Members Present: Brenda Merriweather, Eric Bersh, Jay Spitulnik, Danny Sands, John Grohol, Melanie Albanese, Marie Maloney, Amanda Joseph, Kevin Freiert, Daniel Halpren-Ruder
Welcome: Danny Sands
Approve minutes from last meeting: Vote
- Skipped
Review of reports
- Few changes since January
- Two contributions pending
Index major workstreams
- Kevin: RWJ foundation needs more details before considering
- 3/15/25, 9 – 5, Boston. Major planning meeting
- PCORI interested but currently only do patient research, not outcomes
NEU Conference Update
- March 20; topic is the the MS Journey
- Agenda: need to fill 2 spots (caregiving, social work)
- Jay will send links to conf. drive, graphics, social networks, etc.
- Use @spmpatientjourney to tag event
- Board should update all their social media outlets
- 40 students signed up
Nomination of Board Candidate
- Julianne Bride
- Move forward? Unanimous
- Interviewer: Marie Maloney
Finn Partners Workshop
- Jay: seems directed only to clinicians
- John: in Slide/Moral the word medicine repeats the word medicine in our current motto He suggests “Collaboration is the best care”
- Mary, Danny, Jeff met and talked about re-branding
- Virtual Vote: unanimous
Infographic (one-page flier)
- Evolved from Manifesto
- Dan H-R says infographic too wordy
- John – not graphical enough
- Board – review and send comments to Danny and/or Mary
Everylife Community Congress Membership
- Kevin: SPM joins. Kevin contributes $500 to SPM. SPM pays for the membership. We get 2 seats. Kevin takes one
- Brenda spoke to group on Feb 12. Easy to work with. Recommends
- Vote: Jay/Eric. Unanimous
Matching Gift Announcement
- 500 if we can raise 500 from Board
- Use donate now button on website
Journal Update
- Skipped
Other business
- None
Adjourned at 7:30 p.m. EDT. Next meeting: March 25, 2025, 6:00 – 7:30 pm ET
Respectfully submitted,
Eric N Bersh, SPM Board Secretary