e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
My Father’s Medical Record Fiasco
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
What’s in your… bucket queue?
Prolog: Cheryl said she wasn't sure whether this post belonged on the e-patient blog. It sure does: When lives are prolonged by medical success, we get to do all kinds of things we wouldn't have. It also belongs here because this short little piece contains a terrific...
“The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009
The Quantified Self (aka "QS") is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional "Show&Tell" meet-ups, with elbow-rubbing and a series of quick talks,...
Access is (almost) everything
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center's Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial and ethnic categories in the U.S.: Latinos Online, 2006-2008 From...
PeoplesPharmacy.com in NYTimes: “Not All Drugs Are the Same After All”
We're thrilled to see our Joe and Terry Graedon, of PeoplesPharmacy.com, in the New York Times ("Not All Drugs Are the Same After All") telling a truth that the FDA hasn't figured out: generics don't always work the same as the brand name drug. Joe and Terry exemplify...
“Concern that sharing information with patients may cause sustained psychological distress is probably unfounded”
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement's "WIHI" series hosted a terrific webcast on the Open Notes project that's being funded by the Robert Wood Johnson Foundation. (I need to dig up the link to...
Ahem. :-)
I am about to punk my well-known doctor. :–) Me being me, I just had my annual physical. Great visit and all that. Yesterday I got a letter about my lab results. My cholesterol and weight are trending unfavorably, so the good doctor said "you need to take lifestyle...
What part of “Give us our damn data” do you not understand?
Yesterday I attended "How Access to Information Can Empower Patients and their Caregivers," conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no web site of...
2010: The Year of Open Streams & Fax Machines
I started writing this post while watching a livestream of the LeWeb09 conference in Paris and finished it while watching a livestream of TEDxSV. Open Streams are of many kinds and shapes. They are completely changing how we consume information, news &...
Journal of Participatory Medicine cited on Scientific American blog
Scientific American writer Robin Lloyd (Twitter: @RobinLloyd99) has written a nice, clear, hit-the-nail-on-the-head post on their blog about our Journal of Participatory Medicine.
Stupid Cancer Show
Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show. Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and blogger, and... me!
Making Healthcare Better through Participatory Medicine
There's new validation that participatory medicine is an idea whose time has come: the co-chairs of the Society for Participatory Medicine (my primary physician Dr. Danny Sands and I) are on this year's list of 20 People Who Make Healthcare Better, an annual feature...
