by Gilles Frydman | Oct 21, 2009
Abstract Summary: Since the Internet’s earliest days, patients have used online resources to share experiences, learn about diseases and treatments, and become advocates. A newer phenomenon has seen a growing number of online communities evolve into centers of...
by Musa Mayer | Oct 21, 2009
Abstract Summary: The story of one patient advocate and author who moved beyond her personal experience with breast cancer to focus on helping women with metastatic disease, which in turn has led to her further training and involvement with drug development,...
by David C. Kibbe | Oct 21, 2009
Abstract Summary: The emerging phenomenon of participatory medicine seems to lead to improved health outcomes, but this is not yet supported by a robust evidence base. Fundamental questions about the participation of individuals—sick and well—remain unanswered. Only...
