Members Present: Mary Hennings, Eric Bersh, Brenda Merriweather, Jay Spitulnik, Danny Sands, Daniel Halprin-Ruder, Melanie Albanese, John Grohol, Cindy Hale, Marie Maloney, Sarah Krug

Welcome: Mary H

Approve minutes from last meeting: Vote

• Jay/Daniel.

Review of reports

• Finance (skipped)

Index updates

• 3 questions sent to Beryl Inst. (re: consumer attitudes towards healthcare)
• Cost estimates delivered to Board via email
• Review of Qualitative proposals (documents sent to Board). 10 weeks for MA.  12 weeks for national survey.  5-6 weeks for indie patient survey.
• Dan: providing a service that optimizes behaviors in a value-based arrangement. Likes idea of small (MA) sample to raise funds
• Jay: CMS article reinforces value-based healthcare
• Sarah: initial funding? Mary: raise from external funding
• Eric: use some of our own funds to show skin the game
• Marie: use some SPM funding
• Brenda: starting small sounds good. John agrees.
• Sarah: not comfortable putting our own funds in. Would go to external with our ideas first.  Shows our potential to other groups
• Danny: not comfortable investing larger amounts of SPM money. Need to re-visit those who expressed interest in idea to see if funding is possible
• Mary suspects we will need to be slightly entrepreneurial about funding the project. Need to move quickly (approx. 6 weeks from now)

 NEU Event Update

• Jay/Brenda: don’t have time to do it as originally proposed. Postponed to January 30, 2025. Marie and Mary added to organizing committee.  Topic is patient journey through MS.
• Mary: will need to fundraise
• Danny: gives us good visibility

Conversations

• Health Union. Working on continuing relations
• Cancer Patient Lab (Brad Power). They are pushing the boundaries on care and innovative cures.  Do we do another conference around cancer care?  Open-ended ongoing conversation for now
• Marie suggests producing webinars

Board meetings: Vote

• Jay/Danny. Moved to November 19. Moved to December 17.  Approved

2025 Goal Setting

• Mary asks if Board would like to meet
• Danny/Eric/Jay agree that a meeting would be good. Maybe a half-day Saturday

Other Business

• Fraudulent check issued from SPM account. John working on it.

 

Adjourned at  7:10 p.m. EDT.  Next meeting: November 19, 2024, 6:00 – 7:30 pm ET

Respectfully submitted,

Eric N Bersh, SPM Board Secretary