Board Members Present: Danny Sands, Debra Cobb, Eric Bersh, Mary Hennings, Burt Rosen, Brian Mack, John Grohol, Jan Oldenburg, Sarah Krug, Helene Clayton-Jeter, Matthew Holt, Amber Soucy, Joe Ternullo, Vera Rulon
Full attendance record available here.
Welcome Hennings
Minutes from last board meeting Bersh
Not discussed.
Treasurer-Membership Report Cobb
News and Updates Hennings
Discussion of board policies and procedures. Board evaluations. Reflect on how good we are as a team. Done when you have an ED. Need to establish meeting frequency. Need to update the by-laws, electronic voting. Board training.
Governance Decisions Hennings
Burt moving to marketing committee. Danny talks about skills needed on board. Less important that people are associated with a particular medicine specialty, but that their skills are needed. Amber clarifies skills with combination of interest. Helene thinks we’re actually talking about skills. Jan questions whether patient advocate is really what we represent. Make it an M or an H? Good to have a lawyer on Board. Make it an M. Make clinician an L.
Review of the Nexus Project Jan
- Nexus project: Patients Included (slide presentation). Vera part of group. No resolution over legal rights. Issue to resolve with University. Lucien is OK, but University not yet. We should move forward with new name. No response yet, although Jan has reached out several times. Jan has waited a year so far. 3 – 6 months more before we can actually use the website. Vera taken lead on research. Geri heading up content. Need someone for conferences. Vera explains “unique contributions,” “quick hits” (research), what we need from S4PM board (help offered from Mary Anne Sterling and others). Will need platform for program. Will need sponsors and sponsorship program. Sarah brings up concern whether SPM can take PI on? Excited about potential, but worried that we may not be able to pull it off. Danny asks about the research aspects. Jan says it’s important that we stage it appropriately. Helene talks about Geri’s Chicago meetup and how many folks are interested in research. Sarah talks about the importance of PCORI. Jan mentions that Danny Van Leeuwen is on PCORI board. Mary sums up by saying that core group needs to be sound and carefully planned on every aspect of PI. Mary suggests Board reach out offline to members of the PI group.
- Curated Content: Danny: overview available online. “Leverage the wisdom of the crowd.” Database of resources and present to membership. Appeal to members to share with us resources they find useful and tag them. 3 or 4 people will review them for validity. Put resources up on a webpage. Next phase – “Prescription to Learn.” Trusted ecosystem where patients can access curated content about their disease. Same system could apply to Patients Included. Danny says we need a budget, software, change the way S4PM works – links opened when a member logs in. Need board permission to move ahead. John Grohol says getting members to submit has historically been a challenge. It looks like a web directory. How are we going to get members to submit when they are currently not very engaged. Danny says we can start sparsely. Start slowly and build on early success. Sarah says we need to establish criteria for the resources. Use a ratings system with members to evaluate our resources. Burt asks what happens when we get a resource how are we judging it? We have to be careful about what we endorse. Danny says we’re likely to make early mistakes, but we’ll learn over time. We’re not doing clinical medicine so our approach will be different. Grohol talks about his earlier experience with resource site. People weren’t using it because they’d go to Google. Doesn’t think a directory is as good a resource as we might think it is. Sarah doesn’t know whether our resources will be used. Mary says we need to develop to see if it will work.
- Mid-Atlantic Meetup: Helene (slide presentation). Take advantage of the pandemic we events we can do remotely. First meeting, Q2, 2021. Add “Clubhouse” to the plan (or use Zoom). Need a communications manager (work with marketing team). Plan for future in-person meetings. Will need funds for entire effort. Want meetings hosted by the participants. These should be S4PM members. Held once a month. No date for first event. Approved by the Board.
Summary
Everyone very engaged.
Adjourned at 7:35 — Next board meeting: March 23, 2021, 6:00 – 7:30 pm ET
Respectfully submitted,
Eric N Bersh
SPM Board Secretary
