Please alert us to open access references we can share with members. Include a citation and/or a link that anyone can access.
Patient-Centered Care In Cancer. Patient-centered care is about more than you may think! Cure. Brenda Denzler.
Personalized Strategies to Activate and Empower Patients in Health Care and Reduce Health Disparities. Jie Chen, C. Daniel Mullins, Priscilla Novak, Stephen B. Thomas. Health Education and Behavior, 2016. Recommended by Dave deBronkart. Designing culturally-sensitive personalized interventions is essential to sustain patients’ involvement in their treatment, and encourage patients to take an active role in their own health and health care.
Patient Empowerment and Ethical Decision Making: The Patient/Partner and the Right to Act Williams, Tyna. Dimensions of Critical Care Nursing, 2002. Recommended by Dave deBronkart. Consumer groups are demanding quality healthcare and are more knowledgeable regarding healthcare practices. A healthcare delivery model wherein the patient is central in the decision-making process will assist in the seamless intersections needed for quality healthcare. Practice development offers a way forward for the development of such an environment.
Patient-Centered Outcomes Measurement: Does It Require Information from Patients? Leif I. Solberg, Stephen E. Asche, John Butler, David Carrell, Christine K. Norton, Jeffrey G. Jarvik, Rebecca Smith-Bindman, Juliana O. Tillema, Robin R. Whitebird, Ann M. Werner, Jeanette Y. Ziegenfuss. Journal of Patient-Centered Research and Reviews 2017. Since collecting outcome measure data from patients can be expensive, time-consuming, and subject to memory and nonresponse bias, we sought to learn whether outcomes important to patients can be obtained from data in the electronic health record (EHR) or health insurance claims.
Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care. Susan B. Frampton; Sara Guastello; Libby Hoy; Mary Naylor; Sue Sheridan; Michelle Johnston-Fleece. National Academy of Medicine. January 31, 2017. Patient and family engaged care (PFEC) is care planned, delivered, managed, and continuously improved in active partnership with patients and their families (or care partners as defined by the patient) to ensure integration of their health and health care goals, preferences, and values. It includes explicit and partnered determination of goals and care options, and it requires ongoing assessment of the care match with patient goals.
Why “Precision Health” May Not Be the Precise Word. David Shaywitz. The Health Care Blog, 11/28/2017. The appeal of precision medicine is the promise that we can understand disease with greater specificity and fashion treatments that are more individualized and more effective. Suggested by Peter Elias.
Clinical decisions presented to patients in hospital encounters: a cross-sectional study using a novel taxonomy. Ofstad EH, Frich JC, Schei E, et al. BMJ Open. 2017. To identify and classify all clinical decisions that emerged in a sample of patient-physician encounters and compare different categories of decisions across clinical settings and personal characteristics.
Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers. Utengen A, Rouholiman D, Gamble JG, Grajales FJ III, Pradhan N, Staley AC, Bernstein L, Young SD, Clauson KA, Chu LF. J. Med Internet Res. 2017. Recommended by Geri Lynn Baumblatt.
Is There A Better Place To Decide What’s Right For Patients? Elaine Schattner. Forbes. What happens when a bunch of medical ethicists and other experts with university appointments, physicians, patients and advocates, current and former FDA officials, and a handful of pharma executives take elevators up to the 40th floor of a lower Manhattan building and talk about evidence for two days? Things get interesting, but not quite hot. An academic tone prevailed. June 30, 2017. Suggested by Peter Elias.
