by Mayank Agarwal | May 10, 2016
When faced with her husband’s deteriorating health (secondary progressive MS and kidney cancer), Holly found her voice to advocate for her husband’s wishes, so that he could participate in a meaningful family celebration. My husband had Relapsing-Remitting Multiple...
by Society for Participatory Medicine Volunteers | Apr 10, 2016
Meniere’s Disease, is that what you said? Does it affect my whole body or just my head? Will I always have this dizzy feel? Where the room spins around and makes me reel? And what about the ringing in my ear? Or the fullness that comes and makes me not...
by Society for Participatory Medicine Volunteers | Apr 10, 2016
A fantastic video interview with SPM member Casey Quinlan conducted by John Hoben that discusses the op-ed in the journal, BMC Medicine entitled, Trustworthy guidelines – excellent; customized care tools – even better which she was a co-author on. From the article:...
by Society for Participatory Medicine Volunteers | Apr 10, 2016
It is an exciting time within the Society for Participatory Medicine (S4PM)! The New Year for the organization began with renewed energy for advancing the work of the Society, which in part is to bring engaged patients and engaged providers together in collaboration...
by Society for Participatory Medicine Volunteers | Mar 8, 2016
A Global Conversation held on Hangouts discussing the state of Health and Health Care Literacy. Peggy Zuckerman (CA, US), Geri Lynn Baumblat (Chicago, US), Dr. Mayank Agra (New Delhi, India), Dr. Ruslan Savitskij (Stockholm, Sweden) and Dr. Michael Mascia (ME, US)...
by Michael Mascia | Mar 8, 2016
Brenda Dunn’s story by Dr. Michael F. Mascia, MD, MPH Michael: We are honored to have these words from BRENDA Dunn, one of our most experienced and helpful members.  She is a wise and experienced mother, grandmother, patient and nurse who openly shares her...