years into the past, a heady time pre-diagnosis.... read more ❯
Video Series: Doctor to Doctor
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of the Health Story Collaborative. Here they discuss what it means being a doctor and having to say “I don’t know” to a patient. Did you enjoy this video? Sign the Manifesto and learn more about becoming a member. read more ❯
Seeing Red about Pink Eye
I don’t like having something wrong with my body.  I don’t like feeling achy. I can’t stand fevers. I don’t like being sick. When I do get ill, I want whatever healthcare team I deal with to be full of empathy and quick to figure out what ails me. If that sounds a bit high maintenance,... read more ❯
Boost Health IT’s Impact: Think With a Participatory Lens
In 2013 the Institute of Medicine published a landmark 436 page consensus report, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. Its summary contains the characteristics of a continuously learning system:  Note that the second priority listed is “Patient-Clinician Partnerships,” defined thus: Engaged, empowered patients—A learning health care system is anchored... read more ❯
Participation starts with understanding goals, values and preferences
For the past 20 years, I’ve been involved in designing diverse health experiences: from diagnostic to adherence tools, from software for cytostatic preparation, to integrated mobile health solutions. During these projects, I cannot say that the patient was never included in creating these solutions. However, there has been a remarkable evolution into “how” the patient... read more ❯

 

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