Agenda

• Welcome and Introduction – welcoming new Board Members with a quick personal intro from everyone, with personal goals with the Society for the next year from each of us. (Alan – 20 min)
• Approval of July minutes – https://participatorymedicine.org/2012/july-19th-2012-board-meeting-minutes
• Membership and Financial Update
• Memes Update and Opportunities
• Executive Director Search
• Journal Update
• Seal Update
• Lenox Hill Project
  Patient scholarships
• Internal communications / listserv / forums

Participants:  Hugh Campos,  Larry Chu, Dave DeBronkart, Nancy Finn, Joe and Terry Graedon, Alan Greene, John Grohol, Sarah Krug, David Lansky, Deb Linton, Michael Millenson, Danny Sands,  Marcus Thygeson

Board Chair Alan Greene opened the meeting by asking everyone for a short introduction and personal goals for the year as follows:

Alan Green, M.D. Clinical Professor of Pediatrics at Stanford University School of Medicine.  Goal: implementing the seal program; get the Journal moving up a notch.

Danny Sands, M.D., Independent Consultant, Goals  get new people  engaged; implement our  strategic plan  that will move us  to the next stage in participatory medicine and help us understand more  about the patient experience.

David Lansky Pacific Business Group on health. Goal: get more payer perspective and more interaction between payer/purchaser community.

John Grohol Psy.D. CEO and founder of  Mental Health Networks Psyc Central. Goals: reinforce the need for mental health to be included in the conversation; hiring of Executive Director.

Terry Graedon Co-Editor JOPM, Goal: get more people involved in reviewing and writing articles for the Journal.

Nancy Finn, Healthcare Journalist, Author. Goal: spread the word about participatory medicine and e-patients to mainstream health care consumers through the mass media.

Dave deBronkart e-patient dave. Goals: get out the word & initiate action agendas on patient engagement and patient empowerment; increase participation in e-patients.net blog.

Joe Graedon, Co-editor, JOPM. Goals:emphasize patient safety; reinforce patient access to information and the Open Notes initiative as part of our mission.

Marcus  Thygeson, M.D, VP Medical Services Blue Shield.  Goal: patient driven medicine and shared decision making as keystones in participatory medicine.

Hugo Campos, e-patient thought leader. Goals: positioning Society and its work in the mainstream; Bringing transparency to data related to medical devices.

Deb Linton –Master’s candidate, UC Berkeley  Goal: roll out Society’s long developing initiatives.

Michael Millenson, President of Health Quality Advisors LLC, President-elect SPM. Goals: expand our  communications and promote the strategic plan initiatives and membership outreach.

Sarah –CEO/Executive Director of CANCER101, Goal: drill down into both our Education & Research pillars by launching patient, caregiver & health care professional education around participatory medicine and aggregating research that demonstrates impact of participatory medicine.

Larry Chu, M.D. Anesthesiologist, Director Medicine X, Stanford CA. Goal: reinforce emerging technologies from patient perspective.

Minutes from July 19 Board Meeting approved

Membership and Financial Update (John):

• 373 active members:  approximately two dozen corporate members and the rest are individual members.
• $117,000 in the Treasury
• Currently engaged in active membership recruitment Alan suggested we develop internal dashboard to see how we are doing on our goals

The State of the Movement: (Dave):

Dave talked about the fact that this is truly the critical time for the participatory medicine movement and that patient engagement, patient empowerment, e-patient have finally become commonly understood buzz words reinforced by the mandates of Meaningful Use. Dave also talked about the need for more member involvement in the e-patient.net blog that he can no longer manage alone.  He wants to see expanded action agendas in participatory medicine.

Executive Director Search (John):

37 applications submitted; 11 individuals with qualifications and relevant experience selected for review; now paring down to five most qualified candidates to interview; Hope to make an offer to best candidate by the end of the year.

Danny added that managing volunteer leaders must be part of the Executive Director’s responsibilities.

Part time Interim Admin Support (Sarah):

Responsibilities: Grant requests; Oversee list serve moderation; enhance communication efforts; special projects. Danny proposed as a possible alternative, we hire specific consultants for specific projects.

Motion: Authorize Executive Board to hire part time interim admin. between now and the next Board meeting, within the parameters of our fiscal limits. Passed.

Journal Update and Stats (Terry and Joe):

Continue to get submissions;

Have added editorials from staff.

Biggest challenge is to find enough reviewers. Need two reviews for each article.

Also need to encourage more people to submit articles.

We will generate and post a page with instructions about being a reviewer.  To sign up as a reviewer or to submit an article, http://www.jopm.org/submissions/

Stats: Articles 37 submitted in 2012 to date, 25 accepted/published: 2 Letters. 8 Editorials, 2 Commentaries, 1 Research, 1 Review, 7 Narratives, 2 Conference Reports, 1 Book Review, 1 On the Web.

Seal Update (Alan):

Participatory Seal program that encourages providers and patients to engage in a collaborative relationship is underway, moving forward and live on the website. Now we need to get patients and providers to take the pledge. Would like full Board and membership participation. To take the pledge go to:http://seal.participatorymedicine.org/

Lenox Hill Project (Sarah):

SPM is collaborating with Lenox Hill hospital in NY (part of the North Shore LIJ System), to build a one-year curriculum for residents on improving the patient experience. We are currently developing measurement instruments for this curriculum. A Focus Group was held to review strengths and weaknesses of this approach. Elements of the program include:  engaging the Center of Learning and Innovation; presenting a lecture delivered by SPM patients; secure grant funding for faculty time to design and deliver the curriculum.  All tech costs are being handled by the Lenox Hill system. We will publish and solicit press coverage on this initiative and ultimately transfer our leaning to other institutions. Materials produced in conjunction with this initiative will be co-branded.

Patient Scholarship Program Pilot (Sarah);

In conjunction with Body 2.Partnership with Patients and coordinated by Regina Holliday, SPM obtained a grant of $5K to support the travel costs for 10 patients to attend the conference. Each patient received $500 to defray their travel costs. Information on the availability of this scholarship was communicated through the list serve.  We are now looking for another grant that would expand this scholarship program and enable SPM to help patients with the cost of attending conferences Michael indicated that this is the type of conference that the Society should be organizing and running. There is a possibility that SPM will organize a pre-conference day-long session in collaboration with Health 2.0 or Connected Health, next fall. Our Executive Director would manage these programs.

Internal Communications (Michael):

We are getting reports that our List Serve is off putting to many people so we are looking into the Hoop La Forums and have the green light from the Executive Board to extend the Hoop.La Forums trial for 3 months. Hoop La Forums is a discussion platform that resembles the richness and functionality of forums with sections and discussions, without the need for a highly skilled admin to run it. The cost is $30 per month Hoop La Forums will not substitute for the list serve. It is in addition, and can be sent to an individual’s email inbox. There is no reply allowed. Once Hoop La is fully functional, we will notify our members and ask them participate in training sessions. The goal is to get our entire membership involved. We also plan to survey participants to get their feedback.

Summary of Action items:

• Everyone to register and nominate individuals for the Seal Program
• Need reviewers and article writers for JOPM and more writers for our blog
• Need to expand funding for patient scholarships through a grant
• Will select an Executive Director before the next Board Meeting
• Encourage our members to try out Hoop.la

Next Board Meeting, January 17 2013