by Nanette Mattox | Sep 10, 2016
I just met my new class. I am teaching the New Media and Health Communication at The College of New Jersey. I am excited for the possibilities ahead and I keep remembering my students in the spring semester. I loved their enthusiasm, the jokes, the hard work they put...
by Nanette Mattox | Sep 10, 2016
As a longtime health care professional, it is hard to imagine a more exciting time in health care. The innovation and pace of change is breathtaking. Before our eyes, our health care system is being deconstructed. As it is reconstructed, aided by technology, the focus...
by Nanette Mattox | Sep 10, 2016
Cynthia Chmielewski It was a sunny July day eight years ago generic tadalafil. The first thing my hematologist asked me should have tipped me off: “Did you come alone?” The next four words he said will forever be etched into my memory: “You have multiple myeloma.”...
by Nanette Mattox | Sep 10, 2016
I admit that this headline is fiction, not fact. However, I strongly believe that health literacy must be part of the K-12 curriculum in all schools, in the US and globally. Here’s why I hold that belief, and an outline for how we can make it happen. The current...
by Nancy Finn | Sep 6, 2016
Participants: Nick Dawson, Peter Elias, Nancy Finn, Danny Sands, Sarah Krug, Joe Ternullo, Peggy Zuckerman Minutes Approved Research Library Danny Sands Weill Cornell Medical School and the Society for Participatory Medicine have signed a Memorandum of Understanding...
by Nancy Finn | Aug 3, 2016
Participants: Kyra Bobinet, Donna Cryer, Nick Dawson, Dave DeBronkart, Nancy Finn, John Grohol, John Hoben, Sarah Krug, Danny Sands, Peggy Zuckerman Progress to Date: Assessing Board performance, general discussion: Danny Sands Consensus that there is a high level...
by Mayank Agarwal | Jul 31, 2016
On July 13th 2013 at 7:15 pm I was sitting in a Wegman’s café eating dinner with two startup founders I was mentoring when I received a phone call from a dermatologist. He had removed a mole from my 10-year-old daughter’s arm a week earlier. My daughter and my...
by Society for Participatory Medicine Volunteers | Jul 29, 2016
The past two weeks I conducted an unscientific survey. I asked random strangers what they first thought of when they heard the word “Rare.” I got the following answers: Automobiles Gemstones Jewelry Books Mummies found in peat Animals Manuscripts Records Rugs...
by Society for Participatory Medicine Volunteers | Jul 28, 2016
Rare diseases often get the short end of the stick when it comes to accessible information and resources. That’s why we’re pleased to offer this index of rare disease resources for patients, caregivers, and health care professionals. National Organization...
by Mayank Agarwal | Jul 28, 2016
My name is Alexandra Albin (msaxolotl on Twitter) and I have an orthopedic condition called osteonecrosis or avascular necrosis (AVN). AVN is a painful and debilitating bone disease that typically affects long bones, is caused by a loss of blood supply to the bone,...
