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10 things e-patients say to engage in their care

    1. The magic incantation
      Say this one, and boom: you’re being engaged:

      “I’­m the kind of person who likes to understand
      as much as I can about my health.
      Can I ask some questions?”
       
    2. “I found this site. What do you think?”
    3. “How can I talk with other patients?” (Online or off)
    4. “What will this cost?”
      At this writing, hardly anyone knows. Help change that: keep asking.
    5. “Are there any other options?”
      “What happens if I choose ‘do nothing’?”
    6. “How strong is the evidence?”
    7. “What’s your infection rate?”
    8. “Could I see my chart?”
      [or my mother’s / my child’s / my friend’s, if you’re authorized]
    9. “This isn’t right in the chart / didn’t happen / is missing. Please fix it.”
    10. “What’s the standard of care for my condition?
      When was it updated?”

 

Excerpt from Let Patients Help! A “patient engagement” handbook – how doctors, nurses, patients and caregivers can partner for better care by “e-Patient Dave” deBronkart with Daniel Z. Sands, MD, MPH. All rights reserved. Reproduced here with permission.

 

 

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