e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Proposal for a health data system to support urgent cancer patients and wounded warriors
Denny Porter is executive-in-residence at the HIMSS Foundation, Institute for e-Health Policy. I met him in Washington last month at the eHealth Initiative's annual conference, where I was on a panel. Great guy, and I love this proposal: a Federal Health Records...
Some people just won’t take death for an answer.
We often talk here about empowered patients' struggles to get - or even create - the care they need. Usually we're talking about it in a medical sense. But as far too many people know, sometimes there are other obstacles. Laurie Todd is, to me, an outstanding example...
What to do about “the cream of the crap”? ONC’s Adoption/Certification Workgroup meeting
I'd like your help preparing thoughts and testimony for a policy meeting I've been invited to attend in Washington next week. For these meetings, one needs to submit prepared remarks in advance, for the committee to digest in advance. And from what I've learned so...
E-patients.net = suggested reading
Gretchen Berland is one of my heroes, so I was thrilled when she asked me to give a guest lecture at Yale. Then I read the syllabus for "Media & Medicine in Modern America." It's too cool to keep to myself... The organizing themes for the course include: (1) Who...
The Decision Tree: What to Expect When You’re Expecting a Long Life
Warning: Do not read The Decision Tree unless you're ready to make some kind of change in your life. Thomas Goetz catalogs the recent advances (and setbacks) in medicine & personal health, but also maps out the possibilities for how things could get better. He...
Data-Driven, Patient-Centered Health Care: A #WhyPM Video
From our friends at the Robert Wood Johnson Foundation Pioneer Portfolio, the best #WhyPM short video I have seen. My kudos to them.
The e-Patient Salute
Can you SEE the E?
Privacy can kill, openness can heal
If you follow Jeff Jarvis on Twitter or read his blog, you know (maybe more than you wanted to) about his fight against prostate cancer. I've mostly paid attention to what he's written about technology and journalism, but check out this excerpt from his post, The...
Who are you, DarthMed?
Once the world’s information was put into context, we looked beyond the keyboard, and collectively shifted to people. We focused on social context by asking questions like: Who are you? How are we connected? What is on your mind? What matters to you? Making the...
Pay me now or pay me later.
Alfred Sommer's Washington Post column: "Tragedy of individual Haitians risks overshadowing chronic health problems" gets to the heart of the power of public health, communications, and the personal choices which make a difference in our lives.
ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”
When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn's e-patient experience: "this hospital is understaffed and...
Participatory Medicine in Time magazine
Re Time's article "Group Therapy" in the February 8, 2010 issue, arriving on newsstands now: Time's freelance reporter Bonnie Rochman contacted our Susannah Fox to discuss her remarks at the Institute of Medicine last October. In hours of discussion about that post,...
