Search all of the Society for Participatory Medicine website:Search

Board Members Present:  Danny Sands, Burt Rosen, Debra Cobb, Eric Bersh, Jan Oldenburg, Joe Ternullo, Judy Danielson, Sarah Krug, Matthew Holt, Vera Rulon, Lynda Mitchell, Sue Woods, Geri Lynn Baumblatt, Brian Eastwood, John Grohol, Michael Millenson, Helene Clayton-Jeter.

Board Members Not Present:

Full attendance record available here.

Welcome and Level-setting                               Sands

 

Minutes from last two board meetings            Approved

 

Treasurer’s Report                                              Cobb

$7,500 transferred to travel fund.

Governance Report                                            Lynda Mitchell

By-laws revision around membership.  ID attorneys to provide services.  Non-NYC attorneys not comfortable working with us.  DC attorney, Karen Wu, recommended.  Her fees estimated at $6 – $10K.  On higher end if we go to a membership structure (this makes sense for us).  Recommend $7,500.  Grohol asks how many attorneys were interviewed.  (Four).  Wu was the 4th. Grohol comfortable with $7,500 or lower, if possible. Joe suggests John be on first call with Karen Wu. Motion carried to approve budget and Karen Wu.

Conference Report                                             Ternullo

Plans set. Speakers ready. Joe encourages all to attend. Sue says more emails should be sent as SPM currently has no newsletter. Matthew willing to send out a blast. Sue and Joe will construct a newsletter-like email to encourage registration.

Signature Initiative                                            Oldenburg, Eastwood

Available online.  There will be a Town Hall on 9/24.  Goal is to come back with names of people who will work on signature initiatives (see Open Forum thread).  Want to involve people not currently members of SPM.  Plan to resolve initiative by end of 2019.

Advocacy                                                            Rulon, Millenson

Patient-generated health data and 2) immediate access. PGHD document link in Connect. Letter to CMS for immediate access needs approval. (Will help with relationship-building with CMS as well as formal comment). Members can weigh in with CMS by making comments. Helene discusses the review process at CMS and agrees about relationship building. Danny says SPM comments in past have been very helpful. Jan suggests we post the actual letters along with comments. Vote approved for Immediate Access.  PGHD can provide trends in healthcare issues with an individual. Framework letter shown to the Board. Focus on initiatives what and how PGHD is helpful. Millenson says letter balances length and description to make it meaningful to members. Letter due 9/27/19. Matthew worried that if we propose experimentation to CMS, nothing will happen. Millenson says this will go into CMMI court and should be OK. Sands and adds that he and Jonathan Wald chaired an expert panel years ago on PGHD. Sue willing to revise doc. Motion carried to finalize PGHD letter.

Signature Initiative

Jan wants Board members to attend. Town Hall will be recorded using Danny’s zoom number.

Member Roles Open                                          Sands

Mary Hennings nominated as president-elect. Will take office as full president on 4/1/20. Motion carries. Mary is elected.

Adjourned at 7:03 — Next board meeting: October 22, 2019, 6 pm

Respectfully submitted,

Eric N Bersh

SPM Board Secretary

 

 

Donate