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Integrating a Physical Office with an Online Platform to Improve Continuity of Care and Expand Patient-Physician Communication


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Abstract Keywords: Participatory medicine, patient-physician communication, EMRs, continuity of care, reimbursement. Citation: Khozin S, Juhn G. Integrating a physical office with an online platform to improve continuity of care and expand patient-physician...

Armchair Advocacy for Tuberous Sclerosis Complex: A Patient’s Perspective


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Abstract Summary: This narrative summarizes the experiences of a young professional woman with two chronic illnesses, and how her decision to take charge of her own care changed her life. Keywords: Tuberous sclerosis complex, LAM, lymphangioleiomyomatosis, patient...

Judy Feder: Narrative of a Breast Cancer e-Patient

Editor’s Note: Judy Feder was a Founding Member of the Society for Participatory Medicine. Sadly, she died of breast cancer on April 23, 2010. We were grateful that she agreed to write this article for our journal. Unfortunately, we learned of her death shortly...

“Here’s the Story: …” Essential Elements of Essential Narratives About Health Care


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Abstract Summary: The Narrative Matters section of the health policy journal Health Affairs publishes compelling first-person essays called “policy narratives.” Unlike other types of medical narratives, the health-related stories published in Narrative...

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