What “Participatory” Means to Me
Abstract Summary: Reflecting on my own experiences, I wonder if my modus operandi would be considered truly participatory. On the one hand, I fit the description of an activated, empowered and engaged participatory patient. I’ve made lifestyle changes to support...The Term “Patient” May Describe Me … But It Does Not Define Me
Warning: Undefined variable $silent in /home/pmed/public_html/wp-content/plugins/footnotes-for-wordpress/wp-footnotes.php on line 156
Editor’s Note: Recently, I had the privilege of being part of a very stimulating email thread on the Society of Participatory Medicine’s member-only list about the meaning of the word “patient” and what it implied for the field of Participatory...
The Role of Patient Organizations in Participatory Medicine: Can Virtual Health Communities Help Participatory Medicine Accomplish Its Objectives?
Abstract Summary: Patient organizations aim to improve the quality of life for people and their families who are affected by certain health conditions. Even though there has been a sharp rise in the demands on health systems during the last few decades, these systems...Citizen Science Genomics as a Model for Crowdsourced Preventive Medicine Research
Abstract Summary: A research model for the conduct of citizen science genomics is described in which personal genomic data is integrated with physical biomarker data to study the impact of various interventions on a predefined endpoint. This research model can be used...Evidence that Engagement Does Make a Difference
Warning: Undefined variable $silent in /home/pmed/public_html/wp-content/plugins/footnotes-for-wordpress/wp-footnotes.php on line 156
Warning: Undefined variable $silent in /home/pmed/public_html/wp-content/plugins/footnotes-for-wordpress/wp-footnotes.php on line 156
Abstract Keywords: Participatory medicine, African Americans, health care disparities, non-small cell lung cancer. Citation: Gruman J. Evidence that engagement does make a difference. J Participat Med. 2010 Dec 22; 2:e19. Published: December 22, 2010. Competing...