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Participatory Medicine Conferences

The MS Patient Journey: From New Diagnosis to Patient Engagement

March 20, 2025 from 11:30 am – 5:00 pm
Northeastern Cabral Center, 40 Leon Street, Boston, MA

This interactive conference, produced in collaboration with Northeastern University, will explore the journey of patients, families, and caregivers after a new multiple sclerosis (MS) diagnosis and how healthcare professionals can best support them. Attendees will hear from patients and caregivers sharing their experiences navigating the healthcare system, working with providers, and adjusting to their new reality. Keynote speakers and panels, including physicians, nurses, healthcare informatics specialists, social workers, and mental health professionals, will address topics such as screening, medication compliance, interdisciplinary care, mental well-being, and available resources. Case studies and group discussions will provide diverse perspectives from patients, caregivers, and clinicians. The event highlights a patient-centered, multidisciplinary approach, focusing on empowerment, support, and collaborative care.

Additional panelists and Sponsors to be announced soon!

Featured speakers:

Ursula Barber, MD

Ursula Barber, MD

Danny van Leeuwen, Opa, RN, MPH

Danny van Leeuwen, Opa, RN, MPH


Register today!Northeastern Student? Registration for students only.

 

Event Learning Objectives:

  • Describe the patient’s process from being diagnosed with an illness to feeling empowered to act.
  • Describe solutions for navigating the healthcare system.
  • Explain how elements of participatory medicine are reflected at the patient, caregiver, and healthcare professional levels.
  • Create a detailed scenario of the patient’s journey to creating a collaborative relationship between the patient, the caregiver, and the healthcare team.
Register today!Northeastern Student? Registration for students only.

 

Sponsors

Want to become one of our amazing event sponsors and show your support for the Society’s mission? Your organization can help us advocate for the benefits of participatory medicine by sponsoring a future event! Learn more about event sponsorship opportunities today.

Patients: Looking for help in getting to a conference?
Please check out our Patient Travel Awards.

 


 

Our last event

 

Advancing Health Equity Through Participatory Medicine

An interactive workshop to explore the barriers to health equity facing marginalized communities and the practice of participatory medicine.

 

Date: November 9, 2023

Time: 11:30 am – 4:00 pm ET
Location: The Cabral Center, Northeastern University, 40 Leon St., Boston, Mass.

Our goal with this Creative Learning Exchange (CLE) is to explore the barriers to health equity facing marginalized communities through the practice of participatory medicine.

Featuring:

Guy Fish, MD

 


Guy Fish, MD

CEO & President, The Greater Lawrence Family Health Center

 

Thea James, MD

 

Thea James, MD, MPH, MBA
Vice President of Mission and Associate Chief Medical Officer,
Boston Medical Canter

 

Topics will include:

  • Barriers to achieving health equity
  • Participatory medicine as the last mile in health equity
  • Patient perspectives on health equity and participatory medicine
  • Institutional responses to health inequities
  • Co-creation of strategies and tools

Northeastern University faculty, clinicians, and experts in health equity as well as patients from Community Health Centers will share with the audience programs and efforts they have undertaken to advance trust, respect and health equity. Conference attendees โ€” including Northeastern students and professors, as well as clinicians, patients, caregivers, and health care professionals โ€” will participate in a lively discussion of how to advance health equity, trust, respect and participatory medicine, at both the individual and institutional levels.

Recommendations will be shared with Northeastern and SPM. We will also summarize those recommendations for our community and use them as a basis for advancing the cause of health equity, trust, and participatory medicine. The recommendations will help inform policy directions we advocate for, articles and blogs we write, and programs we initiate. Your voice will help shape those recommendations, whether you attend in person or online. We look forward to seeing you.

 

Panelists include:

  • Emma Albert – Co-Chair Diversability, Northeastern University
  • Melissa Hector – Director of Equitable and Strategic Initiatives, Boston Public Health Commission
  • Javier Juarez – Director of The Latino Equity Fund,Boston Foundation
  • Brenda Merriweather, MSN, RN – Nursing Professional Development Specialist, Boston Medical Center
  • Claire Cecile Pierre – VP of Community Health Programs, Mass General Brigham

 

 

 

Want to sponsor this or a future SPM event?

Learn how to support the Society and our CLE events through different sponsorship levels.

 

 

Conference Archives: Past conference information is available here.