e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
What part of “Give us our damn data” do you not understand?
Yesterday I attended "How Access to Information Can Empower Patients and their Caregivers," conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no web site of...
2010: The Year of Open Streams & Fax Machines
I started writing this post while watching a livestream of the LeWeb09 conference in Paris and finished it while watching a livestream of TEDxSV. Open Streams are of many kinds and shapes. They are completely changing how we consume information, news &...
Journal of Participatory Medicine cited on Scientific American blog
Scientific American writer Robin Lloyd (Twitter: @RobinLloyd99) has written a nice, clear, hit-the-nail-on-the-head post on their blog about our Journal of Participatory Medicine.
Stupid Cancer Show
Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show. Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and blogger, and... me!
Making Healthcare Better through Participatory Medicine
There's new validation that participatory medicine is an idea whose time has come: the co-chairs of the Society for Participatory Medicine (my primary physician Dr. Danny Sands and I) are on this year's list of 20 People Who Make Healthcare Better, an annual feature...
Our Bodies Ourselves: support this pioneer of empowered, participatory healthcare
Some people think e-patient ideas are new. They're not. I'd like to give credit to a noble antecedent, and ask for your support. Shortly after I discovered this blog (February '08) I recognized two strong precedents from earlier in my life: Dr. Benjamin Spock's Baby...
Health News Review launches new site with improved e-patient training
There's a new resource for a vital e-patient skill: reading health news responsibly. It helps us be smarter before we bring new findings to the attention of other patients and our providers - not to mention smarter for our own benefit. When "Doc Tom" Ferguson defined...
Inviting Controversy: David Eddy at ICSI
David Eddy did nothing to reassure Kent Bottles about evidence-based guidelines in his recent keynote, saying essentially: "The problem is that we don’t know what we are doing" (!!)
Shared Decision Making: Informed Consent v. Informed Choice
This guest post, presenting the view point of Howard Luks ( @hjluks on Twitter). Howard is an orthopedic surgeon. He serves as the Chief of Sports Medicine, Arthroscopy and Knee Replacement at Westchester Medical Center, in Westchester County, NY.  Asked about...
Terrorized By The ‘War On Cancer’
How a Three-Word Mantra Has Undermined America's Ability To Make Sound Healthcare Decisions with apologies to Zbigniew Brzezinski In his original article about the war on terror Brzezinski argues that the use of the term War on Terror was intended to generate a...
Engage With Grace
Alexandra Drane and her team have a new post on The Health Care Blog about how to put this holiday to work in a new way. Here's a snippet: Some conversations are easier than others Our original mission – to get more and more people talking about their end of life...
A new blog worth noting: “Evidence In Medicine”
Understanding medical research, at some level, is a fundamental e-patient skill. As we start digging for reliable new information, we have to learn to separate quality from questionable. (If you think medical journals are academically pure, you've got learning to do.)...
