by Mayank Agarwal | Jul 28, 2016
On Halloween night 2014, my mother and I found ourselves sitting in an executive suite at the Verizon Center in Washington, DC, eagerly awaiting to see my favorite band, Fleetwood Mac. I know it may be a little odd that someone my age, which at the time was 21, is...
by Nancy Finn | Jul 21, 2016
Participants: Kyra Bobinet, Peter Elias, Nancy Finn, John Grohol, Sarah Krug, Mark Reifsteck, Danny Sands, Joe Ternullo, Jon Wald, Peggy Zuckerman. Minutes Approved Education, Peter Elias Have a team to developing participatory medicine curriculum The course module...
by John Hoben | Jul 14, 2016
Realizing personalized medicine’s full benefits will require active patient involvement. This is the first in a series of articles defining personalized medicine in the context of participatory medicine. The series will explore how current best practices can...
by Mayank Agarwal | Jul 14, 2016
Anyone who has been given a diagnosis and recommended treatment has to make a decision. But how is that decision made? What facts are provided? My experience and assessment of the professional state of the art: not enough. During the years I spent writing my book The...
by Mayank Agarwal | Jul 14, 2016
I first met SPM-er and palliative physician, Dr Michael Fratkin on twitter. Michael’s re-imagined end of life caring through video conferencing is amazing unto itself, but more importantly what resonated for me are his insights into dying not as a medical dilemma but...
by Mayank Agarwal | Jul 14, 2016
Participatory patients live with day-to-day ‘engagement’ but end-of-life is an oft-missed opportunity for participation that can result in more ‘control’ than any other time in life. End of life planning is also an opportunity for a deeper understanding of what makes...
by Mayank Agarwal | Jun 20, 2016
Is it possible that healthcare movement such as Patient Engagement and Person- and Family-Centered Care are actually failing? Without a doubt, these movements have generated impressive progress. I am a parent of a medically complex child who would probably not be...
by Mayank Agarwal | Jun 20, 2016
In one sense, the movement for Patient Engagement has been tremendously successful. Key elements like shared decision making, co-production of care, and patient data portals are almost ubiquitous. Clinicians increasingly seem to value patient engagement, healthcare...
by Nancy Finn | May 18, 2016
Participants: Peter Elias, Nancy Finn, John Grohol, Danny Sands, Joe Ternullo, Jon Wald, Peggy Zuckerman Minutes Approved SPM at Health Datapooloza, Danny Sands SPM will sponsor an informal get together at the 7th Annual Health Datapalooza Conference in Washington,...
by Mayank Agarwal | May 10, 2016
When she was a patient with cancer, Sabiha Raoof, MD, realized that patients experience many challenges throughout the course of diagnosis and treatment and started something new to better meet post-surgical patients’ needs. Soon thereafter, others in the hospital...
