e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”
When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn's e-patient experience: "this hospital is understaffed and...
Participatory Medicine in Time magazine
Re Time's article "Group Therapy" in the February 8, 2010 issue, arriving on newsstands now: Time's freelance reporter Bonnie Rochman contacted our Susannah Fox to discuss her remarks at the Institute of Medicine last October. In hours of discussion about that post,...
What’s the point of Health 2.0?
…The remaining 95% of “patients” out there are not motivated to become informed, or invest the time/energy/money in using any of these tools. These are the folks that know that fast food isn’t healthy, but are just too tired to choose differently. Some (emphasis on...
Health Sites: Some Are More Equal Than Others
Update: Roni Zeiger of Google Health emailed me and gave permission for me to post the following statement, which I think is a helpful addition to the conversation: Health information is obviously an important category of information users are looking for. For this...
Unleash the Hot Talent: A Letter from a Patient
This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She's a pensive, musey blogger at CocoVillage, and "wicked smaht," as we say in Boston. She's also the one who introduced us to Regina Holliday last year. She recognizes talent when she sees it...
Health 2.010: New Year, New Era
This is a guest post by Lucien Engelen (Dutch Twitter friend @Zorg20), who was featured in October's The internet is changing healthcare – video from Reshape09. Here, he takes it to the next step, moving from health 2.0 to "health 2.010”. I love it! - Dave __________...
Video: If Air Travel Worked Like Health Care
Back in September, Jonathan Rauch of the National Journal wrote a terrific (fact-based!) send-up of our archaic, arcane, not-customer-centric healthcare system, titled "If Air Travel Worked Like Health Care." I wish I'd known about it then, but I only learned of it...
Health data rights on CNN
Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today's must-read article, Patients demand: 'Give us our damned data'. An e-patients all-star team is quoted in the story: Jen McCabe, Regina Holliday,...
The Invisible Stakeholder:
Why America Needs a Patient-in-Chief
The following is the proposal I submitted Tuesday, to speak at O'Reilly / TechWeb's Government 2.0 Expo, May 25–27 in Washington. ______________________________ The Invisible Stakeholder: Why America Needs a Patient-in-Chief “These are exciting and very...
My Father’s Medical Record Fiasco
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
What’s in your… bucket queue?
Prolog: Cheryl said she wasn't sure whether this post belonged on the e-patient blog. It sure does: When lives are prolonged by medical success, we get to do all kinds of things we wouldn't have. It also belongs here because this short little piece contains a terrific...
“The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009
The Quantified Self (aka "QS") is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional "Show&Tell" meet-ups, with elbow-rubbing and a series of quick talks,...
