by John Novack | Feb 28, 2013
Abstract Summary: According to a new survey, neurofibromatosis (NF) patients use NF-related social media for information gathering more than emotional support. Keywords: Neurofibromatosis, NF, social media, online communities, patient engagement. Citation: Novack J....
by Danny van Leeuwen | Feb 18, 2013
Abstract Keywords: Exceptional children, special needs, parenting, family caregivers, mental health, participatory medicine. Citation: van Leeuwen D. Book review: Far From the Tree. J Participat Med. 2013 Feb 18; 5:e8. Published: February 18, 2013. Competing...
by Ileana Balcu | Dec 19, 2012
Abstract Keywords: Shared decision making, health care decision aids, treatment, patient responsibility, patient empowerment, behavioral economics, bioethics, doctor patient communication, informed consent. Citation: Balcu I. Book review: Critical Decisions: How You...
by Danny van Leeuwen | Nov 15, 2012
Abstract Keywords: e-patients, EMRs, PHRs, access to data, health information technology, communication. Citation: van Leeuwen D. Book review: e-Patients Live Longer. J Participat Med. 2012 Nov 15; 4:e28. Published: November 15, 2012. Competing Interests: The author...
by Scott Strange | Oct 31, 2012
Abstract Keywords: Unconference, Twitter, open innovation, patient engagement, participatory research. Citation: Strange S. Health Camp KC: the unconference. J Participat Med. 2012 Oct 31; 4:e27. Published: October 31, 2012. Competing Interests: The author has...
by Kathleen O'Malley | Oct 10, 2012
Abstract Keywords: IOM, continuous learning, best care, patient centered care, health care reform, EMRs, health data, access to data, e-patient, patient engagement. Citation: O’Malley K. IOM calls for enlisting patients to improve care and lower costs. J...