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Neurofibromatosis Social Media Trends

Abstract Summary: According to a new survey, neurofibromatosis (NF) patients use NF-related social media for information gathering more than emotional support. Keywords: Neurofibromatosis, NF, social media, online communities, patient engagement. Citation: Novack J....

Book Review: Far From the Tree

Abstract Keywords: Exceptional children, special needs, parenting, family caregivers, mental health, participatory medicine. Citation: van Leeuwen D. Book review: Far From the Tree. J Participat Med. 2013 Feb 18; 5:e8. Published: February 18, 2013. Competing...

Book Review: e-Patients Live Longer

Abstract Keywords: e-patients, EMRs, PHRs, access to data, health information technology, communication. Citation: van Leeuwen D. Book review: e-Patients Live Longer. J Participat Med. 2012 Nov 15; 4:e28. Published: November 15, 2012. Competing Interests: The author...

Health Camp KC: The Unconference

Abstract Keywords: Unconference, Twitter, open innovation, patient engagement, participatory research. Citation: Strange S. Health Camp KC: the unconference. J Participat Med. 2012 Oct 31; 4:e27. Published: October 31, 2012. Competing Interests: The author has...

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