e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
“Doctors Are Killing Their Profession, the Healthcare System and Their Patients with Paternalism”
That's the strongest language yet in our "Why Participatory Medicine" series. And it's not our words - it's the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month. The message echoed his thoughts, and...
Participation Matters
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one....
A Lifetime of Participatory Medicine Can Start With Maternity Care
As promised yesterday, here is Amy Romano's guest post for our series leading up to the Oct. 21 launch of the Journal of Participatory Medicine. Amy is a nurse-midwife and advocate for mother-friendly maternity care. An expert in research analysis, she manages the...
Keep an eye out for tomorrow morning’s post
In our "Why Participatory Medicine" series, leading up to the October 21 launch of the Journal of Participatory Medicine, tomorrow's guest post will be a special treat for me. It contains a breakthrough insight about participatory medicine, and it's a perfect example...
Journal of Participatory Medicine and e-Patients
A guest post by John Sharp of the Cleveland Clinic: If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle of the paper, “How they can help us heal healthcare,” describes...
Social media and healthcare: hospitals lead
A signal moment has happened: When a major business authority with no history in healthcare speaks up about a shift in the wind, it's worth noting. And this time it's a great sign for participatory medicine, because the news is that hospitals are engaging with...
What Participatory Medicine can learn from a $2,467 phone bill
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have...
Participatory Medicine around the world: the Seven Preliminary Conclusions reach India
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don't we love it when social media let empowering information spread! It's exactly what our founder "Doc Tom" predicted with his now-famous 1995 triangle slides: the...
“HIPAA is SO 1996”
That's a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week's meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want innovation at a...
Give patients (that’s you) access to all their (your) data – so they can help
Cross-posted from my website, ePatientDave.com - the happy home for my new business! I've just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled "Gimme My Damn Data," which is an unconventional title for an opening...
Why Electronic Medical Records Still Leak
I hear it time and time again in the e-health industry: "If only we had everyone on an electronic medical record, all of our security and privacy issues would be solved!" Really? Perhaps I should introduce you to a little something psychologists like to call "human...
Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!
Matthew Herper's post about thalidomide treatment of Myeloma is a good example of how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who get involved to this degree in formulating new treatment approaches. I...
